Discussions By Condition: I cannot get a diagnosis.

Chronic rash on hands--disappears at night

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: magnamatt
  • April 16, 2009
  • 11:11 PM

Hi all...thought I'd give this a try as most everything else has been a disappointment.

I've been dealing with a chronic rash for about 5 years.
At that time, I got strep throat and became VERY sick. Along with my strep, I started getting red dots over my hands/arms/waist/thighs/ankles. I was treated for the strep, and recovered from that, but still had many of my achy body/rash symptoms.

I visited my doctor, and he ran the gamut of tests, which all came up negative. (mono, lyme disease, parvo, etc) He said I must have an unidentified viral infection, and that my body would work through it. He sent me to a dermatologist for the rash.

The Dermatologist took a 3-second look at my rash, and said it was excema. He prescribed a steroid cream which did not help at all.

The symptoms regressed, and the rash was not as bad, but my symptoms will reappear at different times of the year. (mostly winter)

With a recent flareup of achy joints and rash, I visited a different doctor. He looked at my prior blood work, and along with new blood work said that I had a under-active thyroid. I've been taking synthroid every day for about a year. My achy body symptoms have never really returned, but my rash still has.

As you can see in the picture, it is usually on the backs of my hands. It rears its ugly face in the afternoon, and gets progressively worse into the evening. As I sleep, the red spots disappear, and the cycle starts the next day. On really bad days, the spots will be on my hips, thighs, and ankles. They really don't itch much and only raise slightly on the flesh.

It's ugly, and I hate it...but I've spent hundreds of dollars to run into too many dead ends. I can't afford to continue seeing my physician with his laundry list of blood work. Any thoughts? No allergies that I know of. 33 years old, and good health.

See pic below---rash isn't too bad here---but will get worse into the evening.
http://i282.photobucket.com/albums/kk264/magnamatt1/0416091654.jpg

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4 Replies:

  • I'm sorry to hear of your discomfort. The first questions that come to mind is: What was happening differently at the time of the first onset? Different job? chemicals that you come in contact with? Did you start using a different body soap, lotion, dish soap, shampoo, air freshener? Anything that has been a constant these last few years? Any new medications? Vitamins? Foods? Auto grease remover?I just developed lot of allergies his year & I'm 37, our bodies change, our tolerance changes. I would suggest taking some time to think about possibilities, write a list of your usual & not so usual items that you use on a regular basis. One by one I would try a more sensitive/unscented product. I would give each try a week to notice any difference.I know it's daunting but sometimes we have to be our own detective.. Companies change ingredients constantly. Might be a good idea to compare labels-perhaps there is a common ingredient (overload?) that is irritating your skin. I wish you well, Becca318
    Becca318 13 Replies Flag this Response
  • Hi all...thought I'd give this a try as most everything else has been a disappointment.I've been dealing with a chronic rash for about 5 years.At that time, I got strep throat and became VERY sick. Along with my strep, I started getting red dots over my hands/arms/waist/thighs/ankles. I was treated for the strep, and recovered from that, but still had many of my achy body/rash symptoms.I visited my doctor, and he ran the gamut of tests, which all came up negative. (mono, lyme disease, parvo, etc) He said I must have an unidentified viral infection, and that my body would work through it. He sent me to a dermatologist for the rash.The Dermatologist took a 3-second look at my rash, and said it was excema. He prescribed a steroid cream which did not help at all.The symptoms regressed, and the rash was not as bad, but my symptoms will reappear at different times of the year. (mostly winter)With a recent flareup of achy joints and rash, I visited a different doctor. He looked at my prior blood work, and along with new blood work said that I had a under-active thyroid. I've been taking synthroid every day for about a year. My achy body symptoms have never really returned, but my rash still has.As you can see in the picture, it is usually on the backs of my hands. It rears its ugly face in the afternoon, and gets progressively worse into the evening. As I sleep, the red spots disappear, and the cycle starts the next day. On really bad days, the spots will be on my hips, thighs, and ankles. They really don't itch much and only raise slightly on the flesh.It's ugly, and I hate it...but I've spent hundreds of dollars to run into too many dead ends. I can't afford to continue seeing my physician with his laundry list of blood work. Any thoughts? No allergies that I know of. 33 years old, and good health.See pic below---rash isn't too bad here---but will get worse into the evening.http://i282.photobucket.com/albums/kk264/magnamatt1/0416091654.jpg I had? have something similar looking. A skin biopsy said it might be grovers or dariers
    Anonymous 42789 Replies Flag this Response
  • I had? have something similar looking. A skin biopsy said it might be grovers or dariershave you figured it out?Just came back from mexico with the same thing on the back of my hands. Dissapears at night and starts again when i get up. my GF has it as well but not as bad. We also have some weird lines too, like rash lines.
    Anonymous 42789 Replies
    • January 17, 2010
    • 05:56 PM
    • 0
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  • That negative Lyme test is meaningless, and most Lyme sufferers have coinfections, like bartonella (cat scratch fever) which can cause line-like rashes. Lymenet can help you find a Lyme literate medical doctor. Also, look into electromagnetic hypersensitivity.
    Anonymous 42789 Replies
    • January 19, 2010
    • 03:14 PM
    • 0
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