Hello all, I hope one of you can help me. My problem is that I’ve suffered from sometimes debilitating fatigue and sleepiness over the last 15 years or so (I’m 28). My symptoms are daily and overwhelming tiredness where I feel weak and the urge to sleep is powerful. I sleep at least 12 hours every night with 2-4 hour naps during the day. Once a month or so I spend a solid 2-3 days asleep. I only get up for an hour or two to eat and go to the bathroom. Sometimes I wake up in the afternoon and realize how late it is, I will try to move my limbs but am powerless to do so, and they feel like they aren’t even connected to me. I WANT to get up but my body will not co-operate. I just give up and end up sleeping more. I do have ‘good days’ where I feel like I have a lot of energy and get errands done. I just wish every day were like this.
I was tested for narcolepsy because I display some symptoms but the test was negative. I have also had blood work done (thyroid, diabetes, etc.) and everything came back normal. I take 150 mg of Effexor and hormonal BC which are unrelated to my problems. The only odd thing I noticed about the Effexor is that caffeine used to make me very tired (not a crash, but almost immediately after) but now that I take it, caffeine does make me a little more alert.
I hope someone can help. I can’t work a normal job (I work from home) and had to drop out of college because I spent so much time asleep. I neglect almost everything I can in life and often fantasize about sleeping when I am awake. Sometimes the only way I can get things done is to do it as fast as possible and tell myself I can sleep again as soon as I get home. I’m open to any suggestions.