Discussions By Condition: I cannot get a diagnosis.

Desparate - Begging for Advice

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Anonymous
  • June 12, 2007
  • 01:26 AM

I am a 74 year old male. In 2003 I had prostate cancer that was treated with radiation and 4 shots of Lupron. In 2004 I had a heart attack and quadruple bypass surgery. About 4 months after my surgery I started feeling cold. I cannot get warm. I feel like I am freezing all the time. I have been to 3 cardiologist, 2 endos, and see my internal medicine doctor on a regular basis. They tell me they have never had a patient like me. They have done CT scans, MRIs, all kinds of blood work, tested for everything imaginable - thyroid, Lupus, Lyme, etc.. All tests came back good. I have lost almost 3 years of my life because I cannot do anything. I have to stay in bed 90% of the time with at least 2 blankets on me. My bedroom is around 85-86 degrees. I can tolerate that but if the temperature drops then I feel like I am freezing to death. I only go out of the house to go to the doctor. I also sweat like crazy. I sweat and my skin is cold and clammy. I sweat so much that I lay on a big bath towel and have one over my upper body - to keep my sheets dry. I am at the point that I just want to die. My life is useless. I have not been to a neurologist. I don;t know how they could help me. Somebody out there has got to have this same problem. Please I am begging for any advice. (Please don't tell me it is male menopause or my thyroids. That has all been checked out.)

Reply Flag this Discussion

3 Replies:

  • Hi -- I'm a 26 y/o female with multiple autoimmune problems since I was 8.In 2002 (age 22), I developed vasculitis in my lungs, and I was FREEZING all the time. I'd wake up in the middle of the night chilling, covered in freezing clammy sweat. I would get up, fill the bathtub up with water as hot as I could bear, and soak for 20-30 minutes until I was warm again.I'd go back to bed, fall asleep, and wake up again 2 hours later freezing cold again, covered in cold sweat. I didn't know it, but my oxygen saturation was dropping down to about 88-90% while I was asleep. This made me breathe hard and fast, which caused the sweating, but I have no clue why I felt so cold all the time.I did this for 3 months -- lost 30lbs from an already thin frame, couldn't stay in college, ended up having my parents cart me off to Mayo Clinic in MN where I saw a rheumatologist and pulmonologist. They determined that I had vasculitis similar to Wegener's Disease, and they gave me chemo -- Rituxan -- to kill B-cell infiltrates in my lungs. It fixed the problem within a month, and I was eventually able to return to college and life in general.Has doctor checked your P-ANCA and C-ANCA (blood tests) to look for autoimmune involvement?(((hugs))) I know about depression, and you should know that you aren't alone on that front. I was so miserable and feeling like such a burden on my family that I tried to commit suicide with a massive overdose of insulin. My quality of life was non-existent, and I needed help to do simple things like bathing and I couldn't even walk up a flight of stairs without oxygen.Don't give up. Where are you located? I had to go to 6 different major research hospitals before I found help. My parents and I flew to Yale, drove to Baylor, drove to Barnes/Children's St. Louis.... until going to Mayo, I got a bunch of puzzled looks.You can email me at lotussutraATgmail.com (replace the AT with the @ sign, hope you know the drill).Best of luck. Don't lose hope.Jamie
    Anonymous 42789 Replies Flag this Response
  • Dear boots and Jamie, have either one of your doctors considered Chronic Fatigue Syndrome? I have recently been diagnosed and many of your complaints were my complaints tooLook into NAET therapy or reiki, reallyLook into boosting your immune system with vitamins, minerals and supplements (under care of physician)Traditional medicine will not help but the above mentioned information will
    Anonymous 42789 Replies Flag this Response
  • I am a 74 year old male. In 2003 I had prostate cancer that was treated with radiation and 4 shots of Lupron. In 2004 I had a heart attack and quadruple bypass surgery. About 4 months after my surgery I started feeling cold. I cannot get warm. I feel like I am freezing all the time. I have been to 3 cardiologist, 2 endos, and see my internal medicine doctor on a regular basis. They tell me they have never had a patient like me. They have done CT scans, MRIs, all kinds of blood work, tested for everything imaginable - thyroid, Lupus, Lyme, etc.. All tests came back good. I have lost almost 3 years of my life because I cannot do anything. I have to stay in bed 90% of the time with at least 2 blankets on me. My bedroom is around 85-86 degrees. I can tolerate that but if the temperature drops then I feel like I am freezing to death. I only go out of the house to go to the doctor. I also sweat like crazy. I sweat and my skin is cold and clammy. I sweat so much that I lay on a big bath towel and have one over my upper body - to keep my sheets dry. I am at the point that I just want to die. My life is useless. I have not been to a neurologist. I don;t know how they could help me. Somebody out there has got to have this same problem. Please I am begging for any advice. (Please don't tell me it is male menopause or my thyroids. That has all been checked out.)Please try Reiki- find a certified Reiki person near you ASAP. Too bad you don't live in D.C. as I am starting to give free Reiki as part of my training.Also Oriental Medicine can help.Sincerely, wishing you health.Fruity.
    Eatafruit78 960 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.