Discussions By Condition: I cannot get a diagnosis.

chronic gas/bloating/belching, please help!

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Anonymous
  • October 1, 2009
  • 01:36 AM

Hello,
I am a female in my twenties and for the past 3 years I have been suffering from chronic gas, bloating, belching, and weight loss (I am already a thin person so the weight loss is scary). Appetite can be very low also. I also have occasional loose stools, with sometimes undigested food, but that part does not bug me as much. I have had numerous tests: upper/lower GI & small bowel series, colonoscopy, upper endoscopy, celiac blood tests (including celiac serology), gastric emptying study, lactose intolerance test (positive, but I do not consume dairy anyway), gallbladder ultrasound, hida scan, pelvic ultrasound, liver enzymes, CT scan of abdomen, thyroid tests, vitamin B12 test, food allergy test (skin ****k showed multiple food allergies, but after months of avoiding those foods and no relief, I determined the test was probably not accurate. I then did the rast food allergy testing which revealed no food allergies), hydrogen breath test for bacterial overgrowth, parasite tests (I've had 4 so far), tests for C. Diff, fat malabsorption, and adrenal glands test. These tests revealed nothing. The only thing my GI doctor said about the colonoscopy was that my colon had lots of twists and turns, but that is something he frequently sees in smaller-framed people.
Then I went to an acupuncturist who ordered a bacteriology and yeast culture (through Genova). It revealed that my bifidobacterium was low and I had a slight candida problem (2+). So, I went on the candida diet, took oregano, bifidobacterium supplements, and eventually diflucan (for one week). Meanwhile I lost weight because of that horrible diet.
5 months later I had the CDSA (comprehensive digestive stool analysis) and I just got my results. Everything was normal (my bile salts, pancreatic enzymes, etc.), the candida had disappeared, but my bifidobacterium levels were still low and a potential bacterial pathogen was revealed (Citrobacter freundii,4+), anyone heard of it? Could this be the cause of my symptoms? There's not much information on it online, I've just seen that it can cause diarrhea, which is not my primary symptom.
The CDSA report listed a few antibiotics that were effective for citrobacter (such as Cipro) in addition to natural substances (plant tannins and uva ursi).
I am going to try the uva ursi for a week (everything I've read says it's dangerous to take for more than a week at a time) and if I don't feel better I'm tempted to try the antibiotics. I've also bumped up my bifidobacterium supplement (I'm taking an expensive, refrigerated supplement by Nature's Way so hopefully it is effective. If anyone can suggest a good bifidobacterium supplement, please share).
Does anyone have any insight into this problem? Could all of my issues be related to low bifidobacteria? If so, what could be the cause of this? I haven't taken antibiotics for awhile. Could the citrobacter prevent it from growing? (although the strange thing is, my first test did not reveal citrobacter...maybe the lab missed it the first time?)
Or could the main cause be the citrobacter? Also, I did try xifaxan for a week a couple of years ago and it did nothing for me. I'm wondering that if the main cause was the citrobacter, would the xifaxan have wiped it out?
I also wonder how accurate the Genova tests are and why most MD's do not order tests evaluating levels of good bacteria. Are these tests not considered accurate in Western medicine?
Can anyone suggest any other tests I should have ordered or supplements? (I've tried peppermint, ginger, levsin(nulev), levbid, reglan, pamine forte, xifaxan, bentyl, tums, pepto bismol, gas x, glutamine, oregano, cats claw, guacatonga, caprylic acid, anamu, pancreatic digestive enzymes (multiple kinds), fiber (which was awful for me)). The only supplement that gives me occasional relief is levsin (nulev), but often I feel that it just delays my symptoms.
Also, has anyone with my symptoms had success with cipro?
Also, I heard parasites are difficult to diagnose. I've sent in samples 4 times and it always turns up negative. Perhaps I should try an antiparasitic medicine anyway? Would that be harmful?
If anyone has any ideas, please share. I am desperate for an answer.

Sorry for the long post, thanks for reading and thanks for your help!

