Discussions By Condition: I cannot get a diagnosis.

concerned mother

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Anonymous
  • August 12, 2009
  • 04:19 PM

:confused: I am VERY concerned about my 16 year old daughter, she has had abdominal pain, dizziness, diarreah, nausea, throwing up for 3 1/2 years now. Last year they took out her gall bladder. February of this year they diagnosed her with Celiac Spru and Gastro Peresus. She has been on a diet for each of these diseases and blood work from 2 weeks ago confirmed her silia has gone back to normal and she is following her diet to a T. BUT, she is still throwing up every day to every other day whether she eats or not, mostly early in the day, she even threw up while taking a shower. We even put her in cyber school this past year because she was so sick. The gastroenterologist has given up and wants her to go to another specialist. Is there anyone out there that can help us, PLEASE?

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  • :confused: I am VERY concerned about my 16 year old daughter, she has had abdominal pain, dizziness, diarreah, nausea, throwing up for 3 1/2 years now. Last year they took out her gall bladder. February of this year they diagnosed her with Celiac Spru and Gastro Peresus. She has been on a diet for each of these diseases and blood work from 2 weeks ago confirmed her silia has gone back to normal and she is following her diet to a T. BUT, she is still throwing up every day to every other day whether she eats or not, mostly early in the day, she even threw up while taking a shower. We even put her in cyber school this past year because she was so sick. The gastroenterologist has given up and wants her to go to another specialist. Is there anyone out there that can help us, PLEASE? im glad to hear that her specialist hasnt completely given up on helping and is going to refer her to another specialist. There are so many different things which cause those general symptoms so it could be anything. From low cortisol levels to a host of other things. Im wondering if she is on any meds??? many meds could cause those symptoms. Be aware also there is also gluten in some meds and supplements. Her dizziness and or nausea.. is it worst in hot weather? is it worst when she's standing or upright? Does she have other symptoms that you havent mentioned eg sleep issues, frequent headaches (other symptoms that she is still getting when following a celiac diet).
    taniaaust1 2267 Replies
    • August 13, 2009
    • 07:43 AM
    • 0
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  • im glad to hear that her specialist hasnt completely given up on helping and is going to refer her to another specialist. There are so many different things which cause those general symptoms so it could be anything. From low cortisol levels to a host of other things. Im wondering if she is on any meds??? many meds could cause those symptoms. Be aware also there is also gluten in some meds and supplements. Her dizziness and or nausea.. is it worst in hot weather? is it worst when she's standing or upright? Does she have other symptoms that you havent mentioned eg sleep issues, frequent headaches (other symptoms that she is still getting when following a celiac diet). :confused: Thank you so much for replying. She is on several meds, including one for constant headaches, the doctor asked her to make a diary of when she gets the headaches, we said it'd be easier to write down when she doesn't. My daughter said she doesn't EVER remember when she didn't have a headache. She's had them as far as she can remember, 'toddler' or even earlier. What's weird, is there is some relief when she goes through a tunnel. We did check with the pharmacy if any of the meds have gluten in it and they said none do. She also has trouble going to sleep, I won't let her have chocolate, ice cream, or caffiene after 5pm at the latest, as I know these make her climb the walls. I am diabetic and have M.S. so I look for these symptoms as well and check her blood sugar every once in a while, she's good in that respect. It might sound like we are hypochondriacs or something, but she doesn't complain of anything unless I notice something and ask if she's all right. No, it's not worse in hot weather, we are in a temp controlled environment 99% of the time, especially with my MS.Concerned mother
    Anonymous 42789 Replies
    • August 13, 2009
    • 03:38 PM
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  • :confused: Thank you for your reply, that's very interesting, except we live in such a remote area, I think that would be impossible. We have Amish all around us (no electric what so ever). I just gave my daughter a cell phone a week ago because she will be getting her drivers license in a couple of weeks. Good try though!Concerned mother
    Anonymous 42789 Replies
    • August 13, 2009
    • 03:46 PM
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