Discussions By Condition: I cannot get a diagnosis.

Constant Pain, exhaustion, and now can't stay awake

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Sullengirl
  • October 25, 2010
  • 11:24 PM

I have been dealing with a burning pain in my left shoulder over the past 8 years that radiates down my arm. After many MRIs, ultrasounds, and a stellate ganglion nerve block, my doctors told me I had RSD, or Reflex Sympathetic Dystrophy.
A few months later, I started having intense pain in my left leg, hip, and lower back. MRIs came back normal. I have had trouble sitting, walking, doing everyday activities. The pain increases in the evenings. None of my doctors have addressed the pain since.
I went for a second opinion, and they told me they didn't believe I had RSD.

Now, I'm not only in pain, but I can not get through a day with out taking a nap, and if I do more than sit in a chair, I am out of breath and physically exhausted.

I'm a 27 year old female. I can't stay awake, and have trouble breathing. I thought the pain was bad enough.
I have muscle spasms in my left leg, arm, in my back and neck. Tension headaches. I have a normal BMI for my height.
Any answer would be better than nothing at all.

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  • Stellate Ganglion blocks do more than treat RSD, they are also one of the few somewhat acceptable diagnostic tools pain specialists use. Did doctor's measure the temperature of your affected limb before and after the Block? Why was only one done? I had twelve of them 15 years ago to treat my right hand and it helped so much that I was in a partial remission for ten years. It re-occured in my elbow but I went into denial and simply felt it was tendonitis and had my regular physician do injections to reduce swelling etc. Eventually it became clear to both of us that the RSD was back full force. It was too late for Nerve Blocks (which are usually only helpful during the first three months). It began to spread and I am now officially disabled and very depressed, but I refuse to give up hope. You shouldn't either. Find Docs who are FAMILIAR with RSD, and don't be afraid to ask them if they have ever treated it. I have seen insurance docs who admit they have never even HEARD of it. I recommend the one thing that keeps me sane. Well actually two things! Pet lots of animals!! :o) and become an expert on RSD. Most doctor's are too busy to keep up with every disease and new discoveries. My doc, bless him, counts on my research and my summaries of recent articles etc. I think I would be lost without his understanding and willingness to help and LISTEN. He isn't the only person like this, you need to find one. Don't stop looking and hoping. mI have been dealing with a burning pain in my left shoulder over the past 8 years that radiates down my arm. After many MRIs, ultrasounds, and a stellate ganglion nerve block, my doctors told me I had RSD, or Reflex Sympathetic Dystrophy.A few months later, I started having intense pain in my left leg, hip, and lower back. MRIs came back normal. I have had trouble sitting, walking, doing everyday activities. The pain increases in the evenings. None of my doctors have addressed the pain since.I went for a second opinion, and they told me they didn't believe I had RSD.Now, I'm not only in pain, but I can not get through a day with out taking a nap, and if I do more than sit in a chair, I am out of breath and physically exhausted.I'm a 27 year old female. I can't stay awake, and have trouble breathing. I thought the pain was bad enough.I have muscle spasms in my left leg, arm, in my back and neck. Tension headaches. I have a normal BMI for my height.Any answer would be better than nothing at all.
    Anonymous 42789 Replies
    • November 14, 2010
    • 00:27 AM
    • 0
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