I am a female-age 56. Sorry this is so lengthy, but I need answers. If anyone reading this knows a medical doctor who can help, please let them know to reply to me. I hope someone can figure out what is wrong with me.:o
These are my abnormal blood tests on the "flowsheet" the nurse sent me, and my doctor would not tell me what they meant: I feel like I am being given the run-around. And that I have no control over my own body!:confused:
1-ANA by EIA: 2.9
8-Blood: Alpha 2 globulin: .23
9-Urine: Albumin, alpha 1, alpha 2, beta and gamma protein.
When I asked the doctor what the abnormal LDH test meant, he told me that my abnormal LDH tests was "like a check engine light, and did not mean anything.":(
And a rheumatologist said he "did not think I had a rheumatlogical condition" based on these tests.
I feel like I am being experimented on, and no one wants to tell me why I am disabled. And I have "future tests" ordered for July, and the nurse won't tell me what they are. She said "is there any reason you want to know?" Don't I have a right to know?
In March, a hematologist told me to file for disability, but he did not give me a diagnosis of my disabilities!
These are my disabilities::(
1-I can not do squats, or get up from the floor. (My knees are sore and weak).
2-I can not climb onto a 12" step (the RTA bus step), or get in and out of the bathrub.
3-I can not stand or walk longer than about 20-30 minutes. (My leg muscles burn and get heavy and hard to move.)
4-I can not turn over in bed if I am lying on my back or stomache. (My upper back is paralyzed).
The pain and stiffness started in my legs and progressed up my spine into my neck. My doctors have sent me back and forth from one department to another. They will not tell me what blood tests they are doing, and they keep ordering x-rays, and won't tell me why I am crippled.
What can I do when the doctors keeps me in the dark?
1-How do I find out why I am disabled, and what is causing my constant sacroiliac pain?
2-How do I find out how many new x-rays are ordered of my hands and feet? And if I can have both hands taken on one x-ray to get less radiation exposure? (I have had over 50 x-rays since 2001, when my symptoms started, and still no disagnosis.) I called the doctor's office and the secretary said she did not know what was ordered. I called the x-ray department and the woman said only the x-ray technician knows and she said I could NOT talk to them.
3-How do I find out if puncturing my vein over and over in the same spot is dangerous? I have a visable vein only on my left arm, and it has been punctured about 45 times already. Will my vein collapse?
4-Can I ask for a particular test (LYME DISEASE) and can I refuse a CT scan of my chest? (That is like getting 200 x-rays all at once!) I feel am being experimented on! No one tells me why I am disabled!
The doctor did NOT aske me to lie down and watch how I can not turn over in bed!
The doctor did NOT watch me try to get uot of the tub or climb steps.
But the doctor DID witness that I could not stand on my toes or do squats and did nothing!
I have to find a job and have limited abilities and no diagnosis. What can I do? I have trouble geting on and off the bus.
How can I have some control over my health care? I want to know why I am disabled?