Discussions By Condition: I cannot get a diagnosis.

Constant fatigue... what is it?

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: Anonymous
  • October 5, 2009
  • 01:09 PM

My history: Dealt with & recovered from anorexia, severe depression, and an anxiety disorder as a teen. Anxiety is the only one that is still an issue at times. Also was diagnosed with a heart murmur & mitro-valve prolapse around the same time but these apparently disappeared... further tests on my heart later showed "some abnormality" but nothing serious enough to diagnose or treat I guess, although I was on a beta blocker for a while. A little later tests showed I had a sliding hiatal hernia and "non-ulcer dyspepsia" which improved after taking Reglan for a few months.

I'm 26 years old now.

For the past 3.5 years I have been dealing with bad fatigue. Started in April 2006 (I remember because I first chalked it off to quitting my coffee-shop job so no more caffeine!) Put off going to the doc's for quite a while, tired of always hearing that it's all in my head -- it's NOT! Finally the fatigue got so bad I couldn't exercise even once a week anymore (I used to exercise daily) and it was getting harder to function. My husband had to start doing the laundry and cooking/cleaning. Went to the doc last year (Feb. 2008) and she diagnosed it as chronic fatigue before even examining/testing me (worrisome!)... Ran blood tests, they came back normal, only issue was low blood sugar (I have dealt with hypoglycemia since a child & hadn't eaten in a while that day). Showed I had Epstein Barr in the past too. Nothing else to note. I then asked her to check for nutritional deficiencies, since I have been vegetarian for about 14 years and vegan for about 6. No nutritional deficiencies.

I got desperate and read about allergies so I cut gluten and soy out of my diet completely. Within 2 weeks I felt great, nearly back to normal! Then got pregnant and was tired and starving so started eating gluten & soy again. Halfway through my pregnancy I was hospitalized overnight for severe pain on the left side of my back. I had a high white blood count (25,000) that they thought was my appendix but they couldn't find my appendix and there was something in the way. They ended up releasing me & I was fine. Remarkably by my third trimester I felt really good (besides being pregnant) -- I actually had a lot more energy! The energy disappeared by about 2 months after my son was born and has gotten progressively worse since. Went back on the gluten-free diet (and almost no soy) but the effect wasn't as drastic. It does help me to have just enough energy to cook dinner a couple times a week. Beyond that I can barely do anything!

I work from home & have trouble concentrating/focusing. I also have trouble getting out of bed, never feel refreshed no matter how much sleep I get. I try to stay somewhat active (take short walks several times a week etc.) -- it usually leaves me feeling wiped out. I am unable to clean, do laundry, etc. and taking care of my 8-month old is physically challenging (lifting/carrying/etc). I am getting more and more depressed about my inability to DO anything. Some days the fatigue is worse than others, and often I have a little spurt of energy around 5-7pm, but the rest of the day I'm like a lump on a log. My muscles feel like they are just dead. I will sit there and think about getting up for something and I just can't bring myself to move my body. When I do force myself to move I end up feeling way worse after a few hours of mild activity (like shopping or a walk). My other symptoms tend to come & go so I don't give much weight to them but they are: nausea, sore throat, general aches & pains, back pain at times so severe I can't sit or move, and often when I stand everything goes black but that hasn't happened in the last few months.

Sorry so long, I really hope someone can help me :(

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8 Replies:

  • ETA: A couple more of the "come & go" symptoms, just in case it matters... headaches (especially when it rains), migraines that include numbness on one side of my body & vision loss, constipation (sometimes alternates with diarreah)...palpitations (could be due to anxiety though I'm not often anxious when it happens)... Also about a month before this started I travelled to Honduras and was REALLY sick for about a week...
    Anonymous 42789 Replies
    • October 6, 2009
    • 01:15 PM
    • 0
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  • ETA: A couple more of the "come & go" symptoms, just in case it matters... headaches (especially when it rains), migraines that include numbness on one side of my body & vision loss, constipation (sometimes alternates with diarreah)...palpitations (could be due to anxiety though I'm not often anxious when it happens)... Also about a month before this started I travelled to Honduras and was REALLY sick for about a week... Hi - Your story is reading like CFS to me, a lot of people with this syndrome have found help at the following thread. Take a read and see if anything sounds familiar, but please do not post there (they are trying to maintain it for easy reading): http://forums.wrongdiagnosis.com/showthread.php?p=191131&posted=1#post191131 Afterwards, come over to this thread with any questions you have. Also, a good idea to read through it backwards and see if you get any answers to your questions. I've just started following this protocol and have felt a big difference in fatigue in a short period (some other things take longer as you will read). If your fatigue is at all related to B12 deficiencies you will be helped... http://forums.wrongdiagnosis.com/showthread.php?p=194431#post194431 Take care,Velha
    velha508 321 Replies
    • October 6, 2009
    • 04:36 PM
    • 0
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  • My history: Dealt with & recovered from anorexia, severe depression, and an anxiety disorder as a teen. Anxiety is the only one that is still an issue at times. Also was diagnosed with a heart murmur & mitro-valve prolapse around the same time but these apparently disappeared... further tests on my heart later showed "some abnormality" but nothing serious enough to diagnose or treat I guess, although I was on a beta blocker for a while. A little later tests showed I had a sliding hiatal hernia and "non-ulcer dyspepsia" which improved after taking Reglan for a few months. I'm 26 years old now. For the past 3.5 years I have been dealing with bad fatigue. Started in April 2006 (I remember because I first chalked it off to quitting my coffee-shop job so no more caffeine!) Put off going to the doc's for quite a while, tired of always hearing that it's all in my head -- it's NOT! Finally the fatigue got so bad I couldn't exercise even once a week anymore (I used to exercise daily) and it was getting harder to function. My husband had to start doing the laundry and cooking/cleaning. Went to the doc last year (Feb. 2008) and she diagnosed it as chronic fatigue before even examining/testing me (worrisome!)... Ran blood tests, they came back normal, only issue was low blood sugar (I have dealt with hypoglycemia since a child & hadn't eaten in a while that day). Showed I had Epstein Barr in the past too. Nothing else to note. I then asked her to check for nutritional deficiencies, since I have been vegetarian for about 14 years and vegan for about 6. No nutritional deficiencies. I got desperate and read about allergies so I cut gluten and soy out of my diet completely. Within 2 weeks I felt great, nearly back to normal! Then got pregnant and was tired and starving so started eating gluten & soy again. Halfway through my pregnancy I was hospitalized overnight for severe pain on the left side of my back. I had a high white blood count (25,000) that they thought was my appendix but they couldn't find my appendix and there was something in the way. They ended up releasing me & I was fine. Remarkably by my third trimester I felt really good (besides being pregnant) -- I actually had a lot more energy! The energy disappeared by about 2 months after my son was born and has gotten progressively worse since. Went back on the gluten-free diet (and almost no soy) but the effect wasn't as drastic. It does help me to have just enough energy to cook dinner a couple times a week. Beyond that I can barely do anything! I work from home & have trouble concentrating/focusing. I also have trouble getting out of bed, never feel refreshed no matter how much sleep I get. I try to stay somewhat active (take short walks several times a week etc.) -- it usually leaves me feeling wiped out. I am unable to clean, do laundry, etc. and taking care of my 8-month old is physically challenging (lifting/carrying/etc). I am getting more and more depressed about my inability to DO anything. Some days the fatigue is worse than others, and often I have a little spurt of energy around 5-7pm, but the rest of the day I'm like a lump on a log. My muscles feel like they are just dead. I will sit there and think about getting up for something and I just can't bring myself to move my body. When I do force myself to move I end up feeling way worse after a few hours of mild activity (like shopping or a walk). My other symptoms tend to come & go so I don't give much weight to them but they are: nausea, sore throat, general aches & pains, back pain at times so severe I can't sit or move, and often when I stand everything goes black but that hasn't happened in the last few months. Sorry so long, I really hope someone can help me :( I then asked her to check for nutritional deficiencies, since I have been vegetarian for about 14 years and vegan for about 6. No nutritional deficiencies.I just wanted to point out that vegatarians and especially vegans have no source of natural B12, methylcobalamin. Cyanobalamin is not worth using (details on other threads). Much of your post sounds like many I have read by people helped by this protocol - your B12 serum level is not a measure of your body level ( a nice comparison I've heard is that doctors do not think osteoporosis is 'fixed' just because the Ca level in your blood is normal, thus they should not think there is not a B12 deficiency just because of normal blood levels). In addition, what you will find mentioned over and over again on the thread I linked to above is that the US standard for 'normal' serum levels of B12 is outside what other countries consider normal and that levels below the 500 range (can't remember specifically) are definitely low enough to cause fatigue and neurological symptoms. My serum level was 440ish and I've already seen improvements... Please join us. Good luck and good health!!Velha
    velha508 321 Replies
    • October 6, 2009
    • 04:44 PM
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  • Thank you Velha!! It's a lot of reading and very overwhelming so I think it will take me some time to fully understand all this but I really appreciate your response and I am going to look into this more (I can't even ask questions yet as I am still so overwhelmed by it).THANK YOU!
    Anonymous 42789 Replies
    • October 8, 2009
    • 01:05 PM
    • 0
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  • ACat:Hello! I just typed a long reply and somehow I think it was deleted... so I hope this is not a duplicate but all I can say is WOW! My jaw dropped when I read your plea because it sounded MUCH like me... I have been up all night reading, reading and reading more so this will probably be full of typos but I feel like I arrived here for a reason... It sounds like you have andrenal fatique... I made a self diagnosis in the middle of the night and I think I might not be crazy and comatose after all!! All of your symptoms sound like those of adrenal issues... those little glands on top our kidneys control so much of our well being...our sanity. and are responsible for secreting over 50 different hormones—including epinephrine, cortisol, progesterone, DHEA, estrogen, and testosterone. I'm going to cut and paste info I compiled and give you a good like... Just google "andrenal fatigue" and wait for your lightbulb moment... your jaw willdrop too and maybe you'll cry --as I did. My life has been a nightmare for years.Adrenal Fatigue will only progress untreated but the good news is IS easily treatable and it looks like naturally too! Amazing...Docs treat ALL the symptoms but don't look for the cause so many times!! I want to type more but I'm exausted... lol... have to laugh about it. Admittedly I'm tired and read your plea quickly but I think I got the gist and I sooooo hope this helps you~Allie+++++++++++++++++++++++++++++++++++++++++++++++++When adrenal function is impaired or weak, a person may suffer from low blood sugar, low blood pressure, low body temperature, and a total feeling of exhaustion. When stress is prolonged the organs begin to weaken and other health related problems can set in such as hypoglycemia. Some of the common causes that contribute to adrenal exhaustion are continued stress, poor diet, over-consumption of sugar and refined carbohydrates, overuse of caffeine, alcohol, drugs, nicotine, and vitamin B and C deficiencies. Unfortunately, the body reacts the same way to both real and imagined threats. For instance, unrelieved worrying about losing your job can cause the same over-taxing of the adrenals and the resultant suppression of the immune system as actually losing your job. If a person succumbs easily to allergies and infections, feels constantly drained and exhausted, suffers from low blood sugar and blood pressure, then the culprit may well be weak adrenals. For instance, most of the asthma sprays contain adrenal-like hormones that mimic cortisol in the body. One of the most prominent signs of adrenal gland insufficiency is chronic fatigue. In some fatigued patients, thyroid problems overlap adrenal problems. In these cases, the status of the adrenal glands and the thyroid gland must be assessed. The appropriate treatment should be undertaken only after this determination is made. Cut and Paste from my DocSigns and Symptoms (and there are more!)Fatigue, WeaknessDepressionFrustrationPremenstrual tensionNervousnessScanty perspirationInability to concentrateLightheadednessSweet cravingsIrritabilityInsomniaAllergiesHeadacheshttp://www.project-aware.org/Resource/articlearchives/adrenalfatigue.shtml
    Anonymous 42789 Replies
    • October 8, 2009
    • 02:01 PM
    • 0
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  • http://www.wpinstitute.org/index.html. I heard these guys are good at CFS. Hope it helps
    Anonymous 42789 Replies
    • October 9, 2009
    • 01:01 PM
    • 0
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  • Wow... the ironic part is my name is Ali too ;) Haha just thought I'd point that out!Adrenal fatigue... really does seem to fit the bill... Ahhhhh now I will need to research that more.... Dr. Google has become my best friend! How do you treat it? Even right down to the low blood sugar, this seems to fit soooo well....
    Anonymous 42789 Replies
    • October 9, 2009
    • 01:05 PM
    • 0
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  • Story sounds completely familiar, only difference...doctors since 1993....constantly dismissed, also diagnosed with several auto immune diseases, yet medicine never really helped...actually reacted opposite to the medicines prescribed. I finally discovered that I have had a severe, long term case of multiple intestinal parasites. Infectious Disease doctor treating me with Alinia. This has been an extremely unpleasant process...still working on it...the things I'm passing are scary, but periodically I'm getting a bit more energy, feeling more clear headed, etc. You may very well have the other suggested diseases, but if the doctors tell you that your test are normal, I would suggest you ask them about this.Hope that you feel better soon!
    Anonymous 42789 Replies
    • October 10, 2009
    • 01:29 PM
    • 0
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