Discussions By Condition: I cannot get a diagnosis.

Chiari Malformation Decompression Twice

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Patsyann
  • February 24, 2012
  • 10:11 PM

Hi. I'm new here. My husband had chiari malformation decompression surgery twice 10/09 and 9/11. He did great both times for three months and then the symptoms returned. We are consulting with our NS, Dr. Oro in Colorado and waiting for his report on new MRI's but I think they will be normal. And because of spine issues we are seeing NS at Mayfield Clinic in March. Because my husband did great and all symptoms relieved for three months both times does it not stand to reason that there is a primary issue being missed? I keep asking about tethered spine but no one seems to think that is an issue. Is there anyone here who might know of anything else it could be. Chiari Malformation is not considered a disease because it is not progressive, but he does get progressively worse with his symptoms so now I am wondering if there is some connections. My husband has a lot of things that doctors are not use to seeing with Chiari. He has loss of balance, slurred speech, bladder and bowel issues and sexual difficulties. But, the biggets and hardest for me to deal with is his behavior changes. He takes on a childlike behavior and seems to lose his social boundries. If you can help it will be sooo appreciated. Thanks. Patsy

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