Discussions By Condition: I cannot get a diagnosis.

Constant nausea and stomach upset :(

Posted In: I cannot get a diagnosis. 18 Replies
  • Posted By: skylightglare
  • September 24, 2009
  • 06:06 PM

Hello guys, I'm new to this forum, and I have been checking back to this forum for about 1 1/2 before signing up.

Anyway, to my question/issue. Since February 23, 2009 I've been suffering from constant nausea 24/7. It does not go away not even for a minute. This whole thing started when I woke up one winter morning so early like 5am with overwhelming severe nausea, dry heaving, super high fever, and extreme muscle pain and unable to move, because a) I was too ***n dizzy, and b) my body was super weak. Basically its everything like the flu, and I thought it was. So from there, my mom had to help me dress up, call a cab, and hit a walk-in clinic, and literally make the cab driver rush there. The doctor there did every common examination; stool samples, urine samples, blood tests, and a thorough physical exam. The doctor assumed it was a kidney infection and prescribed Sulfatrim DS 160mg tabs. Fever subsided in 2 days, but the nausea increased. I called the clinic for my results, and they tell me they don't know what I'm talking about. Later, I found out that they lost all my samples. So I never found out what was wrong with me in the first place.

Since that day, I've ended up at the E.R. for several times for tremors, dehydration, rapid heart beat, crazy anxiety attacks, and for vomiting blood. So far I got an endoscopy done with two tissue samples. They tested for celiac, which came out negative. They checked for ulcers, negative. I had multiple ultrasounds, all appears fine. I had some x-rays done, everything looks fine as well. I had a 3 day stool culture test, everything is negative. The only thing right now missing is a colonoscopy or cat scan. Although I don't like the idea of a cat scan 'cause of the extreme radiation.

I really don't know what else to do, where else to go. I've been to the E.R. so many times, and every doctor there says there is nothing wrong me, and that I have to live with it. I have even visited a psychiatrist, got prescribed novo-mirtazapine od, 15mg. A few sessions withe psychiatrist helped, but he too believe that it is not my head, and that I do have a physical problem.

I can barely eat anything and by nature I'm a thin person, and have a quick metabolism. My average weight was 110lbs (24 year old female), but I lost so much weight, and currently stand on 85lbs. I'm losing weight fast, and nothing is working, and no one is really helping me. Like I said before, I don't know what to do anymore. I even thought of suicide many times. I really want to get back on my feet before I actually do harm myself. Any suggestions?

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  • Hello guys, I'm new to this forum, and I have been checking back to this forum for about 1 1/2 before signing up.Anyway, to my question/issue. Since February 23, 2009 I've been suffering from constant nausea 24/7. It does not go away not even for a minute. This whole thing started when I woke up one winter morning so early like 5am with overwhelming severe nausea, dry heaving, super high fever, and extreme muscle pain and unable to move, because a) I was too ***n dizzy, and b) my body was super weak. Basically its everything like the flu, and I thought it was. So from there, my mom had to help me dress up, call a cab, and hit a walk-in clinic, and literally make the cab driver rush there. The doctor there did every common examination; stool samples, urine samples, blood tests, and a thorough physical exam. The doctor assumed it was a kidney infection and prescribed Sulfatrim DS 160mg tabs. Fever subsided in 2 days, but the nausea increased. I called the clinic for my results, and they tell me they don't know what I'm talking about. Later, I found out that they lost all my samples. So I never found out what was wrong with me in the first place.Since that day, I've ended up at the E.R. for several times for tremors, dehydration, rapid heart beat, crazy anxiety attacks, and for vomiting blood. So far I got an endoscopy done with two tissue samples. They tested for celiac, which came out negative. They checked for ulcers, negative. I had multiple ultrasounds, all appears fine. I had some x-rays done, everything looks fine as well. I had a 3 day stool culture test, everything is negative. The only thing right now missing is a colonoscopy or cat scan. Although I don't like the idea of a cat scan 'cause of the extreme radiation.I really don't know what else to do, where else to go. I've been to the E.R. so many times, and every doctor there says there is nothing wrong me, and that I have to live with it. I have even visited a psychiatrist, got prescribed novo-mirtazapine od, 15mg. A few sessions withe psychiatrist helped, but he too believe that it is not my head, and that I do have a physical problem. I can barely eat anything and by nature I'm a thin person, and have a quick metabolism. My average weight was 110lbs (24 year old female), but I lost so much weight, and currently stand on 85lbs. I'm losing weight fast, and nothing is working, and no one is really helping me. Like I said before, I don't know what to do anymore. I even thought of suicide many times. I really want to get back on my feet before I actually do harm myself. Any suggestions?Hi,Sorry I don't have an answer, but I do know what it it is like to live with constant nausea as this has been the case with me for 3 months plus. I hardly eat and have lost so much weight it isn't funny. I suspect cancer of some type but the doctors still have not found out. I drink ensure plus and this helps, at least it means I shouldn't stave to death. If you read my post you will see how I have been looking for answers, I am in the UK and hope to see a new GI doctor soon, good luck and let us know,Ian
