Discussions By Condition: I cannot get a diagnosis.

Concerned about my husband

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • July 8, 2009
  • 01:47 PM

Okay, so my husband is a very healthy 21 year old man with the earlier stages of Hypoglycemia. He has a low blood pressure, low cholesterol, an abnormally high metabolism and a good work ethic. He has a mild case of Arthritis however because of skateboarding in high school,

This is the problem, years before we met he realized that he no longer had feeling in his right arm all the way back to his shoulder and the right portion of his back. Then, he developed soon afterward tremors in both hands.

When we first started dating, he informed that he had 6 MRIs, seen twelve specialist, been tested for MS and Parkinsons, only for them all to come back negative, with no pinched nerves or dislocated disk.

He concluded he was going to just live with it.

Well, now his tremors have become worse, causing a spasm in his arms at once and also causing his head to shake. They haven't done it for a few weeks and he keeps saying he doesn't want to be tested any more. Though I know he is embarrassed by this, becoming worried in public that people are staring.

If I could at least have an idea on what he may have, allowing him not to go through so many test, this may be easier on the both of us...

Does this sound familiar to anyone?

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4 Replies:

  • Okay, regarding your comments about "early stages of hypoglycemia, low blood pressure, low cholesterol and an abnormally high metabolism," are these comments from his documented medical records? If so, please provide me with greater detail regarding these findings, first making certain that you have permission from your husband to post the information anonymously. True hypoglycemia is quite rare, but does occur under certain circumstances. Please provide me with the facts underlying the diagnosis of hypoglycemia. I'd also like to know the average readings which support the hypotension or low blood pressure, as well as his cholesterol fractionation. Tell me what his VLDL, LDL, and HDL values are if they are available and if indeed he has hypocholesterolemia, was a test performed to determine his testosterone levels? Lastly, what characteristics and supporting lab data are being used to establish an abnormally high metabolism? With regard to the tremors, please try to describe them in more detail; does the tremor in his hands appear like he is rolling a pill back and forth between his thumb and index finger in a more coarse manner, or do the hands appear to have a fine tremor characteristic wherein the entire hand is involved? If he uses his arms, does the tremor become worse on exertion? If he has an alcoholic beverage, do the tremors seem to be lessened to a great extent? Is there any aspect of the tremor that can be detected in his voice? Regarding the tremor of the neck, does it cause his head to constantly demonstrate a yes sort of nod or a no type of movement? And lastly, are there any signs that the arms suddenly flail outward or ***k wildly in a single episode as though he is unable to control the movement? I have to tell you that even for early-onset Parkinson's disease, he's a good bit too young and it would represent a rather remarkable case if actually present. His symptoms are unlike MS as well. Most prominent is your statement that the tremors "have become worse" but yet have also subsided for the past several weeks, unless I misunderstood. If the paraesthesia were limited to one arm with referred symptoms to the scapula, it would suggest nerve entrapment, particularly if the limb appears a bit smaller in size with signs of atrophy and there is a loss of physical strength in the affected arm as well. If both arms and the neck are involved, this would be somewhat less likely. If you can provide some detailed answers to my questions I may be able to offer better direction. Best regards, J Cottle, MD
    JCottleMD 580 Replies Flag this Response
  • Yes my husband does use wireless devices, however, he did not really use them until about 3 years ago and he had these tremors 3 years prior to meeting me.Those comments are ones that while seeing the doctors with him over the past years they have repeated continuously, with the exception of the hypoglycemia, which he informed me of when we first started dating, which he says he was diagnosed with in 2004. The day they diagnosed him, he had eaten all day and then collapsed at school and had a type of diabetic fit. They did not feel because his blood sugar was normal, that it was diabetes, however. Though my husband now is eating a diabetic diet because he is afraid it may have developed into that. At one point, they placed him on a medication that was supposed to help the tremors, which was blood pressure and it caused him to collapsed and after testing they realized he had a quite low blood pressure, very close to where it is dangerously low. When he has done fitness test, his body fat level is under the normal for his age and size, he finally got up to a healthy weight range for his height, however, he eats at least 6 meals a day and he can't keep any weight on, which after they tested his metabolism when we had gone to a specialist who worked in Fitness and chiropractor, claiming they could fix his tremors ,in the end, their test claimed his inability to hold on weight longer is because his metabolism was over average.Mind you, however, he walks all day as a gas-meter reader so he is very active.I will have to double check his test levels with the insurance. He was very upset after going through majority of these test he usually threw away the information because he was tired of dealing with it.I know his testosterone levels were normal, he just told me that one.His tremors are more of a soft movement of shaking like the rolling. At times it is not noticeable at all until he tries to eat something. The tremors do not change as he arms move, they stay exactly the same. When he does have an alcoholic beverage, his tremors slow down in pace, however, they continue to shake. No aspects of it can be heard in his voice. When the head shakes it does the no motion. His left arm jerks wildly several times a day and he can't stop it until it stops.I was mistaken on it subsiding in the past couple of weeks, he informed it that it happens at least 3 - 4 times a day while he's working. His hand clenches then shakes wildly. Sometimes ending for a couple hours, other times its one fit in his arm after another.With his arm having no feeling, his biological father does not have feelings in both hands. Both of my husband's arms are the same size and his doctor has done a ton of nerve test, including the needles into the arms, MRIs and CAT scans. I hope this helps, it was easier now that he wanted to help give me information I wasn't sure about.
    Anonymous 42,789 Replies Flag this Response
  • corrections from earlier:Alcohol does NOT effect the tremors, they stay the same.Also, in case I forgot to mention this, both arms are the same size.
    Anonymous 42,789 Replies Flag this Response
  • Anyone have an idea?
    Anonymous 42,789 Replies Flag this Response
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