Hi, I am actually needing a better explanation then what I am getting at the VA Hospital in North Chicago about my husbands condition. Hes thirty years old, and was in perfect health when he was in the military. He was honorably discharged in 2005. He had his nose reshaped as a child for his nose was S shaped and was causing nose bleeds. This whole problem started about three years ago when he started having a chronic cough. The doctors told him to just take over the counter cough medicine to make it go away. Two years went by of trying various cough medicines, and eventually a doctor diagnosed it as asthma for he started wheezing in a breathe. One year ago he started having trouble walking with his ankles flaring up in pain got that diagnosed as tendinitis and he needs a cane to walk. A few months after this started he started having a pain in his upper left abdomen and they determined it was Eosiniphilia Esophagus (EE), and dilated his esophagus. The pain went away for about a month and came back with a vengeance, he was dilated once more but the pain was back within the week. His blood since has had really high eosinophil counts but not high enough to diagnose it as hypereosiniphila syndrome (HES). Wednesday his right leg started having tremors, so I took him back to the VA hospital to get it checked out they admitted him and started running tests for HES. Unfortunately the hospital has set hours to run tests, and I have caught them in several lies. They tell us his tests are all normal and then rerun some of them on emergency status, then later we find out they found something out of normal but wont tell me what it was. Hes had many other tests done that I probably never know the results to no matter how many times I ask them. Being the weekend he has no tests scheduled, and is in waiting for Monday when he has a EMG test to rule out neuropathy. Their is one doctor who believes he has Churg-Strauss Disease, but the other doctors who are working his case don't believe him, and getting straight answers from them is not working. One doctor told him that hes just stressed out and has allergies. I am to the point I don't know who to turn to anymore, I really believe these are linked, but not sure how. Today he started having chest pains, and they claim the EKG is normal. We two young girls, and so I am not allowed in the hospital to take care of him. When I call to find out test results I am either hung up on, or put on hold till the system hangs up on me. Being ignored like this is making me feel helpless, and all I want is a straight answer from someone.Reply Follow This Thread Stop Following This Thread Flag this Discussion
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