Discussions By Condition: I cannot get a diagnosis.

Convulsions and headaches

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: marshmallow
  • March 5, 2013
  • 00:30 AM

Hello everyone, I found this site while trying to find an answer for my symptoms. So any help would be very appreciated! I am a 15 year old boy who runs cross country, indoor track, and outdoor track (basically running year round). school has not been very stressful for me, and I have great relationships with my peers and family, as well as an amazing relationship with my girlfriend. however, I have been having some very strange symptoms lately. A couple days ago, I started coughing, which led to hyperventilation and almost went unconscious. This was around 5;30 or 6:00 PM. The next day, around 8:00 Pm, I was laying in bed and watching TV when I started hyperventilating again and my legs and arms started flailing uncontrollably. This was the event which scared me enough to look up what could be wrong with me. On January 10th, I was sent to Urgent Care because, again, I started hyperventilating and I had a lot of chest pain and my chest and hips were violently shaking while my legs we also shaking uncontrollably. urgent Care sent me to my local ER, where they were unable to find anything wrong with me. The EMT in the ambulance says he thinks it could have been a misfired brain impulse. These convulsions only happened one time before this and it was 2 and a half years ago. I woke up in the middle of the night because my whole body was shaking. Some other symptoms that I feel with these are strange. I feel a weird tingling or energy in my sides, kind of like I am getting tickled. I feel this for a while and then this energy will release, which makes my breathing very difficult, which sometimes causes the convulsions. my heart rate also sometimes randomly races, sometimes doubling. Whenever I stand up, my heart rate goes right around the 155- 120 mark, so I don't know if this could be POTS. After my most reason episode, I have been having a lot of headaches in the front and top of my head, and weird mood changes. Also, I don;t know if this is relevant or not, but I have these weird allergic reactions which make my skin bubble up. This can be contact with literally anything, if my skin touches it for too long or if it touches it too hard. My doctor prescribed an anthistamine which does not work. Any help would be very very appreciated and if you need any more questions, like childhood medical questions, please ask!

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  • Those are some scary symptoms; I have some suggestions of things to check out, but I kind of need to ask a bunch more questions too. Hyperthyroidism can cause tachycardia, hyperventilation, mood changes/swings, anxiety, and chorea (the flailing of your arms, possibly). It might also cause convulsions. Have you had your TSH, T3 and T4 checked? If not, it's a good idea to ask for a thyroid panel to be done. The condition is easily treatable in most cases.Pheochromocytoma is a type of benign tumor that can cause some of the symptoms that you have - they grow on top of the adrenal glands on top of your kidneys, which might explain the weird feeling you get in your sides prior to these episodes. I have no idea about your skin condition either; it could be just a coincidental thing or it might be part of your condition. I'd def. recommend seeing a dermatologist for a proper diagnosis, because skin problems like that can be specific markers for disease.In-between attacks, do you have any other symptoms besides mood changes and headaches? Can you remember what tests you've had run before by your doctor, urgent care guys, or at the hospital? How long do attacks last generally? What are you usually doing/done leading up to the attack?
    Aaron-o 27 Replies Flag this Response
  • Tell your parents to take you to a neurologist and demand a stand up mri of the brain and an inpatient sleep study / eeg ..these are the brain test most of your symptoms sound like CHIARI MALFORMATION OF THE BRAIN ..if the doctors don't know about it you will have a hard time getting help but don't give up the fight and yes there can be a lot of different things going on but start with your brain first .always get 2 -5 different doctors if you don't get an answer .. you have a right to a great health now skin is even harder but see an allergist specialist ,till then try goat soap and aveeno hypo excema cream all natural no chemicals including laudry detergent and hair products . good luck
    gsamantha 8 Replies Flag this Response
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