Discussions By Condition: I cannot get a diagnosis.

Chronic Nausea and unexplained symptoms

Posted In: I cannot get a diagnosis. 30 Replies
  • Posted By: BNC052083
  • December 4, 2006
  • 04:07 PM

If anyone has any suggestions they would be greatly appreciated. I am a 23 yr female that has been suffering since November 2005. I am a Registered Nurse but have been unable to work due to symptoms. Last November I contracted some type of GI virus. Everyone in my household also ended up with this virus. Everyone had severe vomiting (except for me...i didn't vomit). Everyone else was rid of the virus in about 2-3 days...I stayed ill....and eventually went to the hospital for dehydration (unable to drink). In January I still had the nausea and by this time extreme fatigue also. I went to the hospital for left upper quadrant pain in my abdomen. They tested me for mono and it was positive. I thought in a few weeks all of my symptoms would subside...but it was just getting started. In early March I was still complaining of severe nausea and fatigue and now some blurred vision and constant headaches. My family doctor decided to send me to a GI specialist to check out other possible causes. Gall Bladder disease ran in my family so the doctor ordered a HIDA scan with cck. The ejection fraction of gall bladder was 14% (failing is I believe under 30%). In March the gallbladder came out. This is where the weird symptoms come in. In April I was driving home and the left side of my face began to ***k. I was having some type of muscle spasm. The spasms caused my left eye to shut, the inside of nose to shake, and my left cheek and jaw would pull towards my neck. The spasms never crossed over to the right side of my face. After a spasm (which would last anywhere from 1-5min) I would have persistent yawning. I would yawn continuously for about 5-10min, so bad that my jaws would be sore and I would have tears rolling down my face. In May I still had severe nausea (taking Remeron, Zofran, Promethazine, Compazine, and Dramamine to control nausea) and the doctor decided to order a gastric emptying study....another failed test. I now had gastroparesis and they added Reglan 5mg three times a day to help with the nausea. I stayed so weak I couldn't hardly walk a flight of stairs to my apartment or drive myself to the doctor. I was sleeping at least 18 hours a day. I lived on pretzels and Sprite, and an occasional popsicle. June and July were slightly better monthes were I had a few good days in a row. August served more like a relapse. Symptoms now included nausea, headache, fatigue, blurred vision, muscle weakness, "urinary incontinence" (new one), parethesia in extremities (tingling), hemifacial spasms, amenorrhea (no periods), heat intolerance, and dizziness. I also wanted to add that my blood pressure is always erratic. One day it will be 90/46 and the next day 146/98. My doctor recently took me off of the Reglan because my Prolactin level was elevated. I have had a MRI of my brain (normal except for some sphenoid sinusitis), EGD (normal except for small hiatal hernia), and tons of lab work....all pretty much normal. Last week I had some pretty bad rectal bleeding. I went to the ER and they gave me some fluids and did an abdominal CT with contrast. The lymph nodes in my abdomen are enlarged and the rectal exam showed no hemorrhoids. So anyway, anyone suffering with similar symptoms or have any suggestions?

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30 Replies:

  • Have you been tested for hyperthyroidism? Chron's disease or celiac disease?
    Anonymous 42789 Replies
    • December 4, 2006
    • 04:17 PM
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  • Celiac is known to develop in people genetically predisposed to it after a stomach virus or some other stressful event. Probably worth a check, as well as the other two the previous poster mentioned. They are all fairly rare, often misdiagnosed, and could account for your symptoms.
