Discussions By Condition: I cannot get a diagnosis.

concerns about my 3 yr old

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Anonymous
  • May 16, 2009
  • 07:22 PM

I am in tears worrying about my 3 year old son he has so many little things going on or that have happened I m not sure if there is something further going on or just bad conisidence. His current doc doesn't seem overly concerned about any of these things and takes more of a wait and see approach. It is making me feel like I'm a nurotic mother. He was born with hypospadias (mild), he has what I think is frey syndrome from a high forceps tramatic delivery (his doc did not investigate this)He gets a red rash down the right side (not raised) of his face from many foods which is why I think it is freys, I was pointed in this direction by another doc), he has a heart murmur, and last year developed a lipoma on his forearm, he is a very picky eater and goes through days of not eating and then through a period which seems like he can't get enough food (I had though of it as he was just going through a growth spurt).He often wakes in the night he has never slept through a night and wakes anywhere from 1-5 times, he often talks about "the itches" and asks me to scratch his back. He also often wakes in the night despratley thirsty and comes to our room with a juice box he has helped him self to,I guess he could just be thirsty some nights IDK. I have noticed that I thought his face has been swollen before A couple of times but dismissed it, a couple weeks ago he seemed sick(just not himself) his hands were definately swollen which is now gone it only lasted a day. In the past 2 weeks I have notice the facial swelling(more notciable on the left side and in the am), so I took him to the walk in clinic and she said his glands are definatley swollen and as well as his face but nothing that would be causing it ie ear, or throat .She put him on antbiotics and stressed that he has to be seen in 10 days. My husband noticed last night as well that he has a lymph node behind his ear that is swollen and has broken bld vessels over it I hadn't notice this before so the doc at the Walk in didn't see it. I am so worried that this swelling has something to do with his heart or kidney related (b/c of hypospadias) so in the 10 days he will see his regular doc and I m sure nothing further will be investigated( his reg doc was on holidays which is why we went to the WIC in the first place)...b/c the swelling will likely be gone....I have noticed this swelling before and it is something that comes and goes...I feel like if it is gone the antibotic will have had nothing to do with it I feel there is more to it than an infection. I have that feeling something is wrong. Any insight or avenues to check out would be appreciated I am at my wits end...

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  • OK- I am asking you to check all of his food labels for Sucralose and or Splenda products. I know that they are in children's products like vitamins and chewing gum and ice cream and many other non-diet products. I have finished doing extensive research about the symptoms that this products create and the severity that they can have on anyone who eats them. As does Aspartame, it is also in vitamins for children and will cause Seizures- as it did to a three year old in Splenda: Is it Safe or Not? by Dr. JS Hull. These products are very dangerous. many do not believe that they are because they were approved. However, I know forums and websites with many many testimonials that they are bad and the stories that these people suffered. I am trying to make sure that - because all of them had no clue what was wrong with the until years went by and they coincidentally or through some miracle found out that it was their artificial sweetener that was causing their symptoms- you consider this, and check it out in your food storage to throw away any and all of the Aspartame or Splenda/Sucralose products, so that you don't end up with these issues as well. if you would like to view what I am talking about I have put it all in two convenient sites. the first of four 10 min. documentarieshttp://www.youtube.com/watch?v=izzZUKDHatY&feature=channeland a site with many video links all relating to the dangers of artificial sweeteners. http://www.new.facebook.com/home.php?ref=home#/group.php?gid=60846318544
    founddog 188 Replies Flag this Response
  • I am in tears worrying about my 3 year old son he has so many little things going on or that have happened I m not sure if there is something further going on or just bad conisidence. His current doc doesn't seem overly concerned about any of these things and takes more of a wait and see approach. It is making me feel like I'm a nurotic mother. He was born with hypospadias (mild), he has what I think is frey syndrome from a high forceps tramatic delivery (his doc did not investigate this)He gets a red rash down the right side (not raised) of his face from many foods which is why I think it is freys, I was pointed in this direction by another doc), he has a heart murmur, and last year developed a lipoma on his forearm, he is a very picky eater and goes through days of not eating and then through a period which seems like he can't