Discussions By Condition: I cannot get a diagnosis.

Chronic coldness & other symptoms

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: ldhammett
  • October 16, 2008
  • 01:13 PM

My thyroid has been tested multiple times and seems fine. However, I am constantly so cold that I often have to get in a tub of scalding water to stop shivering. Extra clothes don't help and the coldness IS NOT in my extremities to nearly the degree I feel is in my upper arms and core. It is genuinely painful and is only eased if I warm up from the inside out via hot beverages or as I mentioned an extremely hot bath.

I have also been trying to get a diagnose for (ironically) sun sensitivity that began seven years ago (I'm 39). Any exposure to the sun and sometimes even just flourescent lights results in either 2-3" flat plateau like lesions or a concentrated rash. I've tested negative for Lupus. Could these two be connected? My pcp and my rheumatologist don't seem to think so. Any thoughts would be profoundly appreciated.

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4 Replies:

  • What helpful information! Thanks so much. I haven't been tested for any of those possibilities, nor was I even aware of them. I will begin researching now and appreciate your thoughts.
    ldhammett 1 Replies
    • October 17, 2008
    • 02:23 PM
    • 0
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  • Have you had your Thyroid Antibodies tested? My daughter had many thyroid tests come back negative even though she had all the symptoms of hypothyroidism until her Pedi tested her Thyroid Peroxidase Antibody level which came back elevated-now he suspect Hashimoto's and is sending us to an Endocrinologist. Evidently, the "normal" thyroid tests don't always include this one and your body could be attacking your thyroid without it showing up on TSH, T3, or T4. All of hers were normal EXCEPT the antibody test. You might want to check it out.
    softballmom73 7 Replies
    • October 18, 2008
    • 04:20 AM
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  • My thyroid has been tested multiple times and seems fine. However, I am constantly so cold that I often have to get in a tub of scalding water to stop shivering. Extra clothes don't help and the coldness IS NOT in my extremities to nearly the degree I feel is in my upper arms and core. It is genuinely painful and is only eased if I warm up from the inside out via hot beverages or as I mentioned an extremely hot bath. I have also been trying to get a diagnose for (ironically) sun sensitivity that began seven years ago (I'm 39). Any exposure to the sun and sometimes even just flourescent lights results in either 2-3" flat plateau like lesions or a concentrated rash. I've tested negative for Lupus. Could these two be connected? My pcp and my rheumatologist don't seem to think so. Any thoughts would be profoundly appreciated.My Mom had lupus. she was extremely sensitive to the sun and cold a lot. she would have red lesion type rashes too, but that was from vasculitis. Good luck
    Anonymous 42789 Replies Flag this Response
  • Hi,I too am always cold. I am sitting here writing to you with the room temperature at 75 degrees, but I am wearing a shirt, sweater and heavy thermal sweatshirt because I am still freezing. I also have a sun allergy. I have PMLE ( Polymorphic light eruption). I break out when I am in the sun (except for my face). I have had good luck with neutragena spf 85 sun spray. You have to make sure that you get everywhere because the one spot you miss is where you break out. Have you had any luck with a diagnosis?? I really wish I would not be freezing all the time. Thanks. Maria
    Anonymous 42789 Replies Flag this Response
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