Reply Flag this Discussion

5 Replies:

  • How is your white count? also try phazyme, for gas and bloat. check for lymphoma.Hello,I am a female in my twenties and for the past 3 years I have been suffering from chronic gas, bloating, belching, and weight loss (I am already a thin person so the weight loss is scary). Appetite can be very low also. I also have occasional loose stools, with sometimes undigested food, but that part does not bug me as much. I have had numerous tests: upper/lower GI & small bowel series, colonoscopy, upper endoscopy, celiac blood tests (including celiac serology), gastric emptying study, lactose intolerance test (positive, but I do not consume dairy anyway), gallbladder ultrasound, hida scan, pelvic ultrasound, liver enzymes, CT scan of abdomen, thyroid tests, vitamin B12 test, food allergy test (skin ****k showed multiple food allergies, but after months of avoiding those foods and no relief, I determined the test was probably not accurate. I then did the rast food allergy testing which revealed no food allergies), hydrogen breath test for bacterial overgrowth, parasite tests (I've had 4 so far), tests for C. Diff, fat malabsorption, and adrenal glands test. These tests revealed nothing. The only thing my GI doctor said about the colonoscopy was that my colon had lots of twists and turns, but that is something he frequently sees in smaller-framed people.Then I went to an acupuncturist who ordered a bacteriology and yeast culture (through Genova). It revealed that my bifidobacterium was low and I had a slight candida problem (2+). So, I went on the candida diet, took oregano, bifidobacterium supplements, and eventually diflucan (for one week). Meanwhile I lost weight because of that horrible diet. 5 months later I had the CDSA (comprehensive digestive stool analysis) and I just got my results. Everything was normal (my bile salts, pancreatic enzymes, etc.), the candida had disappeared, but my bifidobacterium levels were still low and a potential bacterial pathogen was revealed (Citrobacter freundii,4+), anyone heard of it? Could this be the cause of my symptoms? There's not much information on it online, I've just seen that it can cause diarrhea, which is not my primary symptom.The CDSA report listed a few antibiotics that were effective for citrobacter (such as Cipro) in addition to natural substances (plant tannins and uva ursi).I am going to try the uva ursi for a week (everything I've read says it's dangerous to take for more than a week at a time) and if I don't feel better I'm tempted to try the antibiotics. I've also bumped up my bifidobacterium supplement (I'm taking an expensive, refrigerated supplement by Nature's Way so hopefully it is effective. If anyone can suggest a good bifidobacterium supplement, please share).Does anyone have any insight into this problem? Could all of my issues be related to low bifidobacteria? If so, what could be the cause of this? I haven't taken antibiotics for awhile. Could the citrobacter prevent it from growing? (although the strange thing is, my first test did not reveal citrobacter...maybe the lab missed it the first time?)Or could the main cause be the citrobacter? Also, I did try xifaxan for a week a couple of years ago and it did nothing for me. I'm wondering that if the main cause was the citrobacter, would the xifaxan have wiped it out?I also wonder how accurate the Genova tests are and why most MD's do not order tests evaluating levels of good bacteria. Are these tests not considered accurate in Western medicine?Can anyone suggest any other tests I should have ordered or supplements? (I've tried peppermint, ginger, levsin(nulev), levbid, reglan, pamine forte, xifaxan, bentyl, tums, pepto bismol, gas x, glutamine, oregano, cats claw, guacatonga, caprylic acid, anamu, pancreatic digestive enzymes (multiple kinds), fiber (which was awful for me)). The only supplement that gives me occasional relief is levsin (nulev), but often I feel that it just delays my symptoms.Also, has anyone with my symptoms had success with cipro? Also, I heard parasites are difficult to diagnose. I've sent in samples 4 times and it always turns up negative. Perhaps I should try an antiparasitic medicine anyway? Would that be harmful?If anyone has any ideas, please share. I am desperate for an answer.Sorry for the long post, thanks for reading and thanks for your help!
    Anonymous 42789 Replies
