Discussions By Condition: I cannot get a diagnosis.

CFIDS? Diabetes? Still don't know.

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Plastikfear
  • March 30, 2010
  • 04:04 PM

Ok this all started in 2007 when I was 180 lbs and wanted to lose weight for breast reduction surgery. I was 28, (female), 5'3". Within 5 months I lost 50 lbs and weighed 130. I was going to