    Anonymous 42789 Replies
    • September 25, 2009
    • 01:03 PM
    • 0
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  • Hi,Sorry I don't have an answer, but I do know what it it is like to live with constant nausea as this has been the case with me for 3 months plus. I hardly eat and have lost so much weight it isn't funny. I suspect cancer of some type but the doctors still have not found out. I drink ensure plus and this helps, at least it means I shouldn't stave to death. If you read my post you will see how I have been looking for answers, I am in the UK and hope to see a new GI doctor soon, good luck and let us know,IanI know there are many people that suffer from this. I'm doing all that is possible to find a gastro doctor to help me, and that wants to help me. I already got too many doctors that asked for a urine test to see if I'm pregnant, even though I explained there is no way because I'm a virgin. I really hope that for you, they find what is going on. I will certainly be here the minute I get news to update you.
    skylightglare 3 Replies
    • September 25, 2009
    • 02:06 PM
    • 0
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  • I'm sorry to say I don't really have an answers for you, because I too have been suffering from recurrent nausea (since June 2009 for me). Interestingly enough, mine also began with a "flu like illness". The other "flu" symptoms went away but I am left with intractable nausea. I have seen two GI specialists and had a battery of tests. I am going to be tested for gastroparesis soon (slow stomach emptying) via a gastric emptying study (radiation). I've been told that viral illnesses can result in a "post viral" syndrome, which typically resolves in 6 months-year, in which the stomach is "shocked" and no longer functions properly. Let's say a collective prayer for our recovery from this misery. I want my life back.
    Anonymous 42789 Replies
    • September 29, 2009
    • 11:17 PM
    • 0
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  • It's been a few months that I posted this, and here's an update.October, November, and early December to before Christmas week of last year (2009) I found some relief with a little help from Novo-Dimenate, the cheaper version of Gravol. In fact, I was taking little of it progressively until I realized I was barely taking it. Well, on December 27th, I entered the E.R. with severe nausea which soon turned to vomiting. By January, the nausea as escalated to vomiting a few times, and from the desperation and frustration I ended up going to the E.R. in 3 different hospitals. One hospital finding some interest, and keeping me for 3 days to do some tests. So far I got my cat scan to my abdomen and head just to see if it's not a tumor, and a special blood test of my hormones to see if something wasn't off. Everything that was done so far came out negative, so I'm back to zero, this time with worse nausea and vomiting. Even after being admitted to the hospital, and leaving, I entered the E.R. almost every other day. I still haven't gotten any diagnosis, and therefore no help. I don't know what else to do, where else to go. I'm tired of this, and seriously thinking about offing myself. I'm at my wits end.
    skylightglare 3 Replies
    • January 31, 2010
    • 09:10 PM
    • 0
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  • One hospital finding some interest, and keeping me for 3 days to do some tests. So far I got my cat scan to my abdomen and head just to see if it's not a tumor, and a special blood test of my hormones to see if something wasn't off. Everything that was done so far came out negative, so I'm back to zero, this time with worse nausea and vomiting. Even after being admitted to the hospital, and leaving, I entered the E.R. almost every other day. I still haven't gotten any diagnosis, and therefore no help. I don't know what else to do, where else to go. I'm tired of this, and seriously thinking about offing myself. I'm at my wits end. Hi there,I'm sorry to hear what you've been going through. I went through a period of time where I was nauseated 24/7 for 9 months and I know how miserable it is. In all of your interaction with doctors has anyone mentioned gastroparesis to you as the possible problem? It is diagnosed with a gastric emptying study where you eat food that has material mixed in it to show up on film and then you lay down and a picture is snapped of your stomach for a specific amount of time. When I had mine done years ago I had to lay there for an hour but I think now it is something more like 30min. They track the passage of food out of your stomach. With gastroparesis the stomach doesn't empty or if it does, it is extremely slow which accounts for the nausea. When I laid there for an hour only 7% of the food had moved out of my stomach when normal value would have been about 70%. Basically anything I ate just sat there and spoiled. The medicine they put me on has been discontinued unfortunately because it truly gave me my life back but the standard medication for it now is Reglan and some doctors even prescribe erythromycin. No clue why an antibiotic would work but it must! Anyway, I hope this will help you and/or any of the others who have posted find out what could be wrong. Take care and don't give up!