get enough food (I had though of it as he was just going through a growth spurt).He often wakes in the night he has never slept through a night and wakes anywhere from 1-5 times, he often talks about "the itches" and asks me to scratch his back. He also often wakes in the night despratley thirsty and comes to our room with a juice box he has helped him self to,I guess he could just be thirsty some nights IDK. I have noticed that I thought his face has been swollen before A couple of times but dismissed it, a couple weeks ago he seemed sick(just not himself) his hands were definately swollen which is now gone it only lasted a day. In the past 2 weeks I have notice the facial swelling(more notciable on the left side and in the am), so I took him to the walk in clinic and she said his glands are definatley swollen and as well as his face but nothing that would be causing it ie ear, or throat .She put him on antbiotics and stressed that he has to be seen in 10 days. My husband noticed last night as well that he has a lymph node behind his ear that is swollen and has broken bld vessels over it I hadn't notice this before so the doc at the Walk in didn't see it. I am so worried that this swelling has something to do with his heart or kidney related (b/c of hypospadias) so in the 10 days he will see his regular doc and I m sure nothing further will be investigated( his reg doc was on holidays which is why we went to the WIC in the first place)...b/c the swelling will likely be gone....I have noticed this swelling before and it is something that comes and goes...I feel like if it is gone the antibotic will have had nothing to do with it I feel there is more to it than an infection. I have that feeling something is wrong. Any insight or avenues to check out would be appreciated I am at my wits end... Mild hypospadias should not have any other major side effects. Did you take fertility drugs by chance to get pregnant? How was your pregnancy otherwise? You delivery sounds traumatic - could you please elaborate on any complications that occurred? How is your son doing with the antibiotics - has he taken a lot of antibiotics in his short lifetime? This can cause candida overload which in turn can cause a host of problems, including itchiness and food sensitivities. Does your son suffer from ear infections or sinus infections? Food allergies can cause the swelling you describe...it may not be an infection but may be inflammation due to allergies. Please post his typical diet and whether he was breast or bottle fed. Does he drink milk? What brand of juicebox does he drink? What are his favorite and least favorite foods? Lastly, how is his digestion, bowel movements and urination? Is he on any medications other than the antibiotics right now? Please make sure he is taking a good quality non dairy children's probiotic to help rebuild his intestinal flora. You can find this at any good healthfood store or online thru vitacost.com. I would suggest a non dairy probiotic just to be safe in case he has dairy intolerances. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • Thank you for your response- I did not take any fertility drugs and my pregnancy was pretty uneventful, no morning sickness, It was actually great. The only thing I can think of that was some what worrisome was that on a later u/s they said he wasn't making the breathing movements he should be....but that turned out ok. The delivery on the other hand was.....horrible he was my first so obviously I was not knowing what to expect but I swore I would never have anymore kids.....started labour early am and didn't go to hossy until pm...at about midnight i was 9cm and not progressing I had pitocin and an epidural that didn't really seem to work. At around 8 am his hr started dropping and they started preping me for a c-section....my doc passed my care over to a surgeon that was called in from out of the area. My doc was expecting him to do the c-section stat....Instead this doc had other plans he wanted to try pictocin to avoid c/s eventually the drops in h/r were increasing and not coming back up.....by 1200 noon I was rushed to the or where the doc decided he wanted to try forceps!! I was so druged up I was barely alert, they gave me a spinal and I kept saying I can't breath,b/c I couldn't, or couldn't feel it they kept telling my husband to keep me awake. The baby was still high but they got him out and found meconium, suctioned him and rushed him away. After that he was fine just a large hematoma that lasted for months and one episode where the nurses had to take him from my room and suction him.I breast fed for 6mnth.... he was a FUSSY baby never content always squrimy....I cut dairy out of my diet and then he went to soy formula and then to LACTAID milk....he has been back to regular milk for probably a year now and no noticable difference it doesn't seem to change anything either way.this winter has not been to bad for ears...but last winter it seemed to go in cycles, only well for 2wks at a time.... and then vomiting and fevers and then we'd be on antibioticsHis diet is poor I didn't ever push food on him b/c I was worried that he wasn't eating things b/c they bothered him. I thought this b/c of the red rash that he got....but a dr suggested to me