    • October 6, 2009
    • 00:41 PM
    • 0
    Flag this Response
  • How is your white count? also try phazyme, for gas and bloat. check for lymphoma.I believe last time they checked my white count was low. I thought it was low b/c of my body fighting candida. I don't know though. I think I've tried phazyme and it doesn't help.How would I check for lymphoma?Thank you!
    Anonymous 42789 Replies
    • October 7, 2009
    • 10:24 PM
    • 0
    Flag this Response
  • Hello,I am a female in my twenties and for the past 3 years I have been suffering from chronic gas, bloating, belching, and weight loss (I am already a thin person so the weight loss is scary). Appetite can be very low also. I also have occasional loose stools, with sometimes undigested food, but that part does not bug me as much. I have had numerous tests: upper/lower GI & small bowel series, colonoscopy, upper endoscopy, celiac blood tests (including celiac serology), gastric emptying study, lactose intolerance test (positive, but I do not consume dairy anyway), gallbladder ultrasound, hida scan, pelvic ultrasound, liver enzymes, CT scan of abdomen, thyroid tests, vitamin B12 test, food allergy test (skin ***** showed multiple food allergies, but after months of avoiding those foods and no relief, I determined the test was probably not accurate. I then did the rast food allergy testing which revealed no food allergies), hydrogen breath test for bacterial overgrowth, parasite tests (I've had 4 so far), tests for C. Diff, fat malabsorption, and adrenal glands test. These tests revealed nothing. The only thing my GI doctor said about the colonoscopy was that my colon had lots of twists and turns, but that is something he frequently sees in smaller-framed people.Then I went to an acupuncturist who ordered a bacteriology and yeast culture (through Genova). It revealed that my bifidobacterium was low and I had a slight candida problem (2+). So, I went on the candida diet, took oregano, bifidobacterium supplements, and eventually diflucan (for one week). Meanwhile I lost weight because of that horrible diet. 5 months later I had the CDSA (comprehensive digestive stool analysis) and I just got my results. Everything was normal (my bile salts, pancreatic enzymes, etc.), the candida had disappeared, but my bifidobacterium levels were still low and a potential bacterial pathogen was revealed (Citrobacter freundii,4+), anyone heard of it? Could this be the cause of my symptoms? There's not much information on it online, I've just seen that it can cause diarrhea, which is not my primary symptom.The CDSA report listed a few antibiotics that were effective for citrobacter (such as Cipro) in addition to natural substances (plant tannins and uva ursi).I am going to try the uva ursi for a week (everything I've read says it's dangerous to take for more than a week at a time) and if I don't feel better I'm tempted to try the antibiotics. I've also bumped up my bifidobacterium supplement (I'm taking an expensive, refrigerated supplement by Nature's Way so hopefully it is effective. If anyone can suggest a good bifidobacterium supplement, please share).Does anyone have any insight into this problem? Could all of my issues be related to low bifidobacteria? If so, what could be the cause of this? I haven't taken antibiotics for awhile. Could the citrobacter prevent it from growing? (although the strange thing is, my first test did not reveal citrobacter...maybe the lab missed it the first time?)Or could the main cause be the citrobacter? Also, I did try xifaxan for a week a couple of years ago and it did nothing for me. I'm wondering that if the main cause was the citrobacter, would the xifaxan have wiped it out?I also wonder how accurate the Genova tests are and why most MD's do not order tests evaluating levels of good bacteria. Are these tests not considered accurate in Western medicine?Can anyone suggest any other tests I should have ordered or supplements? (I've tried peppermint, ginger, levsin(nulev), levbid, reglan, pamine forte, xifaxan, bentyl, tums, pepto bismol, gas x, glutamine, oregano, cats claw, guacatonga, caprylic acid, anamu, pancreatic digestive enzymes (multiple kinds), fiber (which was awful for me)). The only supplement that gives me occasional relief is levsin (nulev), but often I feel that it just delays my symptoms.Also, has anyone with my symptoms had success with cipro? Also, I heard parasites are difficult to diagnose. I've sent in samples 4 times and it always turns up negative. Perhaps I should try an antiparasitic medicine anyway? Would that be harmful?If anyone has any ideas, please share. I am desperate for an answer.Sorry for the long post, thanks for reading and thanks for your help!Hi,I'm having the same problem with the citrobacter freundii now and I was wondering if you had any success getting rid of it?and if you did, what did you used for that?Thank you
    bbbvvv 1 Replies Flag this Response
  • Hi,I'm having the same problem with the citrobacter freundii now and I was wondering if you had any success getting rid of it?and if you did, what did you used for that?Thank youHi,I've been fighting a 4+ C. freundii infection for the past 7 months. I've been researching it all the while, and I can tell you that there isn't a lot of info on this pathogen.Some background: I believe I contracted the bacteria via food poisoning, some pizza I think. Symptoms are white/yellow tongue and acne, had gastrointestinal problems at the onset when it was at its worst. Had a CDSA which confirmed the Citrobacter and also showed low Bifidobacteria.After lots of trial and error, I'm doing better. Still have a ways to go, though. I've used doxycycline, oregano oil, uva ursi, glutamine, digestive enzymes, olive leaf, garlic, lots of vitamin supplementation, massive (on the order of 1 trillion) probiotic supplementation, mutaflor, cinnamon, and more.I want to say that doxycycline worked somewhat for me, however I was on it for 6 weeks or so and the improvement was minor at best. Uva ursi and oregano oil worked somewhat as well, but were slightly less effective than doxycycline. Digestive enzymes combined with an incredibly restrictive diet has worked best; I eat meat/fish, grapes, peeled apples/apple sauce, honey, eggs, and some peanut or almond butter as a treat. The key with the diet is no starch and as little fiber as possible, as well as no disaccharides (no sugar or sugary foods except honey). With each meal I take enzymes. The combination of this diet and enzymes has provided relatively immediate relief - results in 2 or 3 days - but it's hard to stay on.Probiotics and vitamin supplementation did nothing noticeable for me. With the possible exception of mutaflor (E. coli probiotic), which I've only taken for several days and which seemed to help a little bit. I also tried Primal Defense, but did not see much improvement on that. I will try it again for a longer time.I feel that ciprofloxacin would do well against C. freundii, but I'm afraid to take it due to side effects. My next step was going to be rifaximin, but after reader what the first poster said about how xifaxan (rifaximin brand-name) might have caused the problem, I'm a bit leery of that too.One bit of advice: C. freundii eats lactose (in addition to fiber and starch). Avoid all dairy except for butter, cheese, and yogurt. Even yogurt might be too much, unless you ferment it yourself for 24 hours.I wish I could be of more help. I'm still struggling with it myself, so I can't give you a success story. My next plan, and what you might want to consider trying is exactly as follows, based on my experience with C. freundii:- 1200mg Rifaximin for 10 days, taken with food (I would take it at night)- 5g partially hydrolyzed guar gum, taken with food and rifaximin (again, at night)- 24 hour cultured yogurt (must make it yourself), taken at least 2 hours before or after Rifaxmin (I would take it in the morning)- Mutaflor, taken with yogurt (in the morning. I'll note here that Mutaflor is illegal in the US, so you might have to go to Canada or Europe. You can't have it shipped to the US, however the company that makes it will ship to a hotel in Canada or w/e)- I might add Primal Defense in for added kick, taken with the probioticsIt's your body, so don't take my word on this. Do research. And if you decide to do this, or something like this, share your experiences, please!
    Quetzl1 1 Replies
    • August 21, 2012
    • 09:07 AM
    • 0
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  • Hi folks!
    I have the exact same thing!
    Did you solved it? How?

    Please its so much important your answer.. i´m struggling :/

    Best Regards
    Pedro Silva
    Anonymous 1 Replies
    • February 1, 2016
    • 02:26 PM
    • 0
    Flag this Response
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