Discussions By Condition: I cannot get a diagnosis.

Could Numbness Be Related To Autoimmune Disease?

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: nanhamer
  • March 22, 2008
  • 02:15 AM

Hi. I have a rare autoimmune disease, called Susacs Syndrome for the past 8 years. It has effected mostly my eyesight and some hearing, and I do suffer from migraines. The medication I have been taking is prednisone, IVIG, and I recently had 2 infusions of rituxin.

Lately I've had consistent tingling/numbness in my pinkie and part of my hand, and I have had numbness on and off in my foot for the past eight years as well. All of the numbness is on my left side of my body, and when I get migraines they are usually at my left temple. In 1996 I fell and dislocated my left shoulder with a slight fracture as well. My Father passed away from diabetes complications, so I always get blood work done and I do not have diabetes. I just had an EMG last week and the neurologist seems to think that the numbness isn't related to Susacs since the numbness is in the peripherals of my body.

Any suggestions?

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1 Replies:

  • The numbness could be caused my pressure on, or pinched nerve. As u said u hurt ur shoulder maybe that has caused the problem. I tell u this as i had a neck injury in 1977 & 20yrs later i started having serious problems with it. Over the last 11 yrs i had twitching & tingling in my hands/fingers but the left one was always worse. April last year i completly lost the use of my left hand, really dead, couldnt even hold a fork with it. This lasted about 20wks, slowly i started to get feelings back, its about 90% better now, my wee finger & ring finger are the weakess, but i dont let it hold me back !So it is most likely from some kind of injury even if its not from ur shoulder maybe years back u had an accident/whiplash or fall ?As we get older these things can come back to haunt us.Hope this is of some help to u ! good luck ! :)
    Tootsie 628 Replies Flag this Response
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