    Anonymous 42789 Replies
    • February 1, 2010
    • 02:24 AM
    • 0
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  • You all should ask your DR's for Promathazine ( Phengran) 25mgs. WONDERFUL for nausea and isnt expensive. There are also other drugs like compazine and thorazine(spelling) Dont suffer call your DR and make them give you something. Phenegran comes in a liquid and suppository form so if you cant keep anything down you can take it that way. Good luck to you all.
    Anonymous 42789 Replies
    • February 1, 2010
    • 00:43 PM
    • 0
    Flag this Response
  • You all should ask your DR's for Promathazine ( Phengran) 25mgs. WONDERFUL for nausea and isnt expensive. There are also other drugs like compazine and thorazine(spelling) Dont suffer call your DR and make them give you something. Phenegran comes in a liquid and suppository form so if you cant keep anything down you can take it that way. Good luck to you all. While I certainly agree that Phenergan is a great medication for nausea, it only treats the symptom and not the cause. When I went through the 9 months of 24/7 nausea I "lived" off of 50mg Phenergan pills just so I could work. While it calmed it down, it didn't take it away because it did nothing to alleviate the cause. Even today I keep a supply of 50mg Phenergan suppositories on hand at all time due to another condition so it is wonderful to have in an emergency, however, people that are having nausea for months need to have their doctors searching for WHY and not just putting a bandaid on it. Compazine is good too but VERY strong! That stuff knocked me out! Another one is Zofran. I've never had it but have heard lots of good things about it.
    Anonymous 42789 Replies
    • February 2, 2010
    • 03:37 AM
    • 0
    Flag this Response
  • Hello guys, I'm new to this forum, and I have been checking back to this forum for about 1 1/2 before signing up. Anyway, to my question/issue. Since February 23, 2009 I've been suffering from constant nausea 24/7. It does not go away not even for a minute. This whole thing started when I woke up one winter morning so early like 5am with overwhelming severe nausea, dry heaving, super high fever, and extreme muscle pain and unable to move, because a) I was too ***n dizzy, and b) my body was super weak. Basically its everything like the flu, and I thought it was. So from there, my mom had to help me dress up, call a cab, and hit a walk-in clinic, and literally make the cab driver rush there. The doctor there did every common examination; stool samples, urine samples, blood tests, and a thorough physical exam. The doctor assumed it was a kidney infection and prescribed Sulfatrim DS 160mg tabs. Fever subsided in 2 days, but the nausea increased. I called the clinic for my results, and they tell me they don't know what I'm talking about. Later, I found out that they lost all my samples. So I never found out what was wrong with me in the first place. Since that day, I've ended up at the E.R. for several times for tremors, dehydration, rapid heart beat, crazy anxiety attacks, and for vomiting blood. So far I got an endoscopy done with two tissue samples. They tested for celiac, which came out negative. They checked for ulcers, negative. I had multiple ultrasounds, all appears fine. I had some x-rays done, everything looks fine as well. I had a 3 day stool culture test, everything is negative. The only thing right now missing is a colonoscopy or cat scan. Although I don't like the idea of a cat scan 'cause of the extreme radiation. I really don't know what else to do, where else to go. I've been to the E.R. so many times, and every doctor there says there is nothing wrong me, and that I have to live with it. I have even visited a psychiatrist, got prescribed novo-mirtazapine od, 15mg. A few sessions withe psychiatrist helped, but he too believe that it is not my head, and that I do have a physical problem. I can barely eat anything and by nature I'm a thin person, and have a quick metabolism. My average weight was 110lbs (24 year old female), but I lost so much weight, and currently stand on 85lbs. I'm losing weight fast, and nothing is working, and no one is really helping me. Like I said before, I don't know what to do anymore. I even thought of suicide many times. I really want to get back on my feet before I actually do harm myself. Any suggestions? I've been dealing the same thing only it started differently I just spent the whole day in ER yesterday...and my adivce for you...I suggest you get an ultra-sound (no radiation..it uses sound waves) and have them check out your gull bladder, pancreaus, and liver, and do some liver blood tests, and if nothing on that, ask your doctors about what is called a "Hida scan" It's directed to the gull bladder, they basically inject a die in your arm and watch it go thru your gull bladder to see if your gull bladder is even functioning. the nuse I had in ER yesterday had symtoms like yours and had negative blood work and ultra sounds (they usually only do the hida scan if the ultra sound was negative) and thru the hida scan they found out her gull bladder wasn't even functoining at all. so I siggest you try that.Hope you get some answers soon!!!
