Discussions By Condition: I cannot get a diagnosis.

Chrones disease, please help

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Belinda
  • April 20, 2007
  • 02:54 PM

I was diagnosed with chrones disease in 2000.
Right about that time I started haveing severe leg and back pain.
I have been to many many many different Drs walking
away most of the time feeling lik a full blown idiot and
a drug seaker.I have had many x-rays, MRI's and any other
madical machine they could stick me in, poke me with,
have urined in everything from a jar to a jug.
I have honestly started questioning my own mental health.
Maybe I am crazy and the pain is all in my head.........NOT.
I had another Chrones flair up sunday the 15-(i think) 07.
I was ill to the point of haveing to be admitted to the hospital for 3 days.
The Chrones is pretty much settled down but my back and legs are
worse now then they have ever been.
My back hurts like I have never felt it hurt before, it's even a different kind of hurt. It is a mix between a ton of pressure on the bottom of my spine and a throb that feels like a heart beat in the same erea as the pressure.It gets worse when I have to go to the bathroom and doesnt really let up after I go.
Is there anyone out there they relates in even the smallest way?
I am currently on medication called percocet, suppost to take 2 every 6 hrs
but I'm haveing to take 4 every 4 hrs for it to help even a little bit.
But within 2 hrs the meds arn't working any longer.
Please,Please, Please if any one can offer any advice I am all ears.

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3 Replies:

  • Hello-Please be all ears and all action :p Look into:NAETOriental MedicineReikiPlease run a search on this message board for the word NAETand visit NAET.comyou are not alone :)We are here trying to connect the dots- so we can all feel better soon.Best,Maribel
    Eatafruit78 960 Replies Flag this Response
  • Yes, I can relate. I am scheduled to get a colonoscopy 5/10 which should shed some light. If it is not colon cancer (which I will feel a lot better once ruled out), my best educated guess is that it is due to my adenomyosis and endometriosis. In 50% of cases endo grows on the bowel, ileal sacral ligaments and cul de sac (which put pressure on lower back and affects nerves) in addition to outside of the uterus. My uterus is tipped and I believe if it is not actually endo, it is the pressure of my inflamed uterus from adenomyosis hitting my lower back. I am also scheduled for an MRI of lower back (next friday) to rule out cancer, degenerated disc there as well. Hope this gives you some clues. Be especially suspicious if symptoms worsen around your period.
    Anonymous 42789 Replies Flag this Response
  • I agree with Eatafruit, try NAET - it is really brilliant. Also, as an Oriental Medical practitioner I think acupuncture would be very helpful in getting yourself back in balance. If you can find an acupuncturist who is also certified in Chinese Herbal medicine it would really help your Crohn's symptoms. It is also good for pain, and endometriosis as well. Best wishesDOM
    acuann 3080 Replies Flag this Response
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