Discussions By Condition: I cannot get a diagnosis.

chronic joint pain/popping limited mobilty along with chronic sciatic nerve damage

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Patrick O'connor
  • July 18, 2011
  • 04:16 AM

hi y'all, new to this forum so bear with me, am seeing a pm doc for my pain but he is dealing with just the pain not the underlying problems which is frustrating. symptoms for joints are strange to say the least and are as follows, worse in the morning and at night. Really bad when I'm turning wrenches, fishing or writing. have been diagnosed with severe carpel tunnel in both L and R hands dominant left handed but ambidextrous. It feels like a pressure slowly building up until i have very limited mobility and limited to my upper torso shoulder, wrists, especially knuckles,and shoulders and neck my mobility issues are alleviated for a short duration once i pop them or they pop themselves involuntarily I would say for ten to fifteen minutes of relief. I am 28 yrs old and have no family history of arthritis and all blood tests have come back negative for RA, arthritis, Lyme disease etc.... and i eat very well but am 5'9 150 lbs with an under active thyroid ...i also wake up in the morning with my left hand balled in a fist so tight that my knuckles are white from what i assume is loss of blood or flow/circulation. My so called sciatic pain and sciatic nerve damage are not showing up on MRI's or X-rays yet are symptomatic of sciatica. The pain stems from my two lower lumbar down to my left buttocks and continues through my left thigh to my calf and is associated with numbness and very painful stabbing and burning feelings and or sensations, i have tried lyrica, garbapentin, and zonisamide for nerve pain none have been very effective, along with what began as low doses of opiate based medications starting at 5-325 hydrocodone and over the past four years have built up quite the tolerance to them i worked my way up from 7.5 by 200 vicoprofin to 10-325 norco to 10-500 lortab to 15mg oxycontin, to 50mg oxycontin, fentanyl patches, percocet and currently the really expensive very non effective butrans 5mcg hour patch that i started 3 days ago along with norco for BT, NOT ONE DOCTOR or specialist including spinal specialist, neurologists, hand surgeons have been able to properly or definitively diagnose these issues. In fact they seem to all contradict each other in their diagnostics, i live in New Braunfels ,TX if anyone knows any good PM docs or specialists or psychiatrists .What is most frustrating is that I am married with four kids, my own business, and two dogs and the worst part is my inability to participate in family activities and having to push the responsibilities onto my wife and watch from the sidelines while my wife teaches my boys how to play baseball and how to be men ahhhhhhhh!!! I have become depressed and then angry and am now currently taking anti-depressants such as cymbalta daily to cope with my mobility issues and coping problems. if anyone has any thoughts or suggestions or insight or any further questions to help shed some light on these "mysteries" i am all ears. SOMEBODY PLEASE HELP I AM GOING CRAZY!!!!!!!!! And am tired of depending on narcotics to get through my days and nights I literally have gotten to the point that W/O them i am able to do nothing and that is very unsettling for me. past history 3 car accidents only two major, several boxer fractures and a lot of other dislocations and broken bones due to three Irish brothers. Other than thast healthy as a horse till 3-4 years ago. Thanks so much for reading and any responses i may get and god bless.

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  • hi y'all, new to this forum so bear with me, am seeing a pm doc for my pain but he is dealing with just the pain not the underlying problems which is frustrating. symptoms for joints are strange to say the least and are as follows, worse in the morning and at night. Really bad when I'm turning wrenches, fishing or writing. have been diagnosed with severe carpel tunnel in both L and R hands dominant left handed but ambidextrous. It feels like a pressure slowly building up until i have very limited mobility and limited to my upper torso shoulder, wrists, especially knuckles,and shoulders and neck my mobility issues are alleviated for a short duration once i pop them or they pop themselves involuntarily I would say for ten to fifteen minutes of relief. I am 28 yrs old and have no family history of arthritis and all blood tests have come back negative for RA, arthritis, Lyme disease etc.... and i eat very well but am 5'9 150 lbs with an under active thyroid ...i also wake up in the morning with my left hand balled in a fist so tight that my knuckles are white from what i assume is loss of blood or flow/circulation. My so called sciatic pain and sciatic nerve damage are not showing up on MRI's or X-rays yet are symptomatic of sciatica. The pain stems from my two lower lumbar down to my left buttocks and continues through my left thigh to my calf and is associated with numbness and very painful stabbing and burning feelings and or sensations, i have tried lyrica, garbapentin, and zonisamide for nerve pain none have been very effective, along with what began as low doses of opiate based medications starting at 5-325 hydrocodone and over the past four years have built up quite the tolerance to them i worked my way up from 7.5 by 200 vicoprofin to 10-325 norco to 10-500 lortab to 15mg oxycontin, to 50mg oxycontin, fentanyl patches, percocet and currently the really expensive very non effective butrans 5mcg hour patch that i started 3 days ago along with norco for BT, NOT ONE DOCTOR or specialist including spinal specialist, neurologists, hand surgeons have been able to properly or definitively diagnose these issues. In fact they seem to all contradict each other in their diagnostics, i live in New Braunfels ,TX if anyone knows any good PM docs or specialists or psychiatrists .What is most frustrating is that I am married with four kids, my own business, and two dogs and the worst part is my inability to participate in family activities and having to push the responsibilities onto my wife and watch from the sidelines while my wife teaches my boys how to play baseball and how to be men ahhhhhhhh!!! I have become depressed and then angry and am now currently taking anti-depressants such as cymbalta daily to cope with my mobility issues and coping problems. if anyone has any thoughts or suggestions or insight or any further questions to help shed some light on these "mysteries" i am all ears. SOMEBODY PLEASE HELP I AM GOING CRAZY!!!!!!!!! And am tired of depending on narcotics to get through my days and nights I literally have gotten to the point that W/O them i am able to do nothing and that is very unsettling for me. past history 3 car accidents only two major, several boxer fractures and a lot of other dislocations and broken bones due to three Irish brothers. Other than thast healthy as a horse till 3-4 years ago. Thanks so much for reading and any responses i may get and god bless.Well Patrick...it sounds like you have a lot of stuff going on here. I'm not familiar with your location in Texas but I would recommend heading to Dallas or Houston for physicians. I'm from a small community too and am a nurse, and I know that many times I have to travel to the larger surrounding communities because they're used to seeing a vast variety of conditions. It sounds to me like your problems stem from, possibly, the MVA's, dislocations...all the fun stuff from your youth. However, you're really not old enough to be dealing with all of those problems so it's very bizarre. The bad thing about the dependancy on pain medication is potential organ failure or damage as a result of taking so much tyelonol/acetamenophen. Hope that you find some relief and someone to help you. I know that the way you're living isn't really living. My other suggestion, which should've been first, is offer it up to God. He's our ultimate healer!! Good luck and God Bless!!
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