Discussions By Condition: I cannot get a diagnosis.

Chronic headaches

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • March 11, 2008
  • 07:07 PM

First off thank-you in advance for any help you may give.

Here is my story. I have chronic headaches at least 5 days a week I have them and they last anywhere from a day to the longest one was 20 days even after taking over-the counter meds it just takes the edge off. Along with this I have sever fatigue to where I have actually spent 2-3 days in bed sleeping only to get up to eat and go to the bathroom. Will take along time to type this all out so I am going to put the list of symptoms I took to my Dr. only to get the siag. that I am depressed and he put me on progestrone for what he thinks I am low but with this I was in bed for a week.

1) Chronic headaches
2) Severe Fatigue
3)Inability to lose weight (unless I am preg. then it seem to just melt off until the baby is born the it comes right back)
4)Acne (Take Tetracycline)
5)Panic Attacks (take Effexor XR 150)
6)Chronic diarreha (was told it was IBS but have it prob 4 days a week I live on Immodium)
7)Very heavy periods (I try to stay home during that week it is so heavy)
8)Hair loss and very oily after 1 day
9)Very dry skin
10) I have started getting little strawberry (Red) spots on my chest and stomach
11) Hot flashes and night sweats
12) When I start in with the faigue I start to ache all over my body

I was tested for sugar and cusings syndrome but was told everything was normal I dont know where to go from here any help would be great.

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1 Replies:

  • Sorry to hear about your unpleasant symptoms. I hope you will find a doctor who takes you seriously and figures this out.I had almost daily headaches and profound fatigue (and a lot of your other symptoms) for years. It took 8 years, but eventually i was diagnosed with Hashimoto's Encephalopathy, which is a rare complication of autoimmune thyroiditis. According to one study, the two most common symptoms of HE are migraines and fatigue. It took me 8 neurologists to get diagnosed, because no one knows about HE yet, and most HE patients have normal thyroid hormone levels. I did not know I had the thyroiditis until the encephalopathy was diagnosed (by elevated thyroid ANTIBODIES). In fact, for years, I had been reassured that my gland was okay, but after my diagnosis, they did an ultrasound and it was full of tiny nodules from the autoimmune destruction. I had my thyroid checked at least six times (by TSH and T4 levels) before my diagnosis- and they were all normal.Another thing you may also want to rule out is celiac disease. I was going to also say Cushings, but it looks like they have checked for this already.Hope this helps!Best Wishes.
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