Discussions By Condition: I cannot get a diagnosis.

CIPA Treatments

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • February 7, 2008
  • 03:38 PM

Hi recently my aunt had a baby boy, and he was diagnosed with CIPA. My aunt is haveing a very difficult time find some type of treatment for this disease. i was wondering what some treatments for CIPA were?

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  • As far as I know, you see, I did a whole report on it, there isn't really any treatments. I'm sure there are ways to somehow teach the child as he grows older, but the disorder isn't common enough to do wide-scale research so finding a cure is harder. Kumamoto University School of Medicine, Japan, Department of Pediatrics is the only place in the world right now who studies it and tries to find a cure. They only have about 67 members though, and not much to work on so it's very difficult. I hoipe your aunt takes this well, sorry.
    Anonymous 42789 Replies
    • January 5, 2009
    • 00:57 AM
    • 0
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