If anyone has any suggestions they would be greatly appreciated. I am a 23 yr female that has been suffering since November 2005. I am a Registered Nurse but have been unable to work due to symptoms. Last November I contracted some type of GI virus. Everyone in my household also ended up with this virus. Everyone had severe vomiting (except for me...i didn't vomit). Everyone else was rid of the virus in about 2-3 days...I stayed ill....and eventually went to the hospital for dehydration (unable to drink). In January I still had the nausea and by this time extreme fatigue also. I went to the hospital for left upper quadrant pain in my abdomen. They tested me for mono and it was positive. I thought in a few weeks all of my symptoms would subside...but it was just getting started. In early March I was still complaining of severe nausea and fatigue and now some blurred vision and constant headaches. My family doctor decided to send me to a GI specialist to check out other possible causes. Gall Bladder disease ran in my family so the doctor ordered a HIDA scan with cck. The ejection fraction of gall bladder was 14% (failing is I believe under 30%). In March the gallbladder came out. This is where the weird symptoms come in. In April I was driving home and the left side of my face began to ***k. I was having some type of muscle spasm. The spasms caused my left eye to shut, the inside of nose to shake, and my left cheek and jaw would pull towards my neck. The spasms never crossed over to the right side of my face. After a spasm (which would last anywhere from 1-5min) I would have persistent yawning. I would yawn continuously for about 5-10min, so bad that my jaws would be sore and I would have tears rolling down my face. In May I still had severe nausea (taking Remeron, Zofran, Promethazine, Compazine, and Dramamine to control nausea) and the doctor decided to order a gastric emptying study....another failed test. I now had gastroparesis and they added Reglan 5mg three times a day to help with the nausea. I stayed so weak I couldn't hardly walk a flight of stairs to my apartment or drive myself to the doctor. I was sleeping at least 18 hours a day. I lived on pretzels and Sprite, and an occasional popsicle. June and July were slightly better monthes were I had a few good days in a row. August served more like a relapse. Symptoms now included nausea, headache, fatigue, blurred vision, muscle weakness, "urinary incontinence" (new one), parethesia in extremities (tingling), hemifacial spasms, amenorrhea (no periods), heat intolerance, and dizziness. I also wanted to add that my blood pressure is always erratic. One day it will be 90/46 and the next day 146/98. My doctor recently took me off of the Reglan because my Prolactin level was elevated. I have had a MRI of my brain (normal except for some sphenoid sinusitis), EGD (normal except for small hiatal hernia), and tons of lab work....all pretty much normal. Last week I had some pretty bad rectal bleeding. I went to the ER and they gave me some fluids and did an abdominal CT with contrast. The lymph nodes in my abdomen are enlarged and the rectal exam showed no hemorrhoids. So anyway, anyone suffering with similar symptoms or have any suggestions?Reply Follow This Thread Stop Following This Thread Flag this Discussion
Recognize the risks associated with Crohn’s disease.
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