Discussions By Condition: I cannot get a diagnosis.

Could I have fibromyalgia?

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • February 8, 2010
  • 06:48 PM

Sorry this is a long message, but I really need advice because my doctor is stumped and can't help me, and I'm pretty much on my own.
I have many different symptoms that are starting to interfere with my life. Since I don't have health insurance, I am unable to see any specialists for my conditions, so I basically have to diagnose myself. Pre-existing conditions - mild asthma, migraines about once a week (for the past 7 years), neck and back pain (from an accident 2 years ago), muscle soreness and pinched nerves, daily tension headaches, insomnia, reynaud's syndrome (since childhood), and I am also hypoglycemic. I am thin, but within the normal BMI. What's actually troubling me though is this severe joint pain for the past 2 years that has gotten worse since it's been cold and raining. It's in my hands, wrists, shoulders, hips, and knees, and it's really painful. And all my joints crack and pop easily. My dad has these same symptoms, so I think it runs in the family. I was blood-tested for rheumatoid diseases but my results all came back negative today - I am generally healthy. I mentioned fibromyalgia because at times I have pain all over my body, as if I'm bruised all over, and even the slightest touch hurts. But my doctor says I'm too young for fibromyalgia. I am 21, female. Could I actually have it though? I heard it can cause poor circulation and insomnia, and can stem from stress or even exposure to mold - there is mold in my bedroom and bathroom caused by leaking water.
If anyone can offer any advice, I greatly appreciate you taking the time to read this long message.

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  • Your doctor is wrong that you are 'too young' for fibromyalgia. The highest incidence of fibromyalgia is in women ages 20-40, and there are even some teenagers who have it.There are specific tests to determine if you meet the criteria for fibromyalgia, such as seeing if you have at least 11 of the 18 'tender points' associated with this disease, and seeing if you have at least a few of the other symptoms associated with it (like insomnia, headaches, irritable bowel syndrome, fatigue, etc.)Unfortunately no one knows the cause of fibromyalgia, but the mold that you mentioned that is suspected of worsening the symptoms is 'toxic mold' not the mold found in bathrooms. Toxic mold is black, has to be removed by a professional (you can't clean it up yourself with household chemicals), and causes many severe symptoms, even brain damage. I would advise you to go online and do an internet search for 'fibromyalgia associations' or 'fibromyalgia advocacy' and see if any of the groups that come up have what are called 'good doctor' lists. They are lists compiled by fibromyalgia patients that list fibromyalgia specialists that they have had good experiences with.You need to see a doctor who understands the disease, since your primary care doctor clearly does not since he said you were 'too young' at the age of 21.Good luck and keep us posted,E
    ErinBBC 17 Replies
    • February 11, 2010
    • 01:08 AM
    • 0
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