Discussions By Condition: I cannot get a diagnosis.

Cola colored/black urine

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Anonymous
  • January 30, 2010
  • 02:18 AM

41 YRO F
Long history of uti/kidney infections
Multiple kidney stones
Multiple bi-lateral kidney cysts(before the age of 40)
Up to 500+ blood in urine for years both micro/macro(without presence of infection)
Protein in urine 100+ daily
Family history
Polycystic Kidney Disease
Alport's Syndrome

As of 6 months ago:
Brown/black cola/tea colored urine lasting 7 to 30 days longest period of semi-clear urine 13 days. Started out darkest in the AM and would clear during the day, to staying dark all day.
Metallic taste
Headaches(migraines)
Leg cramps
Arm pain(feeling of someone ripping my arms off)
Severe itchy skin
Crave salt
Weight loss 10 lbs(5'4 99 lbs)
Excrutiating pain underneath my left shoulder blade
Acute abdominal spasms(feel like charley horses)
Hoarse voice
Burning/tingling sensation mostly head/face area
Excrutiating kidney pain(constant kidney pain)
Severe fatigue
Jaundice
Abnormal cycles
I have had 1 cbc 6 months ago - was told all is well
1 CT - showing multiple bilateral cysts and 1 6 mm stone
I have had many stones- never had any of these symptoms before.
I went to ER (almost 2 months ago)at a very reputable hospital when I was up north visiting for the holidays, NO KIDNEY STONE!
I purchased urine test strips with 10 readings
Blood in urine off the stick theres so much blood (hemoglobin)
Protein 30+ everyday
no other readings test positive.
I was told my liver is 100%
I am not a drinker nor a drug user.
I won't take any meds even for the pain- I will occasionally take an excedrin.
About once a week I get the severe ab spasms (located upper ab across the front from rib to rib)
I had blood work done up north and had them mailed to GP down south, I am still waiting to call my GP because I am caught in the middle of not wanting to know and being disgusted if they should tell me that all is well- in whose world?
Please let me know if anyone out there in it's all in your head land has had or has these symptoms. I would love to hear from ya! (I DO NOT have hepatitis or hiv).
Thanks so much
I feel what ur going thru
Hip

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3 Replies:

  • Maybe look into Leptospirosis/severe (Weils) type.You are describing kidney and liver issues- I hope you are on top of those. Many symptoms you describe can be from those 2 organs being damaged.Good luck to you and all the best
    Med Student 64 Replies
    • January 31, 2010
    • 05:20 AM
    • 0
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  • Maybe look into Leptospirosis/severe (Weils) type.You are describing kidney and liver issues- I hope you are on top of those. Many symptoms you describe can be from those 2 organs being damaged.Good luck to you and all the bestMay I ask why you suggested this disease/syndrome? Do you have first hand knowledge of anyone who has had it? At the onset my illness I had 2 kidney infections(what I was told, I didn't think they were because it didn't feel like a kidney infection) a month later I had 8 days of severe diarrhea, I thought I had food poisoning from eating contaminated lettuce I even phone the co. about the situation. However; I may have had a temperature I do not recall having a fever of any significance.Please reply with the answers to my questions , it is very important to me.Thank you
    Anonymous 42789 Replies
    • January 31, 2010
    • 01:42 PM
    • 0
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  • May I ask why you suggested this disease/syndrome? Do you have first hand knowledge of anyone who has had it? At the onset my illness I had 2 kidney infections(what I was told, I didn't think they were because it didn't feel like a kidney infection) a month later I had 8 days of severe diarrhea, I thought I had food poisoning from eating contaminated lettuce I even phone the co. about the situation. However; I may have had a temperature I do not recall having a fever of any significance.Please reply with the answers to my questions , it is very important to me.Thank youNo, I have no first hand knowledge of this condition, only came up as a possibility. Maybe do 'google' search on it to see if matches up.Your bout of diarrhea doesn't sound related to kidney, as kidney is related to urine formation- not stool.I would suggest a kidney detox (sounds severe- but what you describe is severe, too) Herbdoc.com has a ready-made kit called 'kidney detox' which I do have experience with. Those I had take it reported only positive results. (one dissolved what was thought to be stones- after 5 days...no pain.) :)Good luck to you.
    Med Student 64 Replies
    • February 1, 2010
    • 01:01 AM
    • 0
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