that may be Frey syndrome. He will eat bread,cereal, peanut butter, cheese, yogurt, apple, bannanas, no veggies...some meat it is a battle I sneek in groud beef in to alot of things, any thing starchy he likes noodles, potatoe not much else pretty limited.His bms are regular same time everyday....they were pretty light in color for some time....but better now.....I did a 24 hr urine and he was at 207 cc I'm not sure what the min output is for a child of his age I've read 1ml/kg/hr or .5ml/kg/hr...so if its 1ml/kg/hr he's under (he's 15kg) and if it's .5 he's over by 27cc...he is doing a little better on antibiotics still swelling though, but I noted another swollen lymph node in his groin.As for the sweeteners I try not to give my kids anything "diet" but thank you for the heads up I didn't realize it was in things such as vitamins! I will become an avid label reader and avoid these items.....Thank-you so much both for your concern and suggestions...I appreciate it as I am desprate for any answers or solutions even If someone said "I think your getting worked up over nothing" or "overreacting" b/c at least I'd have some kind of relief.....in stead of worrying about "what could be"
    Anonymous 42789 Replies Flag this Response
  • I am not sure why your child has the inflammation or redness in the face but when my daughter had inflammation and redness in the face it was because she had taken acetametaphain (spelling?) which is found in some pain killer, tylenol I am guessing- it was eons ago. But she was not able to take it without reacting like that but as a teen she was able to take it. So she grew out of it. It was an allergic reaction. Not sure what yours is.
    founddog 188 Replies Flag this Response
  • I am sure you have reserahed your son's condition and I think you sound very knowledgable about his care. but in case you haven't seen this information I am sending it to you for your consideration. I also sent you how I helped my children with illness.http://www.mayoclinic.com/health/hypospadias/DS00884You may feel distressed if your son is born with hypospadias. However, hypospadias is common and doesn't cause difficulty in caring for your infant. In fact, surgery usually restores the normal appearance of your child's penis. With successful treatment of hypospadias, most males can eventually have normal adult sexual function. Hypospadias is present at birth (congenital). In many cases, the cause is unknown. Sometimes hypospadias is inherited. As the penis develops in a male fetus, certain hormones stimulate the formation of the urethra and foreskin. Hypospadias occurs when a defect occurs in the action of these hormones, causing the urethra to develop abnormally. This condition is more common in infants with a family history of hypospadias. There also may be an increased risk of hypospadias in infant males born to women of an advanced age or those who used in vitro fertilization (IVF) to conceive. The connection to IVF may be due to the mother's exposure to progesterone, a natural hormone, or to progestin, a synthetic form of progesterone, administered during the IVF process. If hypospadias is not treated, a child may have problems learning to use a toilet properly. During adulthood, untreated hypospadias can cause difficulty with sexual intercourse. Call your family doctor or pediatrician. After reviewing your child's signs and symptoms over the phone or during a physical exam, he or she may refer your son to a pediatric urologist. If your child will be seeing a pediatric urologist, you may want to check your health plan to see if it covers meeting with this specialist. It's also a good idea to be prepared for any questions your son's doctor may ask. For hypospadias, he or she might ask: Does your son's penis curve downward during erection?Have you noticed any abnormal spraying when your son urinates? (This may be difficult to distinguish in an infant.) Treatment involves surgery to reposition the urethral opening and, if necessary, straighten the shaft of the penis. What happens during surgery During surgery, a pediatric urology surgeon uses tissue grafts from the foreskin or from the inside of the mouth to reconstruct the urinary channel in the proper position, correcting the hypospadias. The surgery usually takes from 90 minutes to three hours and is done while the child is unconscious (general anesthesia). Rarely, the repair may be performed in stages, requiring two or more surgeries. When surgery is performed Surgery is best at an early age — usually between ages 3 months and 18 months. But the procedure can be completed at any age and even into adulthood. Infants should not be circumcised before the procedure because the foreskin tissue may be needed for the surgery. Complications of surgery In most cases, surgical repair results in a penis with normal or near-normal function and appearance and no future problems. However, in a small number of cases, a hole (fistula) may develop along the underside of the penis where the new urinary channel was created. This can result in urine leakage and require an additional surgery for repair. ___________________________________________________________I think this is lot to think about and I would be praying continually about what to do and that