Discussions By Condition: I cannot get a diagnosis.

Cold case in the medical feild?

Posted In: I cannot get a diagnosis. 66 Replies
  • Posted By: GivenUp
  • March 9, 2008
  • 08:33 PM

So about two years ago my husband got the flu. He was sick in bed for TWO WEEKS i was very worried because all the flu's I have had went away in about a week.

So i took him to the hospital where he was given antibiotics. Then in about two days the flu went away and we were both happy. The next day he went to work and there was a terrible accident, he works as a construction worker and one of the people there had a 500 pound steel bar fall on his leg. So i got a call saying that my husband was laughing out of control at what had happened!

I couldn't believe it! so i picked him up and he was laughing like there was always something funny happening. I brought him to the hospital and they asked what happened, and they said he had something called euphoria? or something like that. They said its like a good mood or it can be caused by good events in the persons life (like that flu being cured because he was VERY sick) but i wondered why he would be in this "good mood" after seeing such a bad accident happen.

So i brought him home and this laughing thing went away within the day. I didn't think to much or it. now something els happened and i was really scared. His hand did this thing where his fingers got all distorted AGAIN i brought him to the hospital. MRI was done and nothing was wrong. They said it was most likely a muscle spasm. Again i brought him home.

It went away within the day and i found this odd because he was having all these weird things happening then POOF they are gone quicker than they started. Now a new serious symptom showed up

He went blind! and it switched off and on for a few hours, he would go blind then he could see but the colors weren't right. He saw blue as red white as black ect so again i brought him to the hospital and they did another MRI and eye test, they found NO REASON for the blindness. But they did something right for once, they kept him in the hospital over night. The next morning i came back and picked him up and he was moaning about pain in his head arms legs ect. he pretty much had pain everywhere. I brought him home and took his temp, it was 103.90 so i put cold wash cloths on his forehead but they didn't help.. and as the day went on the pain throughout his body got MUCH worse. Im pretty sure you could hear him screaming from down the road. So again... I brought him to the hospital they gave him morphine which helped but he was still in pain. I found that odd because morphine is one powerful pain killer.

They kept him there over night and when i got back the next day they were asking him how bad the pain is and he said 10/10, it was so bad that it looked like a continual seizure! he was screaming in pain and by now the doctors were doing tons of tests but could not find anything. The next day when i got back they gave me a consent form and i asked what it was about. They wanted to put him in a chemically induced coma or the pain would kill him. they said he had something called hyperalgesia and that whatever he had was in the pain center of his brain. Well I didn't have a choice so i let them do it.

And he never woke up from it. They did test after test autopsy you name it they did it. But no answers.

I am still looking for an answer, I need to know what happened. Thats the only way I will feel at ease.

I didn't give enough symptoms to go on so i have put a list of ALL his symptoms together. The symptoms in the paragraphs above were the most serious but he had others:

Vomitting
Dizziness
Extreme pain
Loss of sight
Euphoria
Hyperalgesia
High fever
Shortness of breath

and any other symptoms i missed will be found in the above paragraphs.

does anybody know what this is!?

also incase this is of value, all the things he did the days before the flu:

we took a vacation, we went swimming ate tacos, fish (cooked), we went fishing and then more swimming, bike riding then we checked into a motel for a few days.


thank you in advance for any help at all

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66 Replies:

  • OOPS im sorry. please go to the other one i made, something happened and it made two threads and it wont let me delete one of them
    GivenUp 135 Replies Flag this Response
  • Where did you go on vacation?How old was your husband? So about two years ago my husband got the flu. He was sick in bed for TWO WEEKS i was very worried because all the flu's I have had went away in about a week. So i took him to the hospital where he was given antibiotics. Then in about two days the flu went away and we were both happy. The next day he went to work and there was a terrible accident, he works as a construction worker and one of the people there had a 500 pound steel bar fall on his leg. So i got a call saying that my husband was laughing out of control at what had happened! I couldn't believe it! so i picked him up and he was laughing like there was always something funny happening. I brought him to the hospital and they asked what happened, and they said he had something called euphoria? or something like that. They said its like a good mood or it can be caused by good events in the persons life (like that flu being cured because he was VERY sick) but i wondered why he would be in this "good mood" after seeing such a bad accident happen. So i brought him home and this laughing thing went away within the day. I didn't think to much or it. now something els happened and i was really scared. His hand did this thing where his fingers got all distorted AGAIN i brought him to the hospital. MRI was done and nothing was wrong. They said it was most likely a muscle spasm. Again i brought him home. It went away within the day and i found this odd because he was having all these weird things happening then POOF they are gone quicker than they started. Now a new serious symptom showed up He went blind! and it switched off and on for a few hours, he would go blind then he could see but the colors weren't right. He saw blue as red white as black ect so again i brought him to the hospital and they did another MRI and eye test, they found NO REASON for the blindness. But they did something right for once, they kept him in the hospital over night. The next morning i came back and picked him up and he was moaning about pain in his head arms legs ect. he pretty much had pain everywhere. I brought him home and took his temp, it was 103.90 so i put cold wash cloths on his forehead but they didn't help.. and as the day went on the pain throughout his body got MUCH worse. Im pretty sure you could hear him screaming from down the road. So again... I brought him to the hospital they gave him morphine which helped but he was still in pain. I found that odd because morphine is one powerful pain killer. They kept him there over night and when i got back the next day they were asking him how bad the pain is and he said 10/10, it was so bad that it looked like a continual seizure! he was screaming in pain and by now the doctors were doing tons of tests but could not find anything. The next day when i got back they gave me a consent form and i asked what it was about. They wanted to put him in a chemically induced coma or the pain would kill him. they said he had something called hyperalgesia and that whatever he had was in the pain center of his brain. Well I didn't have a choice so i let them do it. And he never woke up from it. They did test after test autopsy you name it they did it. But no answers. I am still looking for an answer, I need to know what happened. Thats the only way I will feel at ease. I didn't give enough symptoms to go on so i have put a list of ALL his symptoms together. The symptoms in the paragraphs above were the most serious but he had others: VomittingDizzinessExtreme painLoss of sightEuphoriaHyperalgesiaHigh feverShortness of breath and any other symptoms i missed will be found in the above paragraphs. does anybody know what this is!? also incase this is of value, all the things he did the days before the flu: we took a vacation, we went swimming ate tacos, fish (cooked), we went fishing and then more swimming, bike riding then we checked into a motel for a few days. thank you in advance for any help at all
    TaylorDeelwithit 382 Replies Flag this Response
  • That's why they usually moderate the new members... don't feel bad though. You weren't the only one.;) They moderate new members to keep them from doing newbie errors.:D OOPS im sorry. please go to the other one i made, something happened and it made two threads and it wont let me delete one of them
    TaylorDeelwithit 382 Replies Flag this Response
  • Where did you go on vacation?How old was your husband? he was 24, and we couldn't go far because he was doing some project at work, so we went to lake simcoe which is about a 1 hour drive from where we lived. I like to call it a vacation but really its not. also the motel was just on the way home, we stopped there and drove to the hospital when needed. and never mind about the 2nd post i made in here, we will post in this one.
    GivenUp 135 Replies Flag this Response
  • Something neurological/ brain . Infection in brain? (including parasites) or something do with the circulation in the brain ; poisoning; tumors You are right.It seems quite a mystery. So young. he was 24, and we couldn't go far because he was doing some project at work, so we went to lake simcoe which is about a 1 hour drive from where we lived. I like to call it a vacation but really its not. also the motel was just on the way home, we stopped there and drove to the hospital when needed. and never mind about the 2nd post i made in here, we will post in this one.
    TaylorDeelwithit 382 Replies Flag this Response
  • What medications had he been on?Did he take any drugs? I am leaning towards an infection of some sort ... but Any hx of previous hx of health problems? he was 24, and we couldn't go far because he was doing some project at work, so we went to lake simcoe which is about a 1 hour drive from where we lived. I like to call it a vacation but really its not. also the motel was just on the way home, we stopped there and drove to the hospital when needed. and never mind about the 2nd post i made in here, we will post in this one.
    TaylorDeelwithit 382 Replies Flag this Response
  • Hyperalgesia:http://en.wikipedia.org/wiki/Hyperalgesia So about two years ago my husband got the flu. He was sick in bed for TWO WEEKS i was very worried because all the flu's I have had went away in about a week. So i took him to the hospital where he was given antibiotics. Then in about two days the flu went away and we were both happy. The next day he went to work and there was a terrible accident, he works as a construction worker and one of the people there had a 500 pound steel bar fall on his leg. So i got a call saying that my husband was laughing out of control at what had happened! I couldn't believe it! so i picked him up and he was laughing like there was always something funny happening. I brought him to the hospital and they asked what happened, and they said he had something called euphoria? or something like that. They said its like a good mood or it can be caused by good events in the persons life (like that flu being cured because he was VERY sick) but i wondered why he would be in this "good mood" after seeing such a bad accident happen. So i brought him home and this laughing thing went away within the day. I didn't think to much or it. now something els happened and i was really scared. His hand did this thing where his fingers got all distorted AGAIN i brought him to the hospital. MRI was done and nothing was wrong. They said it was most likely a muscle spasm. Again i brought him home. It went away within the day and i found this odd because he was having all these weird things happening then POOF they are gone quicker than they started. Now a new serious symptom showed up He went blind! and it switched off and on for a few hours, he would go blind then he could see but the colors weren't right. He saw blue as red white as black ect so again i brought him to the hospital and they did another MRI and eye test, they found NO REASON for the blindness. But they did something right for once, they kept him in the hospital over night. The next morning i came back and picked him up and he was moaning about pain in his head arms legs ect. he pretty much had pain everywhere. I brought him home and took his temp, it was 103.90 so i put cold wash cloths on his forehead but they didn't help.. and as the day went on the pain throughout his body got MUCH worse. Im pretty sure you could hear him screaming from down the road. So again... I brought him to the hospital they gave him morphine which helped but he was still in pain. I found that odd because morphine is one powerful pain killer. They kept him there over night and when i got back the next day they were asking him how bad the pain is and he said 10/10, it was so bad that it looked like a continual seizure! he was screaming in pain and by now the doctors were doing tons of tests but could not find anything. The next day when i got back they gave me a consent form and i asked what it was about. They wanted to put him in a chemically induced coma or the pain would kill him. they said he had something called hyperalgesia and that whatever he had was in the pain center of his brain. Well I didn't have a choice so i let them do it. And he never woke up from it. They did test after test autopsy you name it they did it. But no answers. I am still looking for an answer, I need to know what happened. Thats the only way I will feel at ease. I didn't give enough symptoms to go on so i have put a list of ALL his symptoms together. The symptoms in the paragraphs above were the most serious but he had others: VomittingDizzinessExtreme painLoss of sightEuphoriaHyperalgesiaHigh feverShortness of breath and any other symptoms i missed will be found in the above paragraphs. does anybody know what this is!? also incase this is of value, all the things he did the days before the flu: we took a vacation, we went swimming ate tacos, fish (cooked), we went fishing and then more swimming, bike riding then we checked into a motel for a few days. thank you in advance for any help at all
    TaylorDeelwithit 382 Replies Flag this Response
  • What medications had he been on?Did he take any drugs? I am leaning towards an infection of some sort ... but Any hx of previous hx of health problems? Nope, he was only on lorazepam for anxiety and to help him get to sleep. and.... we only smoked pot like once. No history of health problems. tumors were ruled out because he had at least 3 MRI's they ruled out Hyperalgesia (dont remember how) they also ruled out listeria (also i dont remember what test they did to rule this out) and many other parasites and brain infections. i will go back and read medical history to see if i forgot about anything that showed up on the mri ect. and i will post with results
    GivenUp 135 Replies Flag this Response
  • They didn't give him antibiotics for flu...but maybe for a secondary infection? I wonder if he could have had a parasite infection like a worm , amoeba, or had encephilitis, meningitis etc. So about two years ago my husband got the flu. He was sick in bed for TWO WEEKS i was very worried because all the flu's I have had went away in about a week. So i took him to the hospital where he was given antibiotics. Then in about two days the flu went away and we were both happy. The next day he went to work and there was a terrible accident, he works as a construction worker and one of the people there had a 500 pound steel bar fall on his leg. So i got a call saying that my husband was laughing out of control at what had happened! I couldn't believe it! so i picked him up and he was laughing like there was always something funny happening. I brought him to the hospital and they asked what happened, and they said he had something called euphoria? or something like that. They said its like a good mood or it can be caused by good events in the persons life (like that flu being cured because he was VERY sick) but i wondered why he would be in this "good mood" after seeing such a bad accident happen. So i brought him home and this laughing thing went away within the day. I didn't think to much or it. now something els happened and i was really scared. His hand did this thing where his fingers got all distorted AGAIN i brought him to the hospital. MRI was done and nothing was wrong. They said it was most likely a muscle spasm. Again i brought him home. It went away within the day and i found this odd because he was having all these weird things happening then POOF they are gone quicker than they started. Now a new serious symptom showed up He went blind! and it switched off and on for a few hours, he would go blind then he could see but the colors weren't right. He saw blue as red white as black ect so again i brought him to the hospital and they did another MRI and eye test, they found NO REASON for the blindness. But they did something right for once, they kept him in the hospital over night. The next morning i came back and picked him up and he was moaning about pain in his head arms legs ect. he pretty much had pain everywhere. I brought him home and took his temp, it was 103.90 so i put cold wash cloths on his forehead but they didn't help.. and as the day went on the pain throughout his body got MUCH worse. Im pretty sure you could hear him screaming from down the road. So again... I brought him to the hospital they gave him morphine which helped but he was still in pain. I found that odd because morphine is one powerful pain killer. They kept him there over night and when i got back the next day they were asking him how bad the pain is and he said 10/10, it was so bad that it looked like a continual seizure! he was screaming in pain and by now the doctors were doing tons of tests but could not find anything. The next day when i got back they gave me a consent form and i asked what it was about. They wanted to put him in a chemically induced coma or the pain would kill him. they said he had something called hyperalgesia and that whatever he had was in the pain center of his brain. Well I didn't have a choice so i let them do it. And he never woke up from it. They did test after test autopsy you name it they did it. But no answers. I am still looking for an answer, I need to know what happened. Thats the only way I will feel at ease. I didn't give enough symptoms to go on so i have put a list of ALL his symptoms together. The symptoms in the paragraphs above were the most serious but he had others: VomittingDizzinessExtreme painLoss of sightEuphoriaHyperalgesiaHigh feverShortness of breath and any other symptoms i missed will be found in the above paragraphs. does anybody know what this is!? also incase this is of value, all the things he did the days before the flu: we took a vacation, we went swimming ate tacos, fish (cooked), we went fishing and then more swimming, bike riding then we checked into a motel for a few days. thank you in advance for any help at all
    TaylorDeelwithit 382 Replies Flag this Response
  • They didn't give him antibiotics for flu...but maybe for a secondary infection? I wonder if he could have had a parasite infection like a worm , amoeba, or had encephilitis, meningitis etc. hmm... i'll look into these, thanks :)
    GivenUp 135 Replies Flag this Response
  • Nope, he was only on lorazepam for anxiety and to help him get to sleep. and.... we only smoked pot like once. No history of health problems. tumors were ruled out because he had at least 3 MRI's they ruled out Hyperalgesia (dont remember how) they ruled out listeria (also i dont remember what test they did to rule this out) and many other parasites and brain infections. i will go back and read medical history to see if i forgot about anything that showed up on the mri ect. and i will post with results edit: OOPS meant to say they SAID he had hyperalgesia, or something like that. really i dont know... they said it was occuring in the pain center of the brain. lol i know nothing about anything medical. oh and i am still looking through medical records.
    GivenUp 135 Replies Flag this Response
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  • Nope, he was only on lorazepam for anxiety and to help him get to sleep. and.... we only smoked pot like once. No history of health problems. tumors were ruled out because he had at least 3 MRI's they ruled out listeria (also i dont remember what test they did to rule this out) and many other parasites and brain infections. i will go back and read medical history to see if i forgot about anything that showed up on the mri ect. and i will post with results sorry i had to fix this, they SAID it was hyperalgesia. but for some reason i thought they didn't :confused: anyway its fixed now. also i am still going hrough medical records but will post back with findings ASAP
    GivenUp 135 Replies Flag this Response
  • First of all, I am so sorry for your loss. You mentioned he WAS given antibiotics initially - before he had the "euphoria" symptoms. IT IS VERY IMPORTANT TO KNOW WHAT WAS THE ANTIBIOTIC HE TOOK!Please do try to remember, if you can find out it would be very helpful. The euphoria could very well be a side effect of the antibiotic...please post if you can remember what he took... DOM
    acuann 3080 Replies Flag this Response
  • Cryptococcus Neoformans- From pigeon poop,Just like the "House" episode.http://darwin.citysearch.com.au/tv/viewContent/1119945819575/1137412530994Hope this helps, sorry for your loss. Regards.
    TerryG 120 Replies Flag this Response
  • First of all, I am so sorry for your loss. You mentioned he WAS given antibiotics initially - before he had the "euphoria" symptoms. IT IS VERY IMPORTANT TO KNOW WHAT WAS THE ANTIBIOTIC HE TOOK!Please do try to remember, if you can find out it would be very helpful. The euphoria could very well be a side effect of the antibiotic...please post if you can remember what he took... DOM well i dotn remember, but i should know after getting through all the medical records :) Cryptococcus Neoformans- From pigeon poop,Just like the "House" episode.http://darwin.citysearch.com.au/tv/viewContent/1119945819575/1137412530994Hope this helps, sorry for your loss. Regards. i don't know if thats possible. because were we live we have not seen a pigeon in.. well forever. but could it be caused by other bird poo? still seems unlikely EDIT: also i googled Cryptococcus Neoformans and couldn't find much, but why do you think its "Cryptococcus Neoformans"? i read something saying its a type of fungus. wouldn't a fungus be easy to find? hmm also i was wondering is another autopsy possible after two years? all i want them to do is keep testing the brain or do whatever they need to do to figure out whats wrong. im considering this because i was not able to afford a funeral (health insurance didn't cover it for some reason, there was a certain type of insurance you could get but i didn't have it) or do they dispose of the body on their own? if i cant find anything in the medical records then a second autopsy is the only hope for an answer
    GivenUp 135 Replies Flag this Response
  • Nope, he was only on lorazepam for anxiety and to help him get to sleep. and.... we only smoked pot like once. No history of health problems.Hmmm ... Lorazepam for anxiety and to help him get to sleep. Did he have an undiagnosed sleep disorder?Also there could have been an interaction between the antibiotic and the Lorazepam. Drug companies don't know ALL the reactions of each drug and don't know what combinations can cause.Case in point, I took a new drug several years ago, an antibiotic, with another cold remedy drug prescribed by my doctor. I started feeling very strange and called my doctor she told me to stop the antibiotic immediately. About three months later, the drug company had to come out with a red letter warning for that antibiotic telling consumers, doctors, and pharmacies to NOT prescribe the two together (the two which I had been prescribed together).
    Anonymous 42789 Replies Flag this Response
  • http://www.learnmem.org/cgi/content/full/6/3/331?ck=nckInteresting medical article on inflammation causing a long-term hyperexcitability in the nociceptive Sensory Neurons of AplysiaThe article begins "Nerve injury, tissue damage, and inflammation all cause hyperalgesia. A factor contributing to this increased sensitivity is a long-term (>24 hr) hyperexcitability in the sensory neurons that mediate the responses."
    Anonymous 42789 Replies Flag this Response
  • Hmmm ... Lorazepam for anxiety and to help him get to sleep. Did he have an undiagnosed sleep disorder? Also there could have been an interaction between the antibiotic and the Lorazepam. Drug companies don't know ALL the reactions of each drug and don't know what combinations can cause. Case in point, I took a new drug several years ago, an antibiotic, with another cold remedy drug prescribed by my doctor. I started feeling very strange and called my doctor she told me to stop the antibiotic immediately. About three months later, the drug company had to come out with a red letter warning for that antibiotic telling consumers, doctors, and pharmacies to NOT prescribe the two together (the two which I had been prescribed together). hmm maybe he did have a sleep disorder, he always had trouble sleeping for ex; he would get up almsot every night to get a glass of water or to eat something in the middle of the night http://www.learnmem.org/cgi/content/full/6/3/331?ck=nck Interesting medical article on inflammation causing a long-term hyperexcitability in the nociceptive Sensory Neurons of Aplysia The article begins "Nerve injury, tissue damage, and inflammation all cause hyperalgesia. A factor contributing to this increased sensitivity is a long-term (>24 hr) hyperexcitability in the sensory neurons that mediate the responses." thank you very much! i will read that now :) looks interesting and i think thats what caused the hyperalgesia. also i was wondering if i could get my family doctor or the doctor(s) that had my husbands case, to give me the MRI results and blood test results? i know i can find that in the medical records but i want to look at the MRI for myself or have a doctor look over it because i know somethings not right :mad: also i was not able to finish going through his medical records because i fell asleep while doing it. so i guess ill go do that now. anyway time to go play in piles of paper :D thank you all for the suggestions (more suggestions welcome :D)
    GivenUp 135 Replies Flag this Response
  • ok i found something! MRI results: (Written): "Three areas of the brain appear "foggy" (not exact words but i have moved on to other medical records while typing this, but it did say FOGGY) WHAT THE ***l DOES THAT MEAN :mad: :confused: :mad: should i be mad? is that a problem? also they found evidence of inflamation. AND i wasn't told :mad: can i sue? i am very angry right now, but im not going to get ahead of myself so i NEED to know if that is a problem? or could a slight move while he was taking the MRI cause that? and what does the inflamation mean? also i wanna know if its possible to VEIW the MRI scan thing and what ever other tests hes had done. thanks in advance
    GivenUp 135 Replies Flag this Response
  • While on vacation did he go swimming in or around lake simcoe or pryor to getting sick?
    TerryG 120 Replies Flag this Response
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