    Missa995 38 Replies
    • February 2, 2010
    • 07:04 PM
    • 0
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  • I am also 24, and have lived with this constant nausea for about 7-8 years now. it is an everyday thing that i have been living with, from the moment you wake up until the moment you fall asleep. i have been to every doctor and done every test at the start of all this, and they gave me the same answer i think they give every female with stomach pain, "you must be pregnant" well guess what i'm not havent been and am still sick. I went from almost 160lbs to about 105lbs right now, its still dropping and nothing is helping, i try to force myself to eat when i know my body needs it, but in all reality my body feels as if it is shutting down. to be 5' 8" 105lbs is a bit small in my eyes. I'm sorry that you are also living with this, this isnt something i would wish upon anyone. EVER! but there has to be an answer out there. so back to the doctors i go. But my question to you guys with these stomach issues, is anyone else's sense of smell very intense? i can feel fine for a min, then if i smell food or anything its all over. or smell anything for that matter.. i'm curious if it's just me with this sensitice nose.
    Anonymous 42789 Replies Flag this Response
  • Hi,I am a 40year old female that has had episodic severe nausea and constant vomiting and severe abdominal pain since I was 15 years old. I had every kind of GI workup and test known to man with no diagnosis and finally all the doctors thought there was nothing wrong with me. Several even suggested I was addicted to the pain killers they were having to give me for the pain. ha. Then a few weeks ago, another episode began suddenly--the first in 3 and 1/2 years...went to 3 different e.r.'s and dr's with no answers. just treated me with iv fluids and meds and sent me back home. I returned to my family dr just the other day and told him how frustrated I was and how badly I wanted and needed answers. His nurse got on line and did some research and they finally hit the nail on the head...I have cyclic vomiting syndrome. The only difference I see in me and you is that you say yours is constant. While mine is constant during an attack, it is not constant as in every single day of my life...it comes in cycles, as the name implies. But I resolved to share this with anyone and everyone who have similar symptoms with no diagnosis to try to keep other people from suffering as long and as painfully as I have suffered over the last 25 years. Hope this helps...I will pray for you.
    finallydiagnosed 4 Replies Flag this Response
  • I am also 24, and have lived with this constant nausea for about 7-8 years now. it is an everyday thing that i have been living with, from the moment you wake up until the moment you fall asleep. i have been to every doctor and done every test at the start of all this, and they gave me the same answer i think they give every female with stomach pain, "you must be pregnant" well guess what i'm not havent been and am still sick. I went from almost 160lbs to about 105lbs right now, its still dropping and nothing is helping, i try to force myself to eat when i know my body needs it, but in all reality my body feels as if it is shutting down. to be 5' 8" 105lbs is a bit small in my eyes. I'm sorry that you are also living with this, this isnt something i would wish upon anyone. EVER! but there has to be an answer out there. so back to the doctors i go. But my question to you guys with these stomach issues, is anyone else's sense of smell very intense? i can feel fine for a min, then if i smell food or anything its all over. or smell anything for that matter.. i'm curious if it's just me with this sensitice nose.I would really hate to think about going through nausea for years. The only thing that has helped with the nausea is Traditional Chinese Medicine. It hasn't made the nausea go away in its entirety, but it has given me some relief, and I have even went through a week without nausea, which was the best time of my life that I can remember since I was 22 (now I'm 25). I'm really hoping that you can find relief in some way. I really don't wish this on anybody. I do strongly suggest Traditional Chinese Medicine. I know it's expensive but it's worth the money. I can say through my personal experience I am able to eat some things again unlike before through TCM. It's acupuncture and herbs that are helping me in the meantime until I find a real diagnosis and a treatment for the root of the problem.
