Discussions By Condition: I cannot get a diagnosis.

Confusing symptoms

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: Anonymous
  • February 2, 2008
  • 08:43 PM

I am a sixteen year old girl and I'm not fat, nor skinny. I'm pretty healthy, (with the occasional splurge of chocolate) but these symptoms are causing havoc on my life.

In May of '07 I got an unknown virus that caused me to be extremely tired (so much so that I was incapacitated). It lasted about two weeks before I got better. Unfortunately, in August of '07 I got the symptoms back, but they were less extreme. While I was tired, I could still function normally.

However, since then I have had more symptoms including:

Fatigue (no matter how much sleep I get, I always wake up tired)

Headaches (have gotten steadily worse from when started in September '07. They are bad in the morning and at night, but get better during the day. They can be so bad that I can only clutch my head in pain)

Dizziness (I am constantly dizzy, and I can't turn my head fast, nor turn body without feeling like the world is spinning. Also, I've been having more dizzy spells that can last for an entire day)

I'm not sure if this is a symptom, but if I'm in a warm room for to long I need to drink a LOT of water or else I will start to black out.

Recently, I've had shortness of breath, where I have to take deep breaths or else I won't get enough oxygen and I'll start to black out.

I've had a CAT scan on my head before, but nothing turned up. These symptoms aren't really big, so it is hard to pinpoint what is causing this.

Thank you for any responses, and for your time reading this.

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9 Replies:

  • I am a sixteen year old girl and I'm not fat, nor skinny. I'm pretty healthy, (with the occasional splurge of chocolate) but these symptoms are causing havoc on my life. In May of '07 I got an unknown virus that caused me to be extremely tired (so much so that I was incapacitated). It lasted about two weeks before I got better. Unfortunately, in August of '07 I got the symptoms back, but they were less extreme. While I was tired, I could still function normally. However, since then I have had more symptoms including: Fatigue (no matter how much sleep I get, I always wake up tired) Headaches (have gotten steadily worse from when started in September '07. They are bad in the morning and at night, but get better during the day. They can be so bad that I can only clutch my head in pain) Dizziness (I am constantly dizzy, and I can't turn my head fast, nor turn body without feeling like the world is spinning. Also, I've been having more dizzy spells that can last for an entire day) I'm not sure if this is a symptom, but if I'm in a warm room for to long I need to drink a LOT of water or else I will start to black out. Recently, I've had shortness of breath, where I have to take deep breaths or else I won't get enough oxygen and I'll start to black out. I've had a CAT scan on my head before, but nothing turned up. These symptoms aren't really big, so it is hard to pinpoint what is causing this. Thank you for any responses, and for your time reading this. Just my thoughts here....have you been tested for diabetes inscipitus (I probably spelled that wrong) it is an accuired form of diabetes cased from damage to your pancreas....possibly the illness damaged it?? My grandmother had it from a car accident which forced the doctors to remove her pancreas. The biggest red flag symptom is that the person feels awful and drinking a lot of water will make them feel better.....they can crave water to the point of panick if thy cannot get a drink and they can black out without it or go into diabetic shock.....Just an idea. Does drinking water make you feel better? If so please consider this.
    Candle 25 Replies
    • February 2, 2008
    • 09:45 PM
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  • No Candle, although I need water if I'm in a warm area, if I'm careful, I can go without water for a while. Plus, I don't urinate often enough to cause concern. So, I don't think it's Diabetes insipidus. Thank you for giving your opinion though. All suggestions are welcome.I'm also pretty sure it's not Lyme disease, blaze. But I'm not so sure on EHS. Although I do have a lot of those symptoms, I don't have big problems around hospitals and I don't cause electrical appliance to malfunction. So, hm. It gives my brain food for thought, but I don't think it's pinned down yet...Thanks again for suggestions, and anymore that come.
    Anonymous 42789 Replies
    • February 2, 2008
    • 10:06 PM
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  • I had fatigue, bad headaches, and balance problems for years and was finally diagnosed with a rare complication of autoimmune thyroiditis called Hashimoto's Encephalopathy (HE). Most doctors have never heard of it. Most doctors will never check for it, either, if your thyroid hormone levels are normal (and most patients with HE have normal thyroid hormone levels).It is diagnosed by checking thyroid ANTIBODIES (to thyroperoxidase and thyroglobulin) even if your hormones are okay. You can have thyroiditis a long time before you lose your thyroid function and have abnormal hormone levels or a goiter. But your antibodies should be elevated early on (they are responsible for destroying the gland and slowly killing it off) if you have a thyroiditis.Since thyroid disease can sometimes be triggered by infections, it might be worthwhile looking into. It is highly treatable with steroids. Don't be alarmed by the more serious symptoms if you look it up on the internet. It can present differently in each patient. I never had the more serious symptoms of seizures or coma or psychosis. Only about half of patients with HE will get these. I had your symptoms. They tended to wax and wane over time but overall seemed to progress.So, if your doctors have looked into almost everything else and still can't figure it out (and are desperate), you might want to consider this. Especially so if one year undiagnosed turns into two, and two years undiagnosed turns into three, etc etc. You'll have to ask for the antibody tests specifically and your doctors might be reluctant to check them if your TSH is okay, but it is worth it if this is what you have. I hope you get some kind of an answer/explanation soon.
    Anonymous 42789 Replies
    • February 3, 2008
    • 07:35 AM
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  • here's a couple you might want to be tested for: http://www.medicinenet.com/infectious_mononucleosis/article.htm infectious mononucleosis What are the symptoms of mono?The initial symptoms of mono are:a general lack of energy or malaise,a loss of appetite, andchills.These initial symptoms can last from one to three days before the more intense symptoms of the illness begin. The more common intense symptoms include:a severe sore throat,fever, andswollen glands (lymph nodes) in the neck area.It is typically the severe sore throat that prompts people to contact their doctor. What are the signs of mono?In addition to a fever from 102 to 104 degrees Fahrenheit, the most common signs of mono are:a very reddened throat and tonsils andswollen lymph glands in the neck.The tonsils have a whitish coating in at least one-third of the cases. The spleen (sometimes referred to as the body's biggest lymph node), is an organ found in the left upper abdomen underneath the rib cage which becomes enlarged or swollen in about 50% of patients with mono. An enlarged liver may also occur. About 5% of patients have a splotchy red rash over the body, which has a similar appearance to the rash of measles. http://www.health.state.ny.us/diseases/communicable/cytomegalovirus/fact_sheet.htmWhat are the symptoms of CMV infection?Most children and adults who are infected with CMV do not develop symptoms. Those who develop symptoms may experience an illness resembling infectious mononucleosis and have fever, swollen glands and feel tired.
    Monsterlove 2921 Replies
    • February 3, 2008
    • 07:40 AM
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  • hi Im wondering if your symptoms are worst after you exert yourself eg do they seem to come in worst after, or some time after, doing things??? And are you getting memory and concentration issues due to all this too???
    taniaaust1 2267 Replies
    • February 4, 2008
    • 09:16 AM
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  • Try here: http://adam.about.com/encyclopedia/Heat-intolerance.htm
    aquila 1263 Replies
    • February 4, 2008
    • 03:04 PM
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  • hi Im wondering if your symptoms are worst after you exert yourself eg do they seem to come in worst after, or some time after, doing things??? And are you getting memory and concentration issues due to all this too???No, I have ADD, so I can't chalk up any concentration issues on these symptoms. I don't really have to much of a difference after I work out or anything, the severity of the symptoms are random and I can just be laying down at night and I get an excruciating headache. Although, before all this happened when I played Tennis I used to get bad headaches and have a hard time breathing, so I had to stop playing. I don't know if this has anything to do with it though.
    Anonymous 42789 Replies
    • February 10, 2008
    • 05:15 PM
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  • Electrical Sensitivity & Hypersensitivity: http://www.ei-resource.org/illness-information/related-conditions/electrical-sensitivity-&-hypersensitivity/ Do you suffer from electrical hypersensitivity? Score as follows: If you have the symptom described: Frequently - score 2Occasionally - score 1 Never - score 0 Do you suffer from: 1. Numbness, weakness or prickling sensations in your joints or limbs 2. Feelings of abnormal tiredness or weakness that cannot be explained by your life commitments 3. Changes in your ability to think clearly or finding it difficult to concentrate, depending on where you are 4. Aches and pains, cramps or muscle spasms in your joints, bones and muscles in your shoulders, arms, legs, feet, wrists, ankles, elbows and pelvis. Fibromyalgia 5. Headaches 6. Tenseness 7. Restlessness, anxiety 8. Memory loss 9. Sleep disturbance, insomnia 10. Feebleness, dizziness, tremors 11. A tendency to skin redness, itchiness, rashes, tingling or dry skin12. Abdominal pain, digestive problems, irregular bowel movements, sickness 13. Feeling too hot, fever 14. A smarting, irritating sensation, a pain, or a feeling as if there is grit in your eyes. Blurred vision or flickering before the eyes 15. Nosebleeds or blood pressure changes 16. Heart arrhythmias or irregularities, palpitations or chest pain 17. Toothache or neuralgia 18. Hair loss 19. Hearing clicks, humming, buzzing, hissing or a high-pitched whine 20. Sensitivity to light, especially fluorescent lights or computer screens (sometimes, though rarer, even daylight) 21. Bouts of unusual irritability, rage, violence, destructiveness, feeling hostile 22. Thyroid problems 23. A generalised feeling of impending influenza that never quite breaks out 24. Depression 25. 'Missing time', blackouts or convulsions. If you scored 15 to 25 out of 50, you may be one of the 35 per cent of people suffering from some degree of electro-stress. If you scored more than 25, you may have developed EHS. Bioinitiative Report: http://www.bioinitiative.org/report/index.htm Mobile and Wireless - The Largest Biological Experiment Ever: http://www.newmediaexplorer.org/sepp/2006/04/20/mobile_and_wireless_largest_biological_experiment.htm Chronic Lyme could be at play here, too. I have both Lyme and ES. Join Lymenet. When to Suspect Lyme: http://www.angelfire.com/biz/romarkaraoke/whento.htm Lyme Disease - A Hidden Epidemic: http://www.freewebs.com/teenswithlyme/index.htm Lymenet: http://flash.lymenet.org/ubb/ultimatebb.phpI suffer frequently from symptoms #1,2,3,4,10 only,and they used to be so aggreviated by hunger,but that was in the beginning of this sickness,now the symptoms are chronic with me all the time,what could it be?
    omomar 9 Replies
    • February 11, 2008
    • 04:18 PM
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  • hiIm wondering if your symptoms are worst after you exert yourself eg do they seem to come in worst after, or some time after, doing things???And are you getting memory and concentration issues due to all this too??? taniaaust1: I was just wondering what your input was going to be if she had said yes to that question becuase I have most of her symptoms, and I can say yes to everything you asked. I would have messaged you, but I couldn't find a way to do that. Your input would be great. Thanks!
    ilovemusic 6 Replies
    • February 11, 2008
    • 11:53 PM
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