Discussions By Condition: I cannot get a diagnosis.

child needs help

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: edgymom
  • March 26, 2008
  • 04:45 AM

my 3yr old was perfectly healthy until she was a little over a year. I had recently stopped breast feeding and she was also taking formula. After she turned 1yr old she would vomit occasionally and i mean exorcist type for about six months this went on. After taking her to the hospital and regular doctor about 20 times each they said she had asthma. So I treated her for this. That same year she had also had two eye surgeries for a lazy eye that was 20/20 vision. She is now 3yrs old and since she turned 2 we have discovered she has allergies to peanuts, cats, dogs and been possible diagnosed with autism, her vision is now 20/50 in her good eye. Her asthma has been under control only needing medicine 2x's during winter until this year when she turned 3 she now has to take it all the time. She also has to take acid reflux pills because she still vomits and leads to asthma problems or vice versa. Unfortunately since November when she started school she's been taking medicine continuously but she can only get rid of this contant cough she has for a couple days then it returns. The cough is what leads to the vomiting, breathing difficulty sometimes there is not breathing problem but the medicines don't seem to make her better as months pass she only seems to increase her intake of medications. She will be asleep and cough all night and vomit without waking up until her bed is soaked in vomit. It just seems like her list is piling up. She is in speach therapy because she had developed a slur when she was 2and a half which not has developed into stuttering since she's been in school. My daughter will be four soon. As I would just liked to keep her happy, healthy does anyone know why she is getting worse. I've been told she is high functioning autistic because she is extremely smart but does not show any other signs of asburgers. It seems every six months she develops another illness. I'm just wondering if there all related or if I'm going to have to handle a dozen different diagnosis.:(

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9 Replies:

  • Serious reaction to milk products and gluten very likely. Needs enzymes. Look up Enzymedica. Been my experience that the doctors will just drug and drug keeping the illness path alive and well. Child likely very delicate in constitution. Getting away from food industry highly recommended. White flour, milk, meat, white sugar, refined oil all poisonous.
    apollocircle 1 Replies Flag this Response
  • yes, I would get her off wheat and dairy; it could have been the shots, but...now let's get her to a neurologist. There was a show on Mysterious Diagnosis with a child about her age vomiting at night and not waking up. They discovered that she had a very very rare form of epilepsy and got her on meds and she is doing much better. They have to hook her up and put the camera on her all night to get a proper diagnosis. The child's readings were fine during the day and it only happened when she was sleeping; thus, the rare form of epilepsy. Have her checked for OT services by the school, too, since she is in speech, she would do well to be evaluated for OT.
    Monsterlove 2921 Replies Flag this Response
  • yes, thank you as I have in the past two days quit giving her milk at night because that was another thing for the first two years she would drink juice thoughout the night at least 4 glasses, I quit and went to milk and she would drink 3 cups but now am not giving anything to drink. Which this may have contributed to the possible acid reflux as no one has tested her for any of they diagnosis they have given her. Although I did get the allergist to test her and says she is not allergic to any milk,wheat,soy or any of that just peanut. What is OT
    edgymom 1 Replies Flag this Response
  • It does sound as if the diagnosis of asthma to explain the cough, is at least questionable. It might be worth meeting with your Dr and explaining (maybe with a pre written list) why you don't think the current diagnosis is correct. Sometimes if things are misdiagnosed the Dr just looks at the new symptoms that are happening and nobody stands back and re evaluates if the original diagnosis is correct. There are a number of rarer lung conditions that could lead to a persistent cough - and as you say vomiting. Just one point, there may not be 1 diagnosis to explain all the symptoms. For example, the lazy eye and allergies may just be coincedence, especially as they are both pretty common.
    ruth40 55 Replies Flag this Response
  • "Lazy eye" (strabismus or amblyopia) is associated with many genetic conditions. I would see a geneticist.
    aquila 1263 Replies Flag this Response
  • I didn't know lazy eye could be linked to genetic problems, so sorry about that. I guess the point I was just trying to make is that sometimes (although not always) a list of symptoms can look very confusing as the symptoms are not actually all linked to one condition.
    ruth40 55 Replies Flag this Response
  • OT= occupational therapy; many kids in speech may qualify for services. They will check her balance and small muscles and mainly work on handwriting and using scissors, among other things. I'm sure you are following through with regular check ups for the lazy eye. It must be completely treated by age 7 or there will be permanent damage. I thought you said she had surgery. Follow through with the psychological eval, too. The school will be required to do one if you ask.
    Monsterlove 2921 Replies Flag this Response
  • This probably isn't related, but everything is worth mentioning. I was watching Mystery Diagnosis and they had a little girl on that would cough and then projectile vomit in her sleep, when she woke she had no memory of it. It turned out to be an atypical seizure. A simple test (I can't remember what it was called, something like an eeg where they tape electrodes to her head and watch her brain activity) diagnosed it. Good luck, I have a 3 yr old daughter, too.
    brandic77 10 Replies Flag this Response
  • This probably isn't related, but everything is worth mentioning. I was watching Mystery Diagnosis and they had a little girl on that would cough and then projectile vomit in her sleep, when she woke she had no memory of it. It turned out to be an atypical seizure. A simple test (I can't remember what it was called, something like an eeg where they tape electrodes to her head and watch her brain activity) diagnosed it. Good luck, I have a 3 yr old daughter, too. Didn't I say that several posts back??? Yes, I agree again again.
    Monsterlove 2921 Replies Flag this Response
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