the Lord have his will. I would be asking constantly for guidance in what to do and what to say or ask the doctors and that those who will be treating him be influenced by the Spirit for greater success in resolving this issue. I sincerely, suggest boosting my own faith in situations which require this much stress. And I am going to recommend God Calling, editor AJ Russell. It is an inspirational and found in any chain bookstore or can be ordered by them to be delivered to you. It is roughly between 5 and 6 dollars depending on the soft pocket version you get. It is worth my weight in Gold if not more. It will increase your faith and help you to have peace of mind while enduring the heavy times you may have to endure ahead, just witnessing your loved one having to endure struggles. I am reading it for the sixth time, this time with my H S daughter. I hope this helps you to combat the doubts and worries brought on by this ordeal and sincerely, if you are not a christian , my deepest apologies for the suggestion, refer to your source of scriptures or sense of peace while dealing with this. As far as the other symptoms go. Too many antibiotics for "whatever" seems to be a bad idea. When my kids get sick unless they have a soaring fever that justifies stripping my kid of his own natural defenses, I would wait. Let five days pass when he is sick so his own little body has a chance to fight. And have him sitting up-lying down so ear infections do not occur and drinking lots of WATER not so much juice. It you must have something other than water then a real FRUIT juice like fresh squeezed filtered OJ so the pulp doesn't turn him off, you can sweeten it if it is too tart or sour with honey. He can also have the type of oranges made for squeezing, they are juicier and sweeter. Mix the squeezings with some water.Lots of sleep is important so read to him as much as possible when sick so he is bed ridden and able to relax and sleep if it comes over him. The redness and inflammation- these are the body trying to fight = macrophage- the signals are the symptoms you see. It is him fighting to get rid of the infection. Let him try. If after 5 days he is unable to beat it then take him for antibiotics but give his body a chance to get strong and do it for himself. Support him with cold rags (wet) on the head to bring down fever- if it is higher than 101 than use a fever reducer. If 103 and higher go to the doctors, of course. Keep him comfy and be with him and have him in bed with music, reading and the TV help. Meanwhile try to feed him, whole wheat toast with butter- no margerine, some egg, mashed banana with honey or sugar, rice and chicken soup or with noodles. Keep him on this diet so the body can fight the bug. Lots of water and cold rags on his head. Lots of attention and emotional support and distraction. He will kick the bugs alone and you can get his immune system going strong. His flora needs to be kept healthy too (antibitoics kill this ) so try to get some products that will help with that, perhaps some blueberries, raspberries,= high in ORAC and will clean him out like an antioxidant; cereals= fiber will clean toxins out of him out too; non-artificially sweetened yogurts= also help intestinal flora (read your label and avoid sucralose and aspartame, aspartic acid or phenylalanine). Antibiotics are for the real big issues not the flus and colds. They are for anything that he can't kick alone. later when he is older you can use herbal oils too to support him to fight the bugs= also making him stronger and less likely to get bugs; which is what I do. Wait until after he is six. This will pull him completely off of antibiotics for everything. I don' use them and I get everything the kids get cause I work in schools. I have used them on my kids too and they help a lot. The relieve symptoms felt by the body while it fights off bacteria/virus, fungus. Also some oils help get in there and kill them. So use both relieving and killer (anti-viral, anti-fungal, anti-microbial)This documentary will show you what I am talking about concerning antibiotics ( do not support the process of the body to combat) and herbal oils(support the process of the body to combat). Hope this helps. http://www.youtube.com/watch?v=zqxj0UfE5b0&feature=channel_pageYou say the redness and the swelling come from foods. Make written observations in a book when he eats, time, and what he eats in a journal and keep feedback about which do and which do not give him reactions. Obvsiously keep those foods that bother him away. Try many different things except shellfish and peanutbutter away from him incase they are severe for him. Also perhaps since he is highly allergic have him seen by the doc to see if he is allergic to bee stings because you will need to know about that and have a kit for immediate first aid if so. Try to give him only one food at a time while you are testing him so you can actually know what he is bothered by. Don't test while he is sick. Use a charcoal water filter to make sure your family is not consuming chlorine from the tap. It also is a substance that causes reactions in small doses and can severely poison in high doses.
    founddog 188 Replies Flag this Response
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