Discussions By Condition: I cannot get a diagnosis.

Debilitating symptoms, no diagnosis. Please help.

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: Anonymous
  • April 1, 2007
  • 00:42 AM

I'm a 20 year old male and for years have been suffering from ongoing symptoms of an unknown cause. I lived with them for a while, thinking maybe I was just a woos or psycosomatic. The last few months it has been getting worse, and is right now completely debilitating, I'm too dizzy and lightheaded to even drive. If you can relate, or have heard of, or have any idea about anything, please help.

Constant Dizziness
Constant Light-headedness
Chronic fatigue
Lack of concentration
Frequent urination/bowell movements
Excessive sleep (10 hrs a night)
Mild-moderate headaches
Low blood pressure when standing from sitting or lying position
Worsening of symptoms with physical exertion

I've had many tests done like a Complete Blood Count, Urinalysis and a few others from an endocronologist. These have ruled out the most probable disorders such as, diabetes, anemia, thyroid disorder, hormone deficiency, and others. I'm currently taking Florinef which is meant to help raise blood pressure and circulation, but it isn't working.

If you know of that could help I would really appreciate.



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8 Replies:

  • Shane...every sx you listed is an ME symptom go to www.ahummingbirdsguide.com write down every one you have...take info to dr
    mommy cat 1654 Replies Flag this Response
  • mommy cat,According to that website, M.E. doesn't last for years.Shane,You might have more than one thing going on here. Check out POTS (you can start here: http://www.dinet.org/pots_an_overview.htm). Have you been checked for Lyme Disease? Also chronic fatigue syndrome?Meanwhile, some of your symptoms could be from being stressed out all the time due to having these debilitating symptoms, and not knowing what they are, or being able to treat them. It could be, for instance, that your frequent trips to the bathroom might be caused by anxiety rather than by what is causing the majority of your symptoms. In other words, you clearly are sick, but you are also stressed out over being sick, and that stress may be causing it all to be worse. Stress depletes your body's ability to utilize its immune system, and it is clear from your description, that your immune system is already overwhelmed with whatever is causing most of your symptoms. So please understand, I am NOT saying this problem is "in your head" but I am saying that learning some form of relaxation (meditation, for example) might be the best thing you could do to help your immune system get stronger and be better able to work on whatever it is that is causing you so much grief.Finally, 10 hours of sleep isn't really that much for many adolescents. 20 years old really is still in adolescence, and anybody under as much stress as you are under, is going to need more sleep. So take the sleep you need. That is one of the biggest places your immune system catches up.Best,Shula
    Anonymous 42789 Replies Flag this Response
  • Shula, perhaps you misunderstood. most people do not ever recover, it's dibilitating, neurological...are you sure your reading the same material as I am???
    mommy cat 1654 Replies Flag this Response
  • From what I read, Myalgic Encephalomyelitis sounds like a very serious debilitating illness, although I'm pretty sure that's not what I'm dealing with. POTS has been mentioned many times before, and it is a possibility, although by heartrate doesn't rise as substantially as most patients claim. I'm guessing that POTS, or something very similar, has the highest probability of whats making me sick.Also, I saw another Internist last week, and he checked my parathyroid hormone levels, which came up low and abnormal. I just got the test results back today and have yet to talk to anyone, including my doctor, about it, but I really hope that sheds some light on what's going on. He also ran another random glucose level (I've had a few before), which was in the low normal range. He ran it again because a few of the other times I had it tested, it was lower than the normal range. Again, I have yet to talk to my doc about either of these, but if anyone has any insight, I would appreciate it.Thanks,Shane
    Anonymous 42789 Replies Flag this Response
  • Here is what I read:"The onset of these symptoms may be acute but often symptoms will not peak until 24 – 48 hours or more afterward (this is particularly true with regard to physical, cognitive and orthostatic exertions). Symptoms will then persist for hours, weeks or many months."It is about a third of the way down on this page:http://www.ahummingbirdsguide.com/methemedicalfacts.htmAnd yes, I read the entire symptoms list (not the short version), as well as the medical facts page.Shula
    Anonymous 42789 Replies Flag this Response
  • If a disease is "dibilitating" how does it not last for years???? The symptoms may last days, weeks, months...not the disease progression. It is viral, neurological, damages your brain stem...How do those things not last for years???? I'm not here to get into a ******g contest with you, Shula. Perhaps you are misinterpreting the material
    mommy cat 1654 Replies Flag this Response
  • By the way, my symptoms have appeared, disappeared and reappeared over the course of the last 4 years. It's not as black and white as that
    mommy cat 1654 Replies Flag this Response
  • Hi Shane,They need to run a blood test that checks your calcium, potasium, sodium, and other regular trace elements in your blood. Bet you a nickel those three above show up low. If any one of those, let alone all of them, is low, you will experience most of the symptoms you mentioned in your first post. What do you mean when you say the parathyroid is both low and "abnormal" from the blood test? Do you have the exact results? Can you post them (and anything else that was tested in that test)?Best,Shula
    Anonymous 42789 Replies Flag this Response
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