Discussions By Condition: I cannot get a diagnosis.

confused.....

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: iceangelfairy
  • February 19, 2008
  • 09:14 AM

Hello everyone
this is my 1st time on this forum.
I am 40 years old for the past 3 years i have suffered almost daily headaches with nausa, depression, anxiety with the occasional blackout, numbness every so often to arms/shoulders, i feel weak and lethargic.
I was referred to the neurologist after an MRI scan (3 mass liesons at the frontal lobe were discovered) i was told these were of no concern, she diagnosed me as suffering from daily chronic headaches, however my GP says it is chronic migraine, i suffer with depression and anxiety and rarely leave the house, i feel panicky and nervous when i do leave the house alone, i find even simple things like the weekly chop unbearable.
I currently take amityptiline (40mg) and citroplam (20mg) daily although the depression does feel slightly better on some days the head pain just doesnt seem to ease off.
my advice is do you think the diagnosis is correct? could the gp be missing something?

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6 Replies:

  • I'd be very depressed if I had a bad headache every day! The amytriptilene doesn't seem to be working very well for the migraines for you. And though your depression seems to be lifting, you have replaced it with an anxiety disorder. There are many other meds your GP or neurologist might try. Have you tried counseling for the agoraphobia? I think you aren't getting the help you need and it sounds like you'll have to become really pro-active. I once asked an anesthesiologist for his personal remedy for a headache... one aspirin, one tylenol, one ibuprofen chased down by some mountain dew (for the caffeine). Also a heating pad, or oddly, an ice pack might help. I had lots of tension headaches in my 30's and 40's. Are you taking any type of birth control pill. Are you pre-menopausal? If so, maybe your gynecologist can help. Have you tried scalp and neck massage or acupuncture? Does the headache start as a tight band then progress to feel like you have been hit in the back of the head with a baseball bat? That's a tension headache and the above recipe works on it. I wouldn't do this every day though.
    rad-skw 1605 Replies
    • February 19, 2008
    • 10:12 AM
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  • I'd be very depressed if I had a bad headache every day! The amytriptilene doesn't seem to be working very well for the migraines for you. And though your depression seems to be lifting, you have replaced it with an anxiety disorder. There are many other meds your GP or neurologist might try. Have you tried counseling for the agoraphobia?Hello and thanks for replyingi havent had any counselling as the GP says its all depression relatedI think you aren't getting the help you need and it sounds like you'll have to become really pro-active. I once asked an anesthesiologist for his personal remedy for a headache... one aspirin, one tylenol, one ibuprofen chased down by some mountain dew (for the caffeine). Also a heating pad, or oddly, an ice pack might help. I had lots of tension headaches in my 30's and 40's. Are you taking any type of birth control pill. Are you pre-menopausal?Im not on any birth control as ive been sterlised nor am i pre menopausal as i wondered that but my gp says im not. Have you tried scalp and neck massage or acupuncture? Does the headache start as a tight band then progress to feel like you have been hit in the back of the head with a baseball bat? That's a tension headache and the above recipe works on it. I wouldn't do this every day though No its a very painful heavy feeling mostly above my eyes,in fact most days i go back to bed to try and clear it, ive had head massages and they do help but its not something i can do on a daily basis. regards michelle
    iceangelfairy 1 Replies
    • February 19, 2008
    • 11:50 AM
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  • Hi,I also had the same symptoms with the migraines for years. Quite a few doctors told me I was depressed when I knew I wasn't until I found a specialist who bothered to check my thyroid and adrenal levels. Both of these things can cause migraines and depression. Please urge your doctor (an endocronologist is a good idea) to do detailed lab work, not the basics. Don't suffer for years like I did! Good luck.
    TeresaC 41 Replies
    • February 19, 2008
    • 00:50 PM
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  • i havent had any counselling as the GP says its all depression related umm some psychologists would tell you that anyone who has depression bad enough to be needing to take meds, should be having counselling. Counselling can sometimes be even better than meds. Depression is a very good reason to get counselling.
    taniaaust1 2267 Replies
    • February 19, 2008
    • 02:01 PM
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  • Your symptoms remind me of mine. I had daily migraines and fatigue and neuro symptoms for years. I was also told it was all from depression and was even placed on amitryptylline too (plus other antidepressants- which never got rid of the fatigue, etc...) Of course, one of the things they check when you come in with these symptoms is your thyroid hormones. Mine were always okay, so I was given constant reassurance that my gland was okay too...As it turns out, eight years, and eight neurologists later, I was finally diagnosed with a rare complication of autoimmune thyroiditis called Hashimoto's Encephalopathy. It's diagnosed by checking thyroid antibodies- to thyroglobulin and thyroperoxidase. Mine were both high, and subsequently on ultrasound my thyroid gland was found to be full of tiny nodules from the autoimmune attack... I was floored (not to mention more than a little *****d, as many doctors told me my symptoms were psychosomatic, etc).The two most common symptoms of HE are central fatigue, meaning central nervous system fatigue, and migraine-like headaches. In really bad cases, it can procede to coma, seizures, and/or psychosis, but mine just made me feel like crap all the time. I also had forgetfulness, speech problems, balance problems, and then a lot of hypothyroid type symptoms including cold hands and feet, compression neuropathies, low appetite, elevated cholesterol and triglycerides, puffy eyes, dry skin, hair loss, etc etc...I am glad that I trusted my gut and kept trying to get diagnosed. For a while I listened to my doctors and took the antidepressants and went to therapists, etc... After a while, though, it gets old having migraines every day and feeling so weak you can't walk to the mailbox without feeling tired (I used to go on 8 mile hikes and feel great afterwards). That's not normal, and I'm glad I realized that and dragged myself to all the doctors I did to get my diagnosis, as humiliating as it was.I don't know if your symptoms are from HE or not, but it might be worth looking into. Thyroid disease is very common in women, and it often strikes 20-50 year olds. HE is treated with steroids. I'm also on Levoxyl now.Not sure if this will help, but I hope it does. Best Wishes getting some kind of answers soon.
    Anonymous 42789 Replies
    • February 19, 2008
    • 10:16 PM
    • 0
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  • I have Fibromyalgia and other problems. I have a migraine everyday if I don't take Topamax. The migraines started about peri-menopause (late 40's) and my neurologist says they will probably get better after menopause, I am in my 50's now and with his recommended vit b supplement, I have decreased - by half- my Topamax dose over the years. My headaches started with severe pain and nauseafor a week, and after a brain scan showed no problem, the Topamax worked great. PS, don't give up on migraine meds, Amerge is still the only one that works for "breakthrough" migraines. Imitrex, etc. did not touch them, it is trial and error. Watch your diet. Foods and stress do trigger the headaches. You may never know the cause, but getting treatment will make you feel alot better.
    Anonymous 42789 Replies Flag this Response
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