    Azaral 152 Replies
    • December 4, 2006
    • 04:22 PM
    • 0
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  • I am a 32 y/o f with similar symptoms. I am a speech therapist and began having unexplained throat infections and possible lingual tonsilitis around October, 2005. Thereafter, I began with chronic nausea, vomitting, diarrhea, and have since lost about 25 pounds. At the age of 23, I was diagnosed with IBS, hiatal hernia, and GERD by a GI. However, in July, 2006, I underwent stool collections, and an upper GI which revealed only mild gastroenteritis. Of course all blood labs were normal as well. My GI decided it must be related to stress. Yet, I did not feel this was accurate. Recently within the last month, I began having severe headaches which were preceded by blurred vision in my right eye. Also, I have had a LOC X's 1, dizziness, and unexplained right sided pain in my abdomen as well as peripheral neuropathy in my hands. My doctors have not been as aggressive as yours with meds and so forth, but all ultrasounds of my abdomen were normal and my gall bladder was r/o. I was given Protonix (80mgs daily) and compazine. Last week I went to my eye doctor and he found a bundle of nerves which had fallen in my inferior temporal arcade as well as keratoconjuctivitis (dry eyes). These two issues are new and were not present in previous eye exams therefore, he sent me to a neurologist. I just completed an MRI this AM w/o contrast. Last Friday, I began to throw up violently while I was driving to a patient's home and luckily made it to my OB/GYN's office. My husband is an RN as well and we had the labs faxed to my office. My absolute neutrophils were high and my protien level was high. At this point I am trying to r/o autoimmune diseases. These types of diseases are within my family's history, yet do not seem to of importance to my doctor's (with the exception of my OBGYN and Opthamalogist). The latest blood work ordered is SSA/SSB, ESR, IG's, and an RF. I am hoping these will lead me in the right direction so I can manage my symptoms. Just this weekend, I also began to have rectal bleeding w/o diarrhea. Just clear liquid with mucous-like blood. Have you had any rheumatology work-ups or any hx of autoimmune diseases in your family. I am interested in your health and feel your symptoms closely relate to mine. I own a private speech therapy business and these problems have negatively affected my ability to work. I am now on a leave of absence until my symptoms can be managed. Please contact me if you would like to discuss this.
    mjmslp 2 Replies
    • December 4, 2006
    • 07:47 PM
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  • Thank you to those of you who have replied with suggestions. In response to the hyperthyroidism..T3, T4, and TSH levels all normal. I need to check on the others to see if they have been ruled out, but again thank you. In response to mjmslp, I am very interested in your symptoms as well. I too have considered the possibility of autoimmune disease and I had my doctor check my Ig levels. My IgG was decreased to about 660 i think? He didn't seem too concerned with that because I had recently had mono, but it hasn't been checked since. I have another doctor's appointment December 16th and I will request some more work ups on the rheumatology issues. I know that my mother told me that when I was younger (6 or 7) I had problems walking up stairs, I was having left leg seizures (eeg abnormal), and I have never been able to run. My mother took me to a neurologist who said he thought I has MS and to a rheumatologist who said I probably had rheumatoid arthritis (sed rate was elevated). I was given Naprosyn and Tegretol. The tegretol caused a rash so it was soon after discontinued. I did better for a several years. When I was a teenager I started having constant tremors in my hands. My old pediatric neurologist had moved away and I saw a new neurologist (who I also saw just last week), and he suggested I had some type of dystonia and placed me on Sinemet. I took that for over a year and seemed to do better. Sometime along the way I was noncompliant with my medication regimen and the Sinemet was d/c'd also. When I was 15 in the month of June I woke up very ill (like a GI bug again) and it persisted for monthes. Again I had chronic nausea. It was so bad I could not go to school and they had to home school me. I stayed up everynight holding my stomach and crying (I had upper quadrant abdominal pain also). I lived on pretzels, popsicles, Sprite, and cabbage and salt (it helps with nausea). I went to the pediatric GI doctor and had many tests; upper GI with small bowel follow through, barium enema, colonoscopy, EGD, and probably others that I cant remember (all normal). I was once a very active teenager and very involved in school functions, and then I was bed bound and became goraphonic. I was afraid to leave the house for fear of vomiting in public. I then was put on anti-depressants and anti-anxiety medications. After my sophmore year the school board told me that I could not complete high school as a home bound student, so I was forced to quit. That was horrible for me....I still hate to think about it. I was once in the gifted program and a straight A student and now I am considered a high school drop out. Anyway, at 16 I started having severe fatigue, chronic nausea, and muscle twitching in my face. After age 17 the symptoms simply disappeared. I also have GERD and I take Nexium 40mg. There is no history of autoimmune diseases in my family, but my mother has a pretty rare disease called "hypokalemic periodic paraylsis" (her potassium bottoms out and she because totally paraylzed until it returns to a normal level). My neurologist has already said I do not have that disease. Here's one thing I found interesting, I recently went to an endocrinologist and she's doing a work up for Cushing's...even though it's a stretch to say the least. I had to have a urine test for synthetic steriods before she would do the urine testing for Cushing's. Anyway, I didn't take my Flonase for 2 weeks (it is a nasal steroid) and I had not used any topical creams or any other steroid that I could think of. Well the doctor called me and said my urine was positive for synthetic steriods. I don't know why that would have been. I also forgot to mention in my first post that ever since the "virus" that started all of these symptoms in Nov. 2005 I have kept a low grade temp. Every night I take my temperature and it is 99.9 or around there. I know that your body temperature raises by one degree at night, but before this at night my temp would be 98.0. During the day my temp was always 97.0. I find that interesting also. Let me know your thoughts.