    skylightglare 3 Replies
    • September 1, 2010
    • 00:04 AM
    • 0
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  • I do not suffer from the nausea but i noticed this thread and had to respond. I have something called Dysautonomia, which is dysfunction of the autonomic nervous system. It can throw everything in your body out of whack. When i first had symptoms come on, i would break out in a cold sweat, shaking, extremely nauseated, and racing heartbeat. The attacks would come on for no reason, out of nowhere. The first attack i ever had landed me in the ER with a pulse rate of over 200 bpm, and i was so nauseated i don't know how i didn't throw up constantly, other than i've always had a very strong stomach and will keep myself from throwing up if i can. What happens with dysautonomia is you produce too much adrenaline and your fight or flight response is thrown off. I am treated by taking Clonopin, 1 mg twice a day. When my nausea was bad, i took the orally disinegrating tablets that dissolved under my tounge, and my symptoms went away almost immediately. I am very lucky to live close to one of the one centers that specializes in Dysautonomia in the Country, in Birmingham, AL. I was misdiagnosed for 10 years with anxiety and panic attacks before finding this place and being properly diagnosed. Check out this website and read up on it. Also, make sure that you don't have hyperthyroidism, because if your thyroid becomes overactive you can have the same symptoms (nausea, vomiting, rapid heart rate, sweating, etc...) and they have medication that easily fixes that problem. These are treatable conditions that don't have anything to do with the stomach themselves, nausea is only a symptom of them, but will continue as long as you are left untreated. http://heartdisease.about.com/cs/womensissues/a/dysautonomia.htm
    Anonymous 42789 Replies
    • September 1, 2010
    • 05:40 AM
    • 0
    Flag this Response
  • . This whole thing started when I woke up one winter morning so early like 5am with overwhelming severe nausea, dry heaving, super high fever, and extreme muscle pain and unable to move, because a) I was too ***n dizzy, and b) my body was super weak. Basically its everything like the flu, and I thought it was. =unregistered] I'm sorry to say I don't really have an answers for you, because I too have been suffering from recurrent nausea (since June 2009 for me). Interestingly enough, mine also began with a "flu like illness". The other "flu" symptoms went away but I am left with intractable nausea. I know neither of you have got classical symptoms of Chronic fatigue immunity dysfunction syndrome... but some with CFIDS (also known as CFS) have a hard time with vomiting or nausea (it actually has been the cause of death in a few CFS causes) .... and this is often triggered off after what seems to be a "virus". http://wwcoco.com/cfids/bernesx.html Im telling you this as just recently a new virus has been found in most of those who have CFS, its being found in 86.5 to 95% of CFS cases.http://www.nih.gov/researchmatters/august2010/08302010chronicfatigue.htm . This virus is is also being found at the rate of 2-7% of the normal population and no one knows yet other then it being linked to CFS and prostate cancer, no one knows yet what other symptoms it can cause but its also being found in higher amounts in other illnesses. Anyway.. i thought i'd mention it as some with CFS get that symptom (studies show that 20% get vomiting with it).. and who knows what this virus does and if you two could be carrying this virus esp with your virus history which lead to this symptom. (the new virus i mentioned stays in the body, drug treatment trials are only just being started up). I saw another mention postviral syndrome in this thread.. post viral syndrome is sometimes a term used by doctors instead of CFS. So i suggest for you both to keep eye out on news of this new virus family .. XMRV and MLVs (mouse leukemia viruses) and possibly think of being tested for it.
    taniaaust1 2267 Replies
    • September 1, 2010
    • 10:52 AM
    • 0
    Flag this Response
  • Hello guys, I'm new to this forum, and I have been checking back to this forum for about 1 1/2 before signing up.Anyway, to my question/issue. Since February 23, 2009 I've been suffering from constant nausea 24/7. It does not go away not even for a minute. This whole thing started when I woke up one winter morning so early like 5am with overwhelming severe nausea, dry heaving, super high fever, and extreme muscle pain and unable to move, because a) I was too ***n dizzy, and b) my body was super weak. Basically its everything like the flu, and I thought it was. So from there, my mom had to help me dress up, call a cab, and hit a walk-in clinic, and literally make the cab driver rush there. The doctor there did every common examination; stool samples, urine samples, blood tests, and a thorough physical exam. The doctor assumed it was a kidney infection and prescribed Sulfatrim DS 160mg tabs. Fever subsided in 2 days, but the nausea increased. I called the clinic for my results, and they tell me they don't know what I'm talking about. Later, I found out that they lost all my samples. So I never found out what was wrong with me in the first place.Since that day, I've ended up at the E.R. for several times for tremors, dehydration, rapid heart beat, crazy anxiety attacks, and for vomiting blood. So far I got an endoscopy done with two tissue samples. They tested for celiac, which came out negative. They checked for ulcers, negative. I had multiple ultrasounds, all appears fine. I had some x-rays done, everything looks fine as well. I had a 3 day stool culture test, everything is negative. The only thing right now missing is a colonoscopy or cat scan. Although I don't like the idea of a cat scan 'cause of the extreme radiation.I really don't know what else to do, where else to go. I've been to the E.R. so many times, and every doctor there says there is nothing wrong me, and that I have to live with it. I have even visited a psychiatrist, got prescribed novo-mirtazapine od, 15mg. A few sessions withe psychiatrist helped, but he too believe that it is not my head, and that I do have a physical problem. I can barely eat anything and by nature I'm a thin person, and have a quick metabolism. My average weight was 110lbs (24 year old female), but I lost so much weight, and currently stand on 85lbs. I'm losing weight fast, and nothing is working, and no one is really helping me. Like I said before, I don't know what to do anymore. I even thought of suicide many times. I really want to get back on my feet before I actually do harm myself. Any suggestions?To tell you the truth I am going through the same thing as you. :/. No body believes me and I have been suffering for nearly 5 YEARS. Like you, I have resorted to suicide but I told my self what am I thinking, and i grew out of that phase, but I know how you feel.I have been put on Prevacid for the first year but the doctor took me off that. I got and upper endoscopy but nothing showed up. I truly am suffering, and it has torn apart my social life. If I can't be cured, I hope someone like you does, being no one should live like this.
    Anonymous 42789 Replies
    • February 14, 2011
    • 10:02 PM
    • 0
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  • I am a 19 year old boy who has been suffering from 24/7 nausea with the occasional vomiting for about 3 months now, the only thing i've ever been diagnosed with is a common h pylori bacteria infection which im currently being treated for. so far since my treatment started i have slowly, very slowly, been feeling better and better by the day. so ask your doctors if they saw any h pylori because aside from that all my tests came back perfect as well.
    Anonymous 1 Replies Flag this Response
  • For those of you experiencing this 24/7 nausea i would smoke some pot, for the munchies, now u may all think im joking but im not, without pot i would not be able to eat anything at all. marijuana also really helps nausea but dont use to much because to much can trigger bad effects because of sensitivity to motion by the nausea, but a few hits and you should feel great, well a few hits on top of the meds ur already taking that is. but ya i suffer from 24/7 nausea and its the one thing that helps
    Anonymous 1 Replies Flag this Response
  • For those of you experiencing this 24/7 nausea i would smoke some pot, for the munchies, now u may all think im joking but im not, without pot i would not be able to eat anything at all. marijuana also really helps nausea but dont use to much because to much can trigger bad effects because of sensitivity to motion by the nausea, but a few hits and you should feel great, well a few hits on top of the meds ur already taking that is. but ya i suffer from 24/7 nausea and its the one thing that helps
    Anonymous 1 Replies Flag this Response
  • For those of you experiencing this 24/7 nausea i would smoke some pot, for the munchies, now u may all think im joking but im not, without pot i would not be able to eat anything at all. marijuana also really helps nausea but dont use to much because to much can trigger bad effects because of sensitivity to motion by the nausea, but a few hits and you should feel great, well a few hits on top of the meds ur already taking that is. but ya i suffer from 24/7 nausea and its the one thing that helps
    Anonymous 1 Replies Flag this Response
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