We're desperate to find out whats wrong with my mom....
in August 2008 my mom begun to experience severe pain in her ankles and feet. She had broken a multitude of bones. since then she has continued to break bones, by putting no weight on them... for instance she'll put her foot on the ground with no pressure on it and bones will break. They suggested Rheumatoid Arthritis, she was negative... her bones in her feet and ankles are dead and are no longer generating though.
In Feb 2009 she was diagnosed with Amyloidosis and it is most prevalent in her kidneys, actually she tested negative for it being in her bone marrow, and they caught it in early stages. At first this seemed like the answer of her feet and ankles, but it doesn't answer anything. All the experts of Amyloidosis say they have no idea what is wrong. Actually every doctor she's been to has said they've never seen any case like her.
Please help, my mom is in a lot of pain, and she can't get permanent disability unless they have a diagnosis. and she has had trouble getting a wheel chair without a diagnosis as well