    BNC052083 3 Replies
    • December 4, 2006
    • 10:06 PM
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  • I had mono and literally took a year to get better. Mono can cause all of the symptoms you noted-----------nauseousness, throat and lymph node swelling, headaches, muscles weakness, enlarge spleen being one of the big hallmarks of mono and dizziness. I have searched the net and find that there is no real medical research being done on mono. Mono can lay the strongest football player flat on their back. I am not that--------but can tell you when it struck I had no choice but to collapse. Antibiotics for the throat and rest and sleep.I ended up in the hospital after 3 months for iv's of vitamins and plasma. That was the turning point for me-------the doctor then began a regiment of first prenatal vitamins. These had minor effect. Then he went to B-12 injections to restore the hemocrit and red blood cells destroyed by the mono-----we did these twice a week------even though it has been almost 5 years I still take a B-12 injection once a week to help with energy. Hope you can get a handle on all of this.
    Anonymous 42789 Replies
    • December 5, 2006
    • 03:52 AM
    • 0
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  • Aside from the muscle problems, I've had similar symptoms (see my post today under I Cannot Get A Diagnosis - "Gastroparesis, nausea, bloating..." )Your symptoms sounded very much like MS, which I've heard is hard to diagnose. In reading about your bout as a teenager, I too developed agoraphobia and emetophobia (fear of vomiting in public) because of all the chronic nausea, which pretty much left me homebound for a year. Panic attacks come and go, depending on how I feel. They've been worse lately as my stomach has felt worse, but I'm afraid to go on anti-depressants/anxiety meds. Are you better with that perspective?I found it interesting that someone brought up hyperthyroidism - in which I DO have. I've always read that gastroparesis was linked more to HYPOthyroidism. And my endocrinologists blow off any correlation between the two. I did have slightly elevated cholesterol levels a few months ago (when I was feeling okay.) I've since lost 20lbs, and I've never eaten highly processed foods. Fatty Liver seems far fetched, but wondering if the thyroid function could be interfering with it. Stomach problems are the worst and hardest to diagnose. I've spent thousands of dollars trying to get diagnosed, only to have doctors shrug their shoulders at me and tell me it must be all in my head. Frustrating.
    Anonymous 42789 Replies
    • December 14, 2006
    • 01:16 AM
    • 0
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  • I might get a blood check just to rule out low serum sodium levels (can cause nausea). The facial dystonia sounds like blepharospasm, a movement disorder. After that, I'd check Chrone's and then MS. Start with the least scary ones first.Merry Christmas, huh? Good luck!
    Anonymous 42789 Replies
    • December 15, 2006
    • 08:59 AM
    • 0
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  • Hi everyone. I realize that you have discuss this 8mon ago but have been doing some searches here lately. So this is my story....I'm a 23yr female who has been suffering from chronic nausea for the past 5yrs. I have had every test possible and all have come back normal. I have seen 2 different GI doctors and both scratch their heads when I come into the office. In nov. of 2005 they removed my gallbladder. I believe as a last resort, since everything else was normal. At my worse I had lost 20lbs and was down to 103lb. They still have not found anything wrong with me and have said that it is probably stress and IBS(the easiest way out when they don't know). I'm to have also developed a fear of vomiting due to my nausea. Sorry I can't help with any clues as to what is causing it. Thanks!
