Discussions By Condition: I cannot get a diagnosis.


Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • March 16, 2011
  • 04:52 PM

I'm always feeling cold. I have to keep my house at 79 degrees (F) and even then I'm under a blanket! My doctor has run CBC, Chem panel, ANA, TSH, T4, and celiac blood tests; thyroid iodine uptake; thyroid ultrasound; EKG; all the tests come back normal, except a barely positive Lupus test (so low I almost wasn't diagnosed and don't have symptoms). We thought maybe it was Raynaud's but it's all of me that's cold, not just my extremeties. My actual body temperature is 97.6 (F) and it doesn't change. Even when I'm very sick, I rarely get a raised temperature. I did not lose or gain weight recently. I'm too young for menopause (28). I take a multi-vitamin daily, as well as extra Vitamin D (we don't see a lot of sun here).

The problem is, I have skin problems that prevent me from layering up at work as much as I like. I can't wear long-johns or tight undershirts because I break out in a rash (it doesn't matter what the fabric is made out of and I use a dye and perfume free detergent. Also, it's not the type you get with Lupus). I can't move to a place that's hot because I get heat stroke easy (go figure) but it's easier for me to cool down than heat up (an ice pack to the top of my head is all I need). I consume at least 2,500 calories a day and at least 6 cups of hot chocolate or hot tea (caffeinated and noncaffenated). I don't drink coffee because it gives me stomach problems. If I drink something cold I get colder but the opposite doesn't seem to be true.

I have a space heater and blanket at work, but those only help the areas they are touching/blowing on, and those areas end up getting too hot! The only time I'm not cold is if I'm exercising, and even mild exercise (such as washing dishes) makes me overheated. If If anyone has any ideas or suggestions I would appreciate it.

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