Discussions By Condition: I cannot get a diagnosis.

chronic migrains, high blood pressure and various other symptoms

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: brandic77
  • March 28, 2008
  • 06:14 PM

Hi, I am new to this board. I am 30 yrs old and have had chronic migraines since I was about 20. I used to get them around my periods and if I didn't get enough sleep or went too long without eating. I knew what triggered them and I was able to keep them under control. But about 2 1/2 years ago I started getting them more frequently and for no apparent reason. Since then they have gotten much, much worse. Out of the last 2 months I have had migraines nearly every day. I know that people can get rebound headaches from taking too much medication, but I don't think that is my problem. To test the theory I went a week without taking any medication and I still got the migraines.

In addition to the migraines for the past 2 1/2 years I have had severly high blood pressure (168/113 on average) and have had to take medication to keep it under control. I know that migraine medications can raise blood pressure, but prior to this period of time it never did that to me. On top of that in the periods of time when I didn't have migraines and was not taking the medication, my blood pressure remained high.

I have also been suffering from chronic fatigue and sleep problems, as well as mood problems (which I never had before). I could attribute the mood swings to stress about my state and lack of sleep, or they could be contributing to that. I have also had mild chronic joint pain. It isn't enough to keep me from doing anything, but it still hurts. It is mostly in my wrists, elbows, hands, knees and ankles.

I'm not sure if these two symptoms are related at all, but its worth mentioning. During this time I have also had a complete lack of labido and random bouts of diarrhea that occure at least once a month and last from 2 to 10 days.

The symptoms that finally drove me to post this have been happening the last few weeks and worsening over that time. I now get lightheaded very easily and dizzy. I have never experienced this before and it is frustrating. Its not so bad that I fall down, but I have to hold on to the wall or furniture and hold still for a minute until it passes.

I guess I should mention that I am not overweight (I weigh 115 lbs) and I eat healthy and regularly and I try to exercise, although I have not been able to lately because of my symptoms. I have been to many doctors and I have an appointment in a few hours to bug him again and tell him about my newest symptoms. They seem more interested in treating the individual symptoms than figuring out what is causing them so I have to ask about spicific conditions and diseases before the doctor will even consider them, although he does seem willing to run any tests I ask for. I had a CT scan recently that was normal and a general blood workup that was also normal.

All of the symptom calculators that I put this into come up with Lukemia and Chronic Kidney Disease, but I don't appear sick and my blood work was normal.

Any ideas would be greatly appreciated.

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2 Replies:

  • Hi, I am new to this board. I am 30 yrs old and have had chronic migraines since I was about 20. I used to get them around my periods and if I didn't get enough sleep or went too long without eating. I knew what triggered them and I was able to keep them under control. But about 2 1/2 years ago I started getting them more frequently and for no apparent reason. Since then they have gotten much, much worse. Out of the last 2 months I have had migraines nearly every day. I know that people can get rebound headaches from taking too much medication, but I don't think that is my problem. To test the theory I went a week without taking any medication and I still got the migraines. In addition to the migraines for the past 2 1/2 years I have had severly high blood pressure (168/113 on average) and have had to take medication to keep it under control. I know that migraine medications can raise blood pressure, but prior to this period of time it never did that to me. On top of that in the periods of time when I didn't have migraines and was not taking the medication, my blood pressure remained high. I have also been suffering from chronic fatigue and sleep problems, as well as mood problems (which I never had before). I could attribute the mood swings to stress about my state and lack of sleep, or they could be contributing to that. I have also had mild chronic joint pain. It isn't enough to keep me from doing anything, but it still hurts. It is mostly in my wrists, elbows, hands, knees and ankles. I'm not sure if these two symptoms are related at all, but its worth mentioning. During this time I have also had a complete lack of labido and random bouts of diarrhea that occure at least once a month and last from 2 to 10 days. The symptoms that finally drove me to post this have been happening the last few weeks and worsening over that time. I now get lightheaded very easily and dizzy. I have never experienced this before and it is frustrating. Its not so bad that I fall down, but I have to hold on to the wall or furniture and hold still for a minute until it passes. I guess I should mention that I am not overweight (I weigh 115 lbs) and I eat healthy and regularly and I try to exercise, although I have not been able to lately because of my symptoms. I have been to many doctors and I have an appointment in a few hours to bug him again and tell him about my newest symptoms. They seem more interested in treating the individual symptoms than figuring out what is causing them so I have to ask about spicific conditions and diseases before the doctor will even consider them, although he does seem willing to run any tests I ask for. I had a CT scan recently that was normal and a general blood workup that was also normal. All of the symptom calculators that I put this into come up with Lukemia and Chronic Kidney Disease, but I don't appear sick and my blood work was normal. Any ideas would be greatly appreciated. Hi Brandic, A treatment they have started using in the UK for migraine is Oxygen thearpy........I have oxygen supplied at home now, I have it to help with TN {trigeminal neuralgia) as my oxygen levels drop low. It has certainly helped to shortened the length & severity of my attacks. I take migraines sometimes but not that often ! My sister has now had it prescribed for migraine & it has definately made an improvement, although it is not a cure it has helped with her greatly ! A treatment we also use here which helps with bone/joint pain is Glucosamine Sulfate (again this really helps) but i was looking online today & found out that so far it is not approved for use in the US yet which is a shame. Google it & have a look, I swear by it ! Hope u feel better soon !:)
    Tootsie 628 Replies Flag this Response
  • Maybe they should look at your adrenal glands. I was thinking ofpheochromocytoma (an adrenal gland tumor). I have had symptoms very similar to yours (along with quite a few other symptoms) and all my searching keeps popping up with pheochromocytoma. But I've had an MRI that got my adrenal glands in it (they were looking at my spine) and apparently my adrenals were fine. It might be something for you to look into more.
    Laurifish 2 Replies Flag this Response
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