    Anonymous 42789 Replies
    • September 4, 2007
    • 03:02 AM
    • 0
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  • I thought I would toss my story up here so you all know there are a lot of people going through this. I am 27 years old and have had chronic nausea and abdominal pain for 2 1/2 years. I have had practically every test done (colonoscopy, endoscopy, barium study, abdominal CT, etc.) and apparently have nothing wrong with me. Every doctor, except one, I have seen has chalked it up to IBS. I don't believe the IBS since I don't have diarrhea. The most recent doctor thinks it is a body reflex like when you have a cold and keep coughing even though you are better. I tried meds for this briefly and it didn't work. I couldn't give it a long run, the meds make me sleep all day and I have to take care of my sister who is 4 and won't be in charge of her drugged out of my mind. Recently I went back on birth control (which I was on for years without problems) and began having dizziness, facial numbness, and double vision, which after discontinuing has not abated. I also have had borderline hypothyroidism show up a couple of times over the past few years and recently had a test come back with high cholesterol which is insane since I eat healthy (as best I can anyway) and work out regularly. I am unemployed and can't find a job I can handle with the nausea. I also have a huge fear of vomiting in public and rarely leave the house. Depression comes and goes. Anyway, it sucks and I don't know if they will every fix me. It was nice to see all of your stories, now I don't feel so alone. I don't think anyone can understand unless they are going through it.
    Anonymous 42789 Replies
    • October 21, 2007
    • 07:25 AM
    • 0
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  • I am also experiencing the same thing all of you are going through. I am a 20 year old male, in great physical and active shape. I have been experiencing chronic nausea, dealing with the throat, not stomach, for 6-8 years. I always have to carry around mints or something, which I pop when I feel nausea coming on, and it seems to help. It seems to go through cycles where I experience nausea more than other times. I have a really hard time at the dentist, gagging a lot, even just from opening my mouth.I have discussed this with my doctor, and it was diagnosed as "all in my head." It is really discouraging not to be able to go out and leave the house due to a fear of nausea. I have no idea when it will set in, or I will feel ill. This forces me to hold back from doing the things I like to do sometimes. I find myself doing many things alone because I feel embarrassed and nobody understands.I am going to a new doctor next month, and I will discuss possible medications to allieviate the symptoms. It is good to see that I am not the only one going through this...it really is miserable.
    Anonymous 42789 Replies
    • December 25, 2007
    • 04:24 PM
    • 0
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  • I know exactly what you are going through and i have had this problem for about two years now.Literally 24/7 i feel like i am going to be sick no matter where the circumstances are. Speaking to friends or interacting keeps your mind busy which briefly puts aside any idea of being sick.Being in public places is the worst and i dread even contemplating getting on any buses, trains etc as i just think im going to vomit.From reading other posts it seems to have stemmed from a dramatic period in ones life which has had a big effect on your future life.I just want to become better because its really changing my life and the constant nausea is driving everything i do.My parents don't understand likewise with others and i don't blame them unless they were in my shoes.I had nearly got over it all in my view when i was in England (i am now travelling). the best thing to do is get out the house and take baby steps, literally re-teach your whole body from A-Z.I went from not leaving my university lounge and nearly failing my degree, to not thinking about being sick that much when i applied for a job and pulled off a great presentation.Its all in the mind, if you dread something and you wind yourself up you feel a millions times worse right? but once you have gone and done the thing you dread you feel great, as if you were normal again.Thats my logic and the only way you can overcome it is to hit it full on.I am travelling at the moment and i have gone back to where i was a couple of years ago and im trying to reteach myself once again and hope my work at home isn't lost when i return.Good to read other peoples views and can understand my points. Nice to realise its not just me.
    JimmyC 3 Replies
    • December 27, 2007
    • 05:21 PM
    • 0
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  • I am stunned. I have been on the internet for months looking for answers to the exact same symptoms. I cannot believe anyone else on this planet feels as lousy as I do. I have spend over 1,500.00 in three months on prescriptions, co pays, tests etc. I still have no diagnosis. One doctor told me thyroid issues, the doctor I saw the next week looked at the results of my bloodwork and said I had no thyroid issue. I was at my spine doctors office about a week after that and I broke down in tears (another of my new symptoms, I am incredibly emotional and agitated). I showed him all of my paperwork, notes, symptoms, medications etc. He called me at home the next day to say that he and his colleague had gone over all of the papers I left him and they thought my symptoms were very closely related to those of people who have SARCOIDOSIS. I have an appointment with an internal specialist the first week of April to find out more. I am desperate, I cannot take another prescription, or ill fitted diagnosis. There is a reason I am severly depressed, I have not been well for over four months. Another new symptom....Head sores, lesions. I told all three of the doctors I have seen in the last month that I honestly feel like one of the cases on Mystery Diagnosis - only those people actually have a diagnosis now. If anyone looking at this site has any more information on these symptoms please email me at robynmcneel@msn.com. It has been an absolute nightmare medically for me for the last four or five months so I can sympathize with you more than you know. I hope, for both of our sakes that someone, somewhere knows what is going on. As for the nausea, until all of us have a diagnoses, try snacking on Ginger snaps.....It works. My spine doctor told me to get fresh ginger from the market, but I can't stomach that. Good to all involved in this conversation. I hope we all find something that we can count on and I hope it comes soon.
    Anonymous 42789 Replies Flag this Response
  • I had debilitating nausea.....Get tested for Lyme disease and be sure to request not only the routine ELISA but also the Western Blot. I swear this diagnosis/treatment saved me!!
    Anonymous 42789 Replies Flag this Response
  • Im wondering if you have a diagnoses yet? Im supposing you probably havent with the symptoms you had, if it's what im thinking it could be. I have many of your same symptoms. I also wanted to add that my blood pressure is always erratic. One day it will be 90/46 and the next day 146/98 My own BP is very abnormally erratic too. Doctors have noted it going up as high as 176/138 (during 24hr monitoring when i was just standing relaxed).. but as it also drops to 90/55 (so i havent got high BP as such.) It took me ages to get an answer to my BP fluctuations.. but I finally got my answer from a head specialist, who was studying autonomic nervous system dysfunctions. I was told that this erratic BP (well in my own case at least) is caused by CNS/ANS (central nervous system/autonomic nervous system) dysfunction. (ANS dysfunction is very normal in the condition I have.. thou usually it manifests differently to what it has in my own case). So anyway.. I think that is showing that you have CNS/ANS dysfunction going on with whatever condition you have. (a quite uncommon condition..so one which most doctors know stuff all about.. my own doctors when i told them what the head endocrine specialist had told me.. said they had never heard of it). You said you have gastroparesis. I suggest you read the following study http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=544348 From that you can see gastroparesis is present in actually the condition i have (the one which causes my erratic BP.. or do a search.. you should find more articles on it). Your other symptoms happen in this condition too and it's classical for it to be triggered by a virus of some kind. Some have ended up dying from this.. due to the bad nausea in some cases of it, the nausea in some can be extremely severe, (thou death is rare..but the nausea really sucks!!). I suggest you to check out the following link which has a good symptom list http://wwcoco.com/cfids/bernesx.html If anyone has any suggestions they would be greatly appreciated. I am a 23 yr female that has been suffering since November 2005. I am a Registered Nurse but have been unable to work due to symptoms. Last November I contracted some type of GI virus. Everyone in my household also ended up with this virus. Everyone had severe vomiting (except for me...i didn't vomit). Everyone else was rid of the virus in about 2-3 days...I stayed ill....and eventually went to the hospital for dehydration (unable to drink). In January I still had the nausea and by this time extreme fatigue also. I went to the hospital for left upper quadrant pain in my abdomen. They tested me for mono and it was positive. I thought in a few weeks all of my symptoms would subside...but it was just getting started. In early March I was still complaining of severe nausea and fatigue and now some blurred vision and constant headaches. My family doctor decided to send me to a GI specialist to check out other possible causes. Gall Bladder disease ran in my family so the doctor ordered a HIDA scan with cck. The ejection fraction of gall bladder was 14% (failing is I believe under 30%). In March the gallbladder came out. This is where the weird symptoms come in. In April I was driving home and the left side of my face began to ***k. I was having some type of muscle spasm. The spasms caused my left eye to shut, the inside of nose to shake, and my left cheek and jaw would pull towards my neck. The spasms never crossed over to the right side of my face. After a spasm (which would last anywhere from 1-5min) I would have persistent yawning. I would yawn continuously for about 5-10min, so bad that my jaws would be sore and I would have tears rolling down my face. In May I still had severe nausea (taking Remeron, Zofran, Promethazine, Compazine, and Dramamine to control nausea) and the doctor decided to order a gastric emptying study....another failed test. I now had gastroparesis and they added Reglan 5mg three times a day to help with the nausea. I stayed so weak I couldn't hardly walk a flight of stairs to my apartment or drive myself to the doctor. I was sleeping at least 18 hours a day. I lived on pretzels and Sprite, and an occasional popsicle. June and July were slightly better monthes were I had a few good days in a row. August served more like a relapse. Symptoms now included nausea, headache, fatigue, blurred vision, muscle weakness, "urinary incontinence" (new one), parethesia in extremities (tingling), hemifacial spasms, amenorrhea (no periods), heat intolerance, and dizziness. I also wanted to add that my blood pressure is always erratic. One day it will be 90/46 and the next day 146/98. My doctor recently took me off of the Reglan because my Prolactin level was elevated. I have had a MRI of my brain (normal except for some sphenoid sinusitis), EGD (normal except for small hiatal hernia), and tons of lab work....all pretty much normal. Last week I had some pretty bad rectal bleeding. I went to the ER and they gave me some fluids and did an abdominal CT with contrast. The lymph nodes in my abdomen are enlarged and the rectal exam showed no hemorrhoids. So anyway, anyone suffering with similar symptoms or have any suggestions?
    taniaaust1 2267 Replies Flag this Response
  • Have you been checked for epstein bar.I don't know if that is the correct spelling.My mom had similar findings and mono...eventually they diagnosed her with epstein bar disease.People who have had mono are more likely to get it because it has something to do with the mono virus.It lays dormant until your immune system is weak and then presents itself and messes you up good.Just a shot in the dark.Ask your doctor about it.
    Anonymous 42789 Replies Flag this Response
  • If anyone has any suggestions they would be greatly appreciated. I am a 23 yr female that has been suffering since November 2005. I am a Registered Nurse but have been unable to work due to symptoms. Last November I contracted some type of GI virus. Everyone in my household also ended up with this virus. Everyone had severe vomiting (except for me...i didn't vomit). Everyone else was rid of the virus in about 2-3 days...I stayed ill....and eventually went to the hospital for dehydration (unable to drink). In January I still had the nausea and by this time extreme fatigue also. I went to the hospital for left upper quadrant pain in my abdomen. They tested me for mono and it was positive. I thought in a few weeks all of my symptoms would subside...but it was just getting started. In early March I was still complaining of severe nausea and fatigue and now some blurred vision and constant headaches. My family doctor decided to send me to a GI specialist to check out other possible causes. Gall Bladder disease ran in my family so the doctor ordered a HIDA scan with cck. The ejection fraction of gall bladder was 14% (failing is I believe under 30%). In March the gallbladder came out. This is where the weird symptoms come in. In April I was driving home and the left side of my face began to ***k. I was having some type of muscle spasm. The spasms caused my left eye to shut, the inside of nose to shake, and my left cheek and jaw would pull towards my neck. The spasms never crossed over to the right side of my face. After a spasm (which would last anywhere from 1-5min) I would have persistent yawning. I would yawn continuously for about 5-10min, so bad that my jaws would be sore and I would have tears rolling down my face. In May I still had severe nausea (taking Remeron, Zofran, Promethazine, Compazine, and Dramamine to control nausea) and the doctor decided to order a gastric emptying study....another failed test. I now had gastroparesis and they added Reglan 5mg three times a day to help with the nausea. I stayed so weak I couldn't hardly walk a flight of stairs to my apartment or drive myself to the doctor. I was sleeping at least 18 hours a day. I lived on pretzels and Sprite, and an occasional popsicle. June and July were slightly better monthes were I had a few good days in a row. August served more like a relapse. Symptoms now included nausea, headache, fatigue, blurred vision, muscle weakness, "urinary incontinence" (new one), parethesia in extremities (tingling), hemifacial spasms, amenorrhea (no periods), heat intolerance, and dizziness. I also wanted to add that my blood pressure is always erratic. One day it will be 90/46 and the next day 146/98. My doctor recently took me off of the Reglan because my Prolactin level was elevated. I have had a MRI of my brain (normal except for some sphenoid sinusitis), EGD (normal except for small hiatal hernia), and tons of lab work....all pretty much normal. Last week I had some pretty bad rectal bleeding. I went to the ER and they gave me some fluids and did an abdominal CT with contrast. The lymph nodes in my abdomen are enlarged and the rectal exam showed no hemorrhoids. So anyway, anyone suffering with similar symptoms or have any suggestions?I am 46 and for 7 months I have been nauseous, dizzy, had blurred vision, trouble with cognitive function and pain in my upper right abdomen. I've had every test known to man and I'm the picture of help. I cannot get through the day without something for nausea. I am currently wearing a patch which takes the edge of some days. I had a ct scan, ultrasound, endoscope, colonoscopy, chest xray, stress test, saw an ENT, had 2 MRIs and tons of blood work. I did originally test positive for the H poloyra bacteria. I took an anitbiotic for that 6 months ago and have since been tested and I'm fine. Only I'm not fine, I have no life. I finally made myself go to work but am really only half functioning. I go to bed at 6 pm and sleep all night until it's time to go to work the next day. I have actually gained 18 pounds. I eat when I'm nauseous and I quit smoking after 30 years because I'm too nauseousl to smoke. I guess that would be one good thing that came out of it. My doctor has no more ideas as to what to test for. The last tests were for hepatitis and Lyme. Both came back negative. I want my life back. I was reasonably healthy until 7 months ago. I'm so tired of being sick and tired.
    shelia 1 Replies Flag this Response
  • hi, im a 35 year old male , i have had episodes of extreme nausea, diahrea, constipation, heart palputation, gerd, bloating, extreme intestinal gas, unexplained pains here and there, like all of you ive been through every test known to man, i cannot work, i cannot live a normal life by any stretch of the imagination, feel like vomiting right now, the really sad thing is ive been dealing with this for 16 years, ive been on all the drugs, nothing helps, except phenergan for nausea, but not very much, for you people that have what they call irritable bowell syndrome, dont believe it, take probiotics for that, it does help, as for everything else im at my wits end, not sure i want to live like this anymore, all the doctors sat is that it must be ibs, or in my head, i wish i could give it to them for a year or two, any suggeations would be greatly appreciated.
    Anonymous 42789 Replies
    • September 8, 2008
    • 03:55 AM
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  • I am a 42 year old Registered Nurse- I have been having symptoms of chronic nausea for almost ten years. My nausea will hit so fast and last any where from five to fifteen days and occurs about evey other month. It goes away just as quick as it comes on. When My entire family gets a stomach bug, mine will last for about ten to fourteen days- when theirs is gone in 1-2 days. I have had many blood workups and an mri- all negative. I have had blurry vision,dizziness and weakness. I sometimes have right sided pain and lower back-kidney area pain. Docs don't know what to tell me .
    Anonymous 42789 Replies
    • November 6, 2008
    • 01:23 AM
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  • I, too, am an RN, so I had to offer some support. I was a perfectly normal, hard working...new RN when I left shift at the hospital on Friday Morning and home to sleep. I was very tired, It had been a "big one." After only a couple or so hours, I woke up sick--ill as I had never been before. Profound nausea being the leader with RUQ pain a close second. I was sure I was living a nightnmare. Things contined on with only slight relief and the spiraling of wt loss and malnutrition began. At one point, I went in early one night for fluids... so that I could go ahead and pull my usuall shift that evening. Nobody knew me. I was so pale and sick looking that my peers did not even know who I was! Soon I had my first surgery--cholecystectomy, which changed--you guessed--absolutely nothing, One of my first actual diagnoses was gastroparesis, which even though has been doubted many times, is corrected. I have literally, been all over this country to doctors regardiing this disease.. The best two docs have been Dr. Phil Miner of Oklahoma City, OK., and JDr. Thomas Abell of Jackson, MS.I could write on for pages and pages, but will spare you the frustration. I am currently 100% disabled and that by itself brings me to incessant tears. I to nurse--not to be nursed.Undoubtedly, God blessed me with the best husband in the world He has been a tower of strength duing all six years of this disease. I also hav two wonderful sons who are awesome as well. Send me your email and I will send you some journaling...I have compiled as well as treatment experiements. Would love to hear what you have tried as well.Sincerelygenia_holland@yahoo.com
    Anonymous 42789 Replies
    • December 16, 2008
    • 00:17 AM
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  • I had similar problems for quiet long time. Upon the advice of the the doctor i started taking B vitamine and most of the symptoms are one now. I would advice you to take one tablet of B complex vitamine once a day. Also drink green tee to get your nausea away.Wish you a quick recovery
    Anonymous 42789 Replies Flag this Response
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