Discussions By Condition: I cannot get a diagnosis.

Chronic extreme joint pain "Snapping & poping"

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • October 19, 2009
  • 03:35 PM

I have been suffering from chronic joint pain that is taking over my life. It is continually getting worse and worse to the point now its very hard to walk with out a cane. I am trying to hide this from my kids, however my wife is a RN who is trying as much as she can to help.
Some years ago I began to notice pain in my ankles mostly but in other joints as well. Approximately 3-4 years ago I started seeing a very caring doctor who has not been able to give a diagnoses. Rheumatoid Arthritis tests have all came back negative, and x rays done by a specialist who deals primarily with Rheumatoid Arthritis and the like who said I had tennis elbow, said I did not have Arthritis.
What is going on is any time I work physically for a hour or more my joints give me pain around a 9 or 10. Meaning I can not hardly move at all and then I must lye down and wait for extra pain medication to begin to work before I am able to get up and do anything at all. Usually there is a snapping or popping and immediately following that extreme pain. Recently I have felt what seems like my hip "coming out of place".
This condition is steadily getting worse and I am scared that in the future I will not be able to walk etc. Any help would be greatly appreciated.
Thank you.
Papa G

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  • I have been suffering from chronic joint pain that is taking over my life. It is continually getting worse and worse to the point now its very hard to walk with out a cane. I am trying to hide this from my kids, however my wife is a RN who is trying as much as she can to help. Some years ago I began to notice pain in my ankles mostly but in other joints as well. Approximately 3-4 years ago I started seeing a very caring doctor who has not been able to give a diagnoses. Rheumatoid Arthritis tests have all came back negative, and x rays done by a specialist who deals primarily with Rheumatoid Arthritis and the like who said I had tennis elbow, said I did not have Arthritis. What is going on is any time I work physically for a hour or more my joints give me pain around a 9 or 10. Meaning I can not hardly move at all and then I must lye down and wait for extra pain medication to begin to work before I am able to get up and do anything at all. Usually there is a snapping or popping and immediately following that extreme pain. Recently I have felt what seems like my hip "coming out of place". This condition is steadily getting worse and I am scared that in the future I will not be able to walk etc. Any help would be greatly appreciated. Thank you.Papa GChronic joint pain is one of the signs of Lyme disease. There are many symptoms but this one is a big one especially if your joint pain is migrating. For example, if one day your hips are killing you and the next week it is now your knees and then it's your hands and feet, that is very common in Lyme disease. Watch this video clip and visit ILADS.org and turnthecorner.org. http://www.snagfilms.com/films/watch/under_our_skin/
    Anonymous 42789 Replies
    • October 20, 2009
    • 05:08 PM
    • 0
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  • Chronic joint pain is one of the signs of Lyme disease. There are many symptoms but this one is a big one especially if your joint pain is migrating. For example, if one day your hips are killing you and the next week it is now your knees and then it's your hands and feet, that is very common in Lyme disease. Watch this video clip and visit ILADS.org and turnthecorner.org. http://www.snagfilms.com/films/watch/under_our_skin/First I would like to thank you for taking the time to read and then post on this thread. I have been tested for Lyme disease and it came back negative. I have heard that false negatives are some what common. I have been on narcotics for over three years now and recently ran out of the Methadone and the Oxy-codone for a few days and became very sick from withdrawals. I have to say I am very frightened of not being able to walk in the near future as it is becoming extremely difficult to simply walk. I would at the very least know what the ***l I am dealing with. One "Specialist" determined that what I had was "Tennis Elbow". So here I am attempting to deal with something that is getting much worse by the day, and I have no idea as to what it is that is begining to control my life more and more with each passing day. I am not the type to coomplain and I have kept this to myself formany years till which point I could no longer hide nor deal with the extreme pain on my own. The narcotics to help somewhat however the pills are only treating some of the symptoms and not the problem.
    Anonymous 42789 Replies
    • October 23, 2009
    • 02:01 PM
    • 0
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  • First I would like to thank you for taking the time to read and then post on this thread. I have been tested for Lyme disease and it came back negative. I have heard that false negatives are some what common. I have been on narcotics for over three years now and recently ran out of the Methadone and the Oxy-codone for a few days and became very sick from withdrawals. I have to say I am very frightened of not being able to walk in the near future as it is becoming extremely difficult to simply walk. I would at the very least know what the ***l I am dealing with. One "Specialist" determined that what I had was "Tennis Elbow". So here I am attempting to deal with something that is getting much worse by the day, and I have no idea as to what it is that is begining to control my life more and more with each passing day. I am not the type to coomplain and I have kept this to myself formany years till which point I could no longer hide nor deal with the extreme pain on my own. The narcotics to help somewhat however the pills are only treating some of the symptoms and not the problem.I have suffered with chronic joint pain for many years. Some days extremely painful other days just an annoyance. I have been being treated for lyme disease for over two years and still have pain although most days can cope without pain meds. I have been on multiple courses antibiotics and other medications that help treat other symptoms that pop up. In the beginning of treatment my lyme test came up negative but have been treated anyway based on symptoms and where I have been/lived. At first everything flared - massive pain, cold sores, other infections, rashes, and brain fog. I was told that this might happen and it did. This was a confirmation in the Dr.'s words, because of the reaction there was a confirmation. I was thrilled that finally someone listened to me about what was happening.I was 45 at the time and had been having pain on and off for many years. the hope was to have a 90 % progress rate by now but sadly not. I really don't know when or if it will be manageable, i'm frustrated and like you afraid that there is no end. I hate taking all the different medications and would love to rely on supplements and take several of them to help relieve symptoms. I do have to say I don't flair as often.sometimes it is just better to talk to someone going thru the same thing. I will say that If I know I will be doing anything of a more physical nature I take pain meds ahead of time. I still hike, backpack, kayak, garden and work a demanding job with special needs students. I try to not stop moving for more that a couple hours ( other than bed at night) to keep my mind off of pain and find it helps. I usually hurt the most in the morning when I get up.When I have injured myself accidentally( a fall or such) I do notice that there is usually more pain than one would think would be associated with it and I have started to bruise alot easier. Some coping things - wet heat, like steam bath, hot tub or just a plain hot bath relieves some of the pain. Cold sometimes just hurts. I ice bruises but with a buffer between it and the skin. If I have been taking prescription strength pain meds for more than a week I try to cut down to the least I can get away with. last summer I had not taken anything stronger than extra strength ibuprofen and had several completely pain free days- that is where my hope lies. Pain free with no meds. i hope this helps you even a little. I still search for locals that can share their experience and what helps them.
    Anonymous 42789 Replies
    • December 11, 2010
    • 00:01 AM
    • 0
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  • I have been suffering from chronic joint pain that is taking over my life. It is continually getting worse and worse to the point now its very hard to walk with out a cane. I am trying to hide this from my kids, however my wife is a RN who is trying as much as she can to help. Some years ago I began to notice pain in my ankles mostly but in other joints as well. Approximately 3-4 years ago I started seeing a very caring doctor who has not been able to give a diagnoses. Rheumatoid Arthritis tests have all came back negative, and x rays done by a specialist who deals primarily with Rheumatoid Arthritis and the like who said I had tennis elbow, said I did not have Arthritis. What is going on is any time I work physically for a hour or more my joints give me pain around a 9 or 10. Meaning I can not hardly move at all and then I must lye down and wait for extra pain medication to begin to work before I am able to get up and do anything at all. Usually there is a snapping or popping and immediately following that extreme pain. Recently I have felt what seems like my hip "coming out of place". This condition is steadily getting worse and I am scared that in the future I will not be able to walk etc. Any help would be greatly appreciated. Thank you.Papa GI too, sound like a box of Rice Krispy's! Do you have Rh Negative Blood or come form an Rh Negative family? Have you been tested for HLA-B27? Have you heard of Ankylosing Spondylitis? Did they say it was Bursitis? Have you ever tried a gluten/starch free diet? If this sounds like something you may be dealing with please check out the research on RhNegativeRegistry.com - Good Luck!
    thefarrellfam 46 Replies
    • February 26, 2011
    • 07:50 AM
    • 0
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