I am an 18 year old male with a bunch of obscure things going on. I'm just gonna get straight to the area which with i'm most concerned about and NEED answers. well i've been suffering for five years and it all began with headaches. I have been diagnosed with POTS, a connective tissue disorder(non-specified) sleep apnea, i've had a vp shunt put in for increased spinal fluid pressure, and I've had a spinal cord detethering surgery. Anyway to get to the problem.
I have severe cognitive impairment. I have to literally strain my brain to say a couple words in my head. It is like my head is compressed and suffocating. It literally feels that way too. I have headaches 24/7 due to a retroflexed odontoid which i might get surgey for. My eyes are droopy, my scalp is super tender and I can't shake my head run or jump because it hurts like ***l because i feel like I have no fluid in my head. Anyway, I can't remember my childhood or recall a visual memory. I don't have a train of thought or anything. Just the words i force in my head. I can 't converse with people because of this. The thing is I have had mri's and nothing shows up. Io also have had tons of blood tests done.
After tons of researech ivenever heard of a cognitive problem like mine where i just cant think. What is it? Is it a blood flow problem? Is it stenossis of some nerves around the retroflexed odontoid like i believe? I've been throguh the pychiatric gambit at the beggining which was ***l and now i'm seeing a nuerosurgeon who did my surgeries. Does it have to do with csf flow even though my shunt is working?(from which i found no relief) He ordered a PET scan. Will this help determine my functioning problem? Please think outside the box with help!
p.s. ive been tested for lyme/thyroid/ a TON of blood tests.
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