Discussions By Condition: I cannot get a diagnosis.

ckd stage 4? wtf.

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • October 29, 2008
  • 00:11 AM

Okay I will keep this short.

My child's mother went to the ER back in July for chest pains. They found that she had an enlarged spleen but in running the test realized that her kidneys weren't functioning properly and referred her to a kidney specialist. She got blood tests and an appointment (3 months later) last week and the doctor said that her gfr is at CKD stage 4.

She is 23 and our daughter is 4 and I am scared as heck.

She said she feels a little fatigue and every once in a while a numbness in one of her hands but other than that she feels fine and works six days a week as a cocktail waitress. She also only pees like twice a day. I have been reading what all this means on the internet and this whole ordeal is nothing short of surreal.

I need to know if there is any other condition that this could be that may be reversible. Is there any hope that something could be messing up the diagnosis or the tests? I keep reading that people with this condition that don't catch it until stage 4 usually die within 2 years. Our daughter will only be six. I can't raise her alone. I keep dreaming of her getting catheters stuck in her neck and chest cavity. She is going in tomorrow for a renal ultrasound and they are running like 30 other tests to try to find out what the source of the problem is. Is there any hope?

Please help.

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2 Replies:

  • Blaze posts this info to everyone along with lyme disease... This is a really good site on CKD: http://www.emedicinehealth.com/chronic_kidney_disease/article_em.htm Your describe that she feels numbness in one of her hands. This is a possible sign of celiac disease. Here is an account of a celiac disease patient with ckd that you may want to think about & ask about: http://www.revolutionhealth.com/stories/view/f6511f5ca4cc43608a49199b77b1d376 General info on celiac-- it is so commonly missed by doctors: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/ A more scinetific article on this topic: Nephrol Dial Transplant. 2006 Jul;21(7):1809-15. Epub 2006 Mar 30.Coeliac disease and risk of renal disease-a general population cohort study.Ludvigsson JF, Montgomery SM, Olén O, Ekbom A, Ludvigsson J, Fored M.Department of Paediatrics, Orebro University Hospital, Sweden.jonasludvigsson@yahoo.comBACKGROUND: Coeliac disease (CD) may be a risk factor for renal disease. METHODS:We investigated the risk of any form of glomerulonephritis (GN) (acute, chronicand non-specified), chronic glomerulonephritis (CGN) and renal replacementtherapy including dialysis treatment and kidney transplantation (KT) in patients with CD in a general population-based cohort study. We used Cox regression toassess the risk of renal disease in 14,336 patients who had received a diagnosis of CD (1964-2003) and 69,875 reference individuals matched for age, calendaryear, sex and county. Patients were identified using the Swedish HospitalDischarge Registry. Follow-up began 1 year after study entry. RESULTS: CD wasassociated with an increased risk of any form of GN (hazard ratio (HR) = 1.64;95% confidence intervals (CI) = 1.01-2.66; P = 0.046; 89 events), CGN (HR = 2.65;95% CI = 1.34-5.24; P = 0.005; 39 events), dialysis (HR = 3.48; 95% CI =2.26-5.37; P P = 0.012; 22 events). CONCLUSION: We suggest that immune characteristicsassociated with CD increase the risk of chronic renal disease. Individuals withCD may also be at a moderately increased risk of any form of GN.PMID: 16574681
    aquila 1263 Replies
    • October 30, 2008
    • 05:37 PM
    • 0
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  • You need to have her urine weight over 24 hours,anything lower then 500 ml.shows great damage of the kidneys,kidney echography,serum creatinine test,glomerular filtration rate,proteinurea(abnormal level of albumin in urine)are standard tests to be run for diagnosing kidney failure.Standard tratment (worst case scenario)-dyalisis.kidney transplant also a posibility-with good results,the thing is,it is not easy to find a suitable donor
    Anonymous 42789 Replies
    • October 30, 2008
    • 07:19 PM
    • 0
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