Discussions By Condition: I cannot get a diagnosis.

cfs curious

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • June 30, 2007
  • 03:00 AM

i am a fellow cfs diagnosee. positive ebv (although i never recall having mono) positive hhv6. my mom and sis also have ebv.
Is it possible to pass ebv to others via blood transfusion? by giving birth?

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4 Replies:

  • My guess is yes. After being diagnosed with ME/CFS, a person is not allowed to donate blood any longer. CFS is viral in nature, or the residual effects of having a virus. There are many people who noted symptoms began after a blood transfusion but tested negative for HIV.Hope this helps.:)
    mommy cat 1,654 Replies Flag this Response
  • cdh, that is a pretty tough question and I doubt there is an easy answer. Congenital infection with EBV is I believe, supposed to be rare (which makes sense since everybody would be EBV positive otherwise). I think it might be different if the mother is actively infected at the time. HHV-6 I think is also rare but CMV transmission is more common. As for blood transfusions, I believe that it is possible to transfer EBV and that because it is so common it is not always screened for (ditto for CMV and HHV-6).
    Anonymous 42,789 Replies Flag this Response
  • My guess is yes. After being diagnosed with ME/CFS, a person is not allowed to donate blood any longer. CFS is viral in nature, or the residual effects of having a virus. CFS as far as they know isnt necessarily viral in nature.. some have gotten it after trauma eg accidents or after organo phospate exposure. In some countries people with CFS ARE still allowed to donate blood (well still was a year or two back, Im unaware that that has changed here, very much doubt it). I say this as I was still donating blood with the CFS where I live and a couple of times I actually queried the blood nurses about it as I thought it was a bit strange that I was still being allowed to donate...and the questionaire thing one fills out first didnt have any question in it for me to note the CFS down. Anyway the nurses specifically told me there was nothing there about me not being allowed to donate. So I gave 3 "infected" lots of blood over a year in which I was relapsing quite badly. Only stopped that once I heard a couple of CFSers say they had gotten CFS after a blood transfusion and they were blaming the blood from it. (Im in Australia. Now wouldnt it be good if they could follow up the ones my blood went too.. to see if they ended up with CFS!!!!! stupid blood bank...as I was so so sick at the time and love helping people, I thought just sitting down and getting blood taken, was something good I could do for people as I wasnt capable of doing much else, I wasnt capable of doing volunteer work or anything, far too sick). ...................................... cdh.. I assume by positive infections you were talking about they were positive for past exposure and not currently active ones. Most people test positive to past exposure. If you are talking about positive test for past exposure (eg it would then be dormant in your body).. well as nearly every one by a certain age tests positive for that. You shouldnt be concerned. There thou is a risk with CFSers that we have reactiving infections eg dormant ones becoming active again. As far as i know it isnt dangerous for the baby of a pregnant person to have EBV. As Kenn said.. CMV transmission (if the CMV was active) does happen and is very dangerous for the baby.. can cause miscarriages and other major defects in the baby. HHV-6 isnt reliably screened for yet.. and there are two types of this HHV-6 A and HHV-B .. nearly everyone carries HHV-B but its been found that CFSers usually carry HHV-6 A (which is uncommon). (Having one may disclude the other, thou in very rare cases a person has been found to have both). The HHV-6A should be being studied but as far as I know its not really being looked at!!! (probably cause their aint very relable screening tests yet).
    taniaaust1 2,267 Replies Flag this Response
  • In some countries CFS/M.E. is not specifically listed as an exclusionary illness which prevents you from legallydonating blood while in other countries M.E. sufferers are specifically banned. If you have M.E. (or even suspectyou have M.E.) however you should not donate blood whatever the law states (because of the possibility ofinfectious agents being passed on through your blood).
    mommy cat 1,654 Replies Flag this Response
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