Discussions By Condition: I cannot get a diagnosis.

Chronic hip pain

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Lamama
  • May 9, 2010
  • 03:47 AM

This may be a little long! Sorry!

When I was a kid I was a great skiier. Then one day I fell over in the middle of a cat track (flat path) which in itself was strange, since I had been skiing since I could walk. When I fell I heard a loud pop. I felt very funny and strange, rode up the chair lift, then hiked up the back part of a run. Going down the run I felt super light headed and sat down in a daze. No one could figure out what was going on and they took me to the hospital. Long story short, my hip had dislocated, for apparently no reason with no provocation and I had skiied around a bit in shock before sitting down unable to move. The doctor at the ski injury hospital told me he was going to inspect my toes, and then suddenly yanked my entire foot, and I slid down the entire bed. He told me that he had to do that to put my ball back in the socket, but if he told me I would have tensed and he wouldn't have been able to do it. It took him 6 more tugs to get it back in (and you can bet your butt I was tense that entire time! IT HURT)

I couldn't walk much for a year, I used a combination of crutches and then a cane. I had huge amounts of pain whenever I put any weight on my pelvis. Physio didn't help much. Then began the tests.

X-rays, MRI, CAT, and they even injected some radioactive dye? into my blood stream and took 3D images. The specialist who was following me couldn't figure out what was causing the excruciating pain. He told us that the ball was a little smaller than it should be, but not enough that it should be causing problems. After they went through all the tests, he told my mom that I was making it up, because there was nothing showing on the tests. I also went to an arthritis clinic.

So then I was sent to a psychiatrist. After several mental health check ups they determined that I was not lying and it was not in my head. Thanks, I could have told them that myself. :rolleyes:

So nothing was done about it. I started hating PE because it hurt. I gained weight because all sports hurt me and being active in the day meant being in pain all night. If I brought it up my mom would shrug and say well they couldn't figure it out.

So fast forward to now...

I have really horrible pain in that hip. It sometimes radiates out. It will start in the hip but go down to my knee. Sometimes it will happen in the other knee and hip which I have assumed is me putting more weight on that leg to protect the bad one? It can be so painful that I can barely breath through it. Labor and childbirth? Zen master, I am peaceful and focussed and love giving birth. I have tried my breathing exercises when I get this hip pain, nothing! It will wake me up in the middle of the night and I can't sleep anymore.

The only real coping mechanisms I have are soaking in a scalding hot bath (like turning your skin bright red hot) until it eases up a little bit, or taking IB profin. It doesn't make the pain go away, it just takes the edge off so I can function. The episodes don't last very long, maybe 12 hours at most, but they are frequent.

I can't always tell when it will happen either. If I have been extremely active, I can almost garunte that within a few hours I will be in agony. However sometimes I will be very active and get no pain. Or I will do no activity at all and get the pain. So it is not linked to a certain activity or movement, though strenuous activity can exacerbate it. I have gotten to the point where I just do what I want anyways (exercize, dance, hike) because I know it will hurt eventually even if I don't do those things, and I don't want to be held back.

The only time I ever brought this up to a doctor again, they told me "just loose some weight". I am overweight, but I am not obese to a point where I should be having crippling pain.

My husband really wants me to go to a doctor again. I have been very hesitant. I am worried they will just dismiss me again. He said that the doctor was out of line, saying that it was in my head, and that as an adult they have to take me seriously. I don't really know what to do. I wish I had a starting point to go with. They already DID all those tests. They couldn't find anything. I don't know what it could be :confused:

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