Discussions By Condition: I cannot get a diagnosis.

Could It Be Ms

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: Anonymous
  • February 16, 2007
  • 10:49 PM

Hi
For A Year Now Ive Been Suffering With Different Symptoms The First One I Remember Was This Tight Sqeezing Feeling All The Way Aroung My Upper Abdomen Into My Back All Bloods Were Normal And This Went On Every Day For A Couple Of Months, The Next Symptoms I Had Was Very Sore Skin Around Lower Abdo And Back It Felt Like I Was On Fire But Again All Blood Tests Neg Next Started The Vertigo Especially At Night Time I Would Awake To The Room Spinning Around This Sometimes Lasted For Around 45 Mins Again Went Docs And Was Ytold Had Inner Ear Problem (probably) I Have Had This On And Off Now For About Six Months...and Now For The Last Month I Have Been Having Pins And Needles And Burning In Hands Feet Ang Legs I Also Have Started To Get Restless Leg Syndrome Ang Fatigue Around Afternoon Time...today I Noticed A Mild Pain In My Left Eye Its Not Too Bothersome But I Also Feel As If Something Is In There Although There Isnt ...sorry Forgot To Mention My Weak Right Arm Sometimes I Lose All Strentgh In It And I Cannot Grip Things Properly My Speach Is Also Starting To Get Muddled I Keep Saying My Sentences The Wrong Way Round No Matter How Hard I Try It Just Doesnt Come Out Right...my Bowel Is Not Working Right At Mo Either Doc Suspects Ibs ..im Very Frustated Especially As All My Bloods Have Always Come Back Normal..i Have Read Some Info On Ms And Was Just Wondering...any Advice Please.....thankyou

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8 Replies:

  • Hello, You sound very much like how I started out. . The docs thought I had MS, but dx'd me with fibro and treated me for 5 yrs. I kept getting worse and more symptoms. Come to find out, I have had undx'd Lyme disease for 15 yrs. Check out this site www.lymenet.org. Post there and see what they will tell you. Feel better soon.
    Anonymous 42789 Replies
    • February 17, 2007
    • 10:40 AM
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  • Hi~I work for the National MS Society and many of your symptoms do sound like MS. Unfortunately, the diagnosis process is quite long and involves an MRI. I would urge you to consult with your doctor or ask for a referral to a neurologist. You can visit www.nationalmssociety.org for more information. You can also call 1-800-FIGHT-MS, option 1, and talk to someone 24 hours a day.Good luck!
    Anonymous 42789 Replies
    • February 17, 2007
    • 03:07 PM
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  • Hi Been Having Similat For 7 Mths Now Just Been Refered To Neuro..you Should Go Back To Ur Doctors And Ask For Referral ..good Luck
    Anonymous 42789 Replies
    • February 17, 2007
    • 08:06 PM
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  • You should have endocrinology workup to check parathyroid hormones
    Anonymous 42789 Replies
    • February 17, 2007
    • 08:11 PM
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  • You should have endocrinology workup to check parathyroid hormonesthankyou but ive already had all that done and was neg...thanx anyway
    Anonymous 42789 Replies
    • February 17, 2007
    • 08:16 PM
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  • You need to have your doctor check you for vitamin B12 deficiency. A serum B12 level is not good enough. You need a methylmalonic acid (MMA) and homocysteine test. B12 deficiency and MS have the same signs and symptoms. B12 deficiency is treatable if caught early. Do not start taking B12 until you get the above tests drawn---because you will screw up the results and then you will never know if B12 was the problem causing your symptoms. I have written the book, "Could It Be B12? An Epidemic of Misdiagnoses," Quill Driver Books, 2005. It is co-authored with a physician and has 12 reviews on Amazon.com (3 from physicians). Doctors miss this diagnosis for a variety of reasons. One is that they have been taught that a person with B12 deficiency has to be anemic or macrocytic--- which is not true for 1/3 of the patients. The other is if the serum B12 level falls in the low normal range they consider that fine-- which could indicate true deficiency. That is why you must have a MMA test done---it is a more sensitive test at the tissue and cellular level for B12 deficiency. I actually have one form of this disorder called autoimmune pernicious anemia and diagnosed myself at age 21, when doctors failed. B12 deficiency also causes paresthesias and many of the symptoms you described in your history.
    Anonymous 42789 Replies
    • February 17, 2007
    • 11:25 PM
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  • Could be Lyme or its co infections...The docs don't normally test for Lyme, so you'd have to request it, But not all the tests are accurate.Part of the dx is on symptoms too, from what you have written, It does sounf like Lyme. Its said now, undx'd Lyme is the cause of MS and much more. Check out this site for more info and help www.lymenet.org . Hope you find out and can feel better soon.
    Anonymous 42789 Replies
    • February 18, 2007
    • 00:03 PM
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  • Everything you describe could match a bacterial infection such as Lyme, Bartonella, Babesia and more. Tests are very poor and rarely show anything wrong because these bacteria rarely hang out in the blood stream. All tests for my daughter were negative and even the doctors at a world famous children's hospital couldn't find out what was wrong with her. After 3 years and lots of research I was able to diagnose her. She is now on her way to recovery. Read more at lymenet.org or canlyme.com. They both have a Q&A forum.
    Anonymous 42789 Replies
    • February 18, 2007
    • 03:32 PM
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