Discussions By Condition: I cannot get a diagnosis.

Constant dizziness, need help!

Posted In: I cannot get a diagnosis. 17 Replies
  • Posted By: finaidguru
  • December 2, 2009
  • 04:38 PM

I am 27 years old. I am a non-smoker and weight about 165lbs. I am in pretty okay shape except for the love handles. I have lived in the same place for over 5 years. I do not drink excessively. My symptom time line reads like this:

About 3 and a half years ago, I injured my left leg. Patellar tendonitis, they told me. Took anti-inflammatory meds and did physical therapy but it didn't help. I've done 3 other stints of PT since then and still experience that pain today.

2 years ago, I was having difficulty breathing. Sudden onset adult asthma, they said. I had asthma and allergies as a kid, but I had been asymptomatic for over 10 years. Not long after that, I started having a feeling that my heart was racing when I was just standing or sitting around doing nothing. EKG and holter showed that I had premature atrial contractions, but they were dismissed and I was told I was fine.

1 and a half years ago, I started having increased asthma symptoms and bad seasonal allergy symptoms. Running nose, bad headaches, trouble breathing, wheezing, coughing, sore throat, lump in my throat feeling, and an increase in my acid reflux problems. Zantac and zyrtec did nothing. Nothing that I was prescribed for medication helped the allergy problems and I could control my acid reflux with prilosec most of the time.

The worst of all this started about a year ago. I started feeling dizzy and it hasn't gone away. I've been constantly dizzy for an entire year. It is worst when I am sitting perfectly still. When I'm doing things, it isn't as bad. It comes with naseau, but never vomitting. Neurologist said MRI on head was clear except for fluid in my sinuses (which he said isn't the cause) and balance test and hearing test were normal.

The last 6 months, I've noticed that I have had a lot of memory problems and a slight temor in my hands. My vision is kind of blurry and I have to refocus it a lot. The headaches have gone to a numbness throughtout the top part of my head and my neck is really stiff. I'm not sure how long the vision and neck pain have been going on for. All blood work has been normal and except for the tempature taken at the doctor the last two visits (94 degrees both times), all blood pressure and other stuff has been normal. I could really use some help on this! First person to suggest anxiety loses...

I am on an allbuteral inhaler, prilosec, and singulair. That's it. Some of the timelines and grammar may not be perfect on this post because of the memory problems. I can't remember when some of these problems started and occassionally when talking or typing, I have been known to miss words that I thought I said or wrote. I really hope someone can help.

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17 Replies:

  • How's your blood pressure when this happens?
    kermworm 81 Replies
    • December 2, 2009
    • 11:33 PM
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  • Nothing, yet, huh? Well, update. A pulmonary function test was done today and my lung capacity is lower than normal. It was just on the border, so I had a chest x-ray done. No word on results of that, yet.
    Anonymous 42789 Replies
    • December 3, 2009
    • 06:27 PM
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  • My blood pressure has always been fine. My dad has high blood pressure and glaucoma, so the fact that my blood pressure has always stayed on the lower end of good is something that I've been very happy with. Also, this isn't a dizzy spell or a few minutes of dizziness. This is a constant thing. I read a post on here where someone make a remark about the difference between the feeling that the room is spinning and the feeling that you're spinning. It feels like I am spinning and the spinning motion correlates perfectly with the beating of my heart. I can feel my pulse as it happens and that pulsing causes me to feel like I am moving.
    finaidguru 9 Replies
    • December 3, 2009
    • 10:11 PM
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  • Chest x-ray was normal. The pulmonologist thinks the breathing problems are just asthma, and at this point, I tend to agree... Is there anything that would cause the other symptoms and also cause a person who already has asthma to have an asthma flare up?For the knee, I was at the orthopedic today, and she thinks that I have a tear in the meniscus. I'm being sent for an MRI on the knee and thigh and will likely need surgery for that. I really think that all of these problems I'm having are interconnected....
    finaidguru 9 Replies
    • December 4, 2009
    • 02:13 AM
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  • Chest x-ray was normal. The pulmonologist thinks the breathing problems are just asthma, and at this point, I tend to agree... Is there anything that would cause the other symptoms and also cause a person who already has asthma to have an asthma flare up? For the knee, I was at the orthopedic today, and she thinks that I have a tear in the meniscus. I'm being sent for an MRI on the knee and thigh and will likely need surgery for that. I really think that all of these problems I'm having are interconnected.... I can relate to your frustration I woke up on 10/20/09, stepped out of bed and felt like I was tumbling around inside of a washing machine. I had severe pain behind my left eye, this was diagnosed as vertigo, I could get the room to stop spinning by lying on my right side but after a few days, the world stopped spinning and I was now the one "dizzy". A visit to a neurologist yesterday told me "there is no such thing as dizzy" I guess the word is too vague. But like yourself, my MRI was normal except for some fluid in my sphenoid sinus, I had the worst case of conjunctivitis 2 weeks prior to this, saw an ENT, my ENG and audiometry was like yours, normal. Yet the dizziness persists, I'm confused, disoriented, have short term memory loss, can't read anything because I can't recall what I've just read, forgot how to spell my last name and like yourself have a headache that won't go away. Unlike you I've had blood pressure issues in the past, I'm scheduled for a lumbar puncture next week. This isn't living, it's existing and I just would like for someone to tell me what is wrong. Sorry this is so long, Good luck with your knee hopefully it's what's causing your problems.
    murfsgurl 1 Replies
    • December 4, 2009
    • 04:11 AM
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  • I am not a doctor!That is a long list of symptoms. I guess that you mean to give a full picture, but it strikes me that it seems difficult to figure how all these things, especially your knee and your dizziness might be related. 1) Could they be related causally? (i.e. you had dizziness, or some other underlying problem, and that caused you to injure your leg?)2) Could they be related via medication? (i.e. something you started taking for your leg, or asthma be causing you to feel dizzy?)3) Could the cause go even further back - you say that you have been living in the same place for 5 years. Could the place you are living (polutants and allegens) or the work that presumably you took up at this new place of abode, be related to your health problems, such as for example to exacerbate your asthma? Upon reading a little, (2) looks promising. Looking at the drugs you are taking, and cutting and pasting the relevant parts of the side effects from Wikipedia (just google any of the drug names below with "wikipedia" for the related entry, which will be under a generic name) albuteral:The most common side effects are of fine tremor, nervousness, headache, muscle cramps, dry mouth, and palpitation. Other symptoms may be tachycardia (rapid heart rate), arrhythmias, flushing, myocardial ischaemia, and disturbances of sleep and behaviour. singulair:The drugs are associated with a possible increase in suicidal behaviour and other side effects such as agitation, aggression, anxiousness, dream abnormalities and hallucinations, depression, irritability, restlessness and tremor. prilosec:Some of the most frequent side effects of omeprazole (experienced by over 1% of those taking the drug) are headache, diarrhea, abdominal pain, nausea, dizziness, trouble awakening and sleep deprivation, although in clinical trials the incidence of these effects with omeprazole was mostly comparable to that found with placebo. Well, these asthma drugs do seem to come with side effects. Perhaps the stress of injury, or relocation could be related to asthma and then the combination of the asthma drugs might cause the other symptoms? The last prilosec especially lists dizziness as one of the side effects. All three of these drugs are related to sleep problems, which might exacerbate the dizziness and lead to memory problems. If it were me I might:1) See if I could safely do without any of the above drugs for a while to see if symptoms improve (e.g. relying on two of the three for a while if safe.) to identify which if any of the above drugs might be helping to cause your symptoms.2) Look into other asthma drugs, even herbal, to see if they can provide at least temporarily, a way of attemping (1)3) Consider any environmental factors of your current abode that might be causative in your asthma, and then if this factor might be mitigated (e.g. if there is a lot of tobacco smoke in your place of work you might attempt to move office) so that again you might be able to try (1) Just an idea. Good luck.
    timtak 7 Replies
    • December 4, 2009
    • 04:38 PM
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  • Thank you for your very thorough reply. It's always nice to see different perspectives on what's going on. Believe me, I would love for this to be something that I'm inadvertently doing to myself. The reason that I tried to lay out the time line of these problems is because one of my doctors believes that the knee injury caused my other problems.When I injured my knee, I began taking a lot of anti-inflammatories. She believes that this flared my stomach problems and acid reflux because stomach problems are a side effect of anti-inflammatory medications. Also, after I hurt my knee, I gained about 15 pounds. She thinks that the weight gain coupled with the medications caused my asthma to come back. She also believes that the extra weight triggered a greater sensitivity to seasonal allergies which is causing the dizziness.I think this is a good theory, and yours is, too. I had known about the medications causing some of those side effects and so for most of the month of May and June of this past year, I had gone off of all medications. I suffered through with my asthma problems and changed my diet to avoid most reflux symptoms. I have the luxury of being able to do this because most of my allergy, asthma, and reflux problems are not daily problems. They flare up monthly or bimonthly and the medication that I take, I rarely take every day. I really only need the allbuteral once a week, unless I'm very symptomatic. I take the singulair 2 or 3 times a week and the prilosec I'll take for 3 days at a time if I start to have problems. These are all preventative medications, and I could take them every day and never have problems or I can take them once a week and have mild problems once a month. I'd rather undermedicate than over medicate for the very reasons you laid out.I also mention the knee problem because there are diseases that cause muscle problems or tendon problems or just in general, make you suceptable to inflammation in various areas of your body. I really don't know what parts of my problems can be explained by medications, what parts can be explained by being asthmatic, and what parts might be caused by something worse.
    finaidguru 9 Replies
    • December 4, 2009
    • 05:24 PM
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  • I would have to say that maybe you have Labrynthitis... There is really no way for the doctors to test for it. I had it once and the dizziness/ vertigo lasted amost 6 months. But the worst of it was within the first 2 or three days. I know you say for the first person to say Anxiety is the ****r but anxiety can cause a whole lot off phyisical issues.... For example I have been suffering from a panic disorder since I got Labrynthitis. I have had Unbearable pain from the symptoms because remember anxiety effects the nerves! My last Nerve issue was my leg. The only thing that helped was a larger dose of Klonopin! I hope you get well soon!
    Anonymous 42789 Replies
    • December 4, 2009
    • 07:34 PM
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  • because one of my doctors believes that the knee injury caused my other problems. When I injured my knee, I began taking a lot of anti-inflammatories. She believes that this flared my stomach problems and acid reflux because stomach problems are a side effect of anti-inflammatory medications. Also, after I hurt my knee, I gained about 15 pounds. She thinks that the weight gain coupled with the medications caused my asthma to come back. That sounds like a nice theory. It is nice to meet a doctor with a wholistic approach, as opposed to a this symptom->this drug type approach. If the weight is exacerbating your allergy, which may (directly or indirectly) be causing the dizziness, how about loosing some weight? Since you have had a knee injury then something that does not put pressure on your knees such as swimming or *cycling*. I am not a doctor but I am a cyclist. I could go on for hours about how good bicycles are for people (so long as you don't fall off) ! I especially recommend the super light OEM (i.e. non-brand) carbon bikes. Just get anything light from ebay and cycle your love handles away. But wait, if you feel dizzy, then maybe cycling is not such a good idea. Er, swimming?
    timtak 7 Replies
    • December 5, 2009
    • 05:24 AM
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  • I really do believe there is some validity in the argument about the knee, weight gain, and asthma/allergy problems. I just don't think it translated to my dizziness problem. Also, when the asthma started, I was at about 175 to 180 pounds. I'm down to 165 now. In high school, the lightest I ever weighed was 155. We're not talking about 50 or 60 pounds of gain... We're talking about 15 to 20 pounds.I'll know the outcome of the MRI on my knee on Thursday. If I have to have surgery, everything will just be put off until I recover from that. I'll know more by the end of the week.Thanks to everyone for the suggestions. Keep them coming!
    finaidguru 9 Replies
    • December 7, 2009
    • 05:01 PM
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  • Have you had your B12 / folate levels checked? Your symptoms sound very similar to mine, and I have found some help here with the B12 Boards. Perhaps you could take a look and see if anything looks familiar to your current symptoms...http://forums.wrongdiagnosis.com/showthread.php?t=9948&page=1113
    TickTockTick 19 Replies
    • December 7, 2009
    • 07:26 PM
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  • The B12 symptoms did not sound like what I am going through... Nevertheless, I'm sure they're going to test for it, eventually...My MRI on my left knee/leg came back and everything was completely normal. There is no structural damage to my leg... My orthopedic is stumped and can't figure out why I'm in such extreme pain. The knee is sore to the touch, but my thigh muscle just hurts like ***l. She said there is no sign of atrophy in the muscle and no explanation of why it would feel so tight all the time.Thinking back to the beginning of all of this, I feel like the thigh muscle "fatigue"/pain was the first thing that happened to me... My orthopedic is sending me to a neurologist because she said her only thought is it could be a neuromuscle problem.... which would explain my other problems. I really don't know how people live like this for years and years...
    finaidguru 9 Replies
    • December 11, 2009
    • 02:50 PM
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  • The neurologist just said that he does not believe that my leg pain is neuromuscular. I am in a lot of pain and nobody knows why and nobody can make it stop. If I wasn't so incredibly dizzy all the time, I might not care... but I don't know how much longer I can go on like this....
    finaidguru 9 Replies
    • December 21, 2009
    • 05:45 PM
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  • A lot of times an antihistamine will help dry out the sinuses, ear canals, etc. Also, try eucalyptus (Vicks liquid) 1 Tablespoon in a pan of 1 quart of water, allow to steam and breathe the vapors in. Also try Mucinex DM every 12 hours. All this is cheap and needs no prescription. Might ask your doc for an antibiotic aimed at the area where there is fluid found on the radiology studies. (Cipro, Erythromycin, Augmentin). I doubt there is any connection with the problem with your knee and the dizziness, unless you got a whopping infection in that knee and it went to other parts of your body. Hope this helps.
    Anonymous 42789 Replies
    • January 1, 2010
    • 11:45 PM
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  • During a check-up with my primary care, she suggested I speak to my neurologist about MS. I'm having an MRI done on my lower back to see if they can find the cause of the knee/leg pain, and hopefully it will show something.
    finaidguru 9 Replies
    • January 4, 2010
    • 03:21 PM
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  • Pulmonologist is going to diagnose me with asthma... I think my other problems are being caused by the same thing that is exacerbating my asthma problems... Any ideas?The dizziness has gotten worse and both of my hands have a very jittery tremor as if I had drank a pot of coffee... but I don't drink caffeine and I don't take any supplements.
    finaidguru 9 Replies
    • January 14, 2010
    • 07:06 PM
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  • To finaidguru:Have you found anything about your dizziness? I've been dealing with constant dizziness myself for about 5 months and have had lots of balance tests, MRI of my head, 2 ENT visits and bloodwork and the only things I've been told was that my balance system is not functioning well and that it could be migraine related but I'm not really convinced I guess. If you find anything new about what could be causing the dizziness or if you find anything that helps please post back.Karen
    Anonymous 42789 Replies Flag this Response
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