Discussions By Condition: I cannot get a diagnosis.

chronic/painful oral and genital ulcers, diarrhea, fatigue, severe dry skin...

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: Anonymous
  • October 10, 2009
  • 05:28 AM

Hello! I am a 22-year-old female. I will start by saying that I have suffered from ulcers (oral since the age of 4) and (genital since the age of 11) but these ulcers began to become especially severe after I had mono last Christmas. So I have the ulcers but no doctor seems to know what is causing them. I have even been tested for herpes (the results came back negative). I also am always very tired, often for no reason. I have no real interest in doing much of anything when I am so tired from fatigue, can't hardly walk from genital ulcers, or can barely talk or eat without severe pain. But, it gets better (lol) for the last several years I have been suffering from almost chronic diarrhea. My bowel movements are never really ever of a normal consistency. In fact, if I don't have loose bowel movements I will almost always have constipation. I now am getting these light red, very dry patches of skin all over my body, including my face and my joints in my neck, fingers, knees, and feet can be stiff and painful. I have been to numerous doctors since January of this year and no one can tell me what's wrong, they just want to treat my symptoms. I have turned to the internet to research these weird symptoms on my own. The best I can come up with is Behcet's disease. However, I have no real eye involvement, other then bad night vision while driving and sensitivity to bright light. So Behcet's doesn't necessarily fit. If anyone has any other suggestions for other medical conditions I could look into that would fit these symptoms, that would be so greatly appreciated by me. I am sooooo tired of sounding and feeling like a hypochondriac. Any help would be wonderful!

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6 Replies:

  • could you have possibly been exposed to syphilis in the womb???? or some other std in the womb? Or genetics?? Could have been some strange reaction to childhood innoculations--ask your mom if you got it after a shot. What did 4 year old get 18 years ago???
    Monsterlove 2921 Replies
    • October 11, 2009
    • 05:01 AM
    • 0
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  • Hi,I've had Behcet's disease for 30 years, and have been writing/researching about it since 1996. Although I'm not medically trained, it sounds like Behcet's might actually be a good fit for your symptoms. Eye involvement doesn't happen to everyone who has Behcet's (approximately 25% of patients never have eye problems in their lifetime). If you haven't been to my website yet, please take a look: www.behcetsdisease.com. Go to the Audio/Video part of the site, and look at the first video, "Do you think you have Behcet's Disease?" It was just released by the American Behcet's Disease Association. Also, please go to www.bdshowonline.com to get instructions on watching the Discovery Health Channel's "Mystery Diagnosis" episode about my 17-year search for a diagnosis. That web page also has a long list of other Behcet's-related links that you might find helpful, including a link to the Behcet's Syndrome Treatment Ctr in NYC (the only official BD center in the U.S.)All the best,Joanne Zeisjoanne at behcetsdisease dot comHello! I am a 22-year-old female. I will start by saying that I have suffered from ulcers (oral since the age of 4) and (genital since the age of 11) but these ulcers began to become especially severe after I had mono last Christmas. So I have the ulcers but no doctor seems to know what is causing them. I have even been tested for herpes (the results came back negative). I also am always very tired, often for no reason. I have no real interest in doing much of anything when I am so tired from fatigue, can't hardly walk from genital ulcers, or can barely talk or eat without severe pain. But, it gets better (lol) for the last several years I have been suffering from almost chronic diarrhea. My bowel movements are never really ever of a normal consistency. In fact, if I don't have loose bowel movements I will almost always have constipation. I now am getting these light red, very dry patches of skin all over my body, including my face and my joints in my neck, fingers, knees, and feet can be stiff and painful. I have been to numerous doctors since January of this year and no one can tell me what's wrong, they just want to treat my symptoms. I have turned to the internet to research these weird symptoms on my own. The best I can come up with is Behcet's disease. However, I have no real eye involvement, other then bad night vision while driving and sensitivity to bright light. So Behcet's doesn't necessarily fit. If anyone has any other suggestions for other medical conditions I could look into that would fit these symptoms, that would be so greatly appreciated by me. I am sooooo tired of sounding and feeling like a hypochondriac. Any help would be wonderful!
    filmlady 1 Replies
    • October 11, 2009
    • 00:38 PM
    • 0
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  • Tell your doctor to test you for celiac disease.
    Anonymous 42789 Replies
    • October 11, 2009
    • 03:25 PM
    • 0
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  • Get checked for celiac disease.
    prairiegirl 1 Replies
    • October 11, 2009
    • 03:38 PM
    • 0
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  • Hello! I am a 22-year-old female. I will start by saying that I have suffered from ulcers (oral since the age of 4) and (genital since the age of 11) but these ulcers began to become especially severe after I had mono last Christmas. So I have the ulcers but no doctor seems to know what is causing them. I have even been tested for herpes (the results came back negative). I also am always very tired, often for no reason. I have no real interest in doing much of anything when I am so tired from fatigue, can't hardly walk from genital ulcers, or can barely talk or eat without severe pain. But, it gets better (lol) for the last several years I have been suffering from almost chronic diarrhea. My bowel movements are never really ever of a normal consistency. In fact, if I don't have loose bowel movements I will almost always have constipation. I now am getting these light red, very dry patches of skin all over my body, including my face and my joints in my neck, fingers, knees, and feet can be stiff and painful. I have been to numerous doctors since January of this year and no one can tell me what's wrong, they just want to treat my symptoms. I have turned to the internet to research these weird symptoms on my own. The best I can come up with is Behcet's disease. However, I have no real eye involvement, other then bad night vision while driving and sensitivity to bright light. So Behcet's doesn't necessarily fit. If anyone has any other suggestions for other medical conditions I could look into that would fit these symptoms, that would be so greatly appreciated by me. I am sooooo tired of sounding and feeling like a hypochondriac. Any help would be wonderful!Look into lichen planus, an autoimmune disease that can manifest in the mouth, anus, vagina, and on vulva and skin.
    Anonymous 42789 Replies
    • October 11, 2009
    • 07:13 PM
    • 0
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  • Behcet's doesn't affect as many people as you would think. I don't know many that have had obvious eye involvement.
    Anonymous 42789 Replies
    • October 6, 2010
    • 01:30 AM
    • 0
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