My wife, 37 years old, struck with sudden debilitating symptoms 5 years ago. Normal CT & MRI. Normal bloodwork. Severe headaches in rear right near base of skull. Vision disturbances, hypersensitivity to foods, allergans, chemicals, etc. Sometimes light, sound, touch oversensitivity. Periods of unresponsiveness/ seizure-like events, near daily now, lasting from 30-120 minutes or sometimes more, after which speech is sometimes difficult/impossible or slurred/wrong words. Events begin with either headache, right hand drawing up, or eyes twitching/fluttering/rolling back in head. Exhaustion and severe weakness - sleep does not produce much increase in energy or ability. Wheelchair bound, poor balance. At times, complains of "not enough air in the room", difficulty getting breath. Uses CPAP at night, and sometimes during events. Week long EEG monitoring revealed no brain injury or epilepsy. Events are also not strokes or TIA's. EMG & long exercise reveal some neuropathy/myopathy. Been to several neurologists, internal medicine, infectious disease, rheumatologist, allergy specialists, and so on... all seem to be stumped by this case. Psych eval - no prior trauma or psych problem evident.
Any ideas? Thinking of going next to a diagnostic internist... Anyone know of a good one or a good facility? Had heard of Bowman Gray (now Wake Forest University Hospital)... but don't know anyone there. Definitely would want a diagnostic internist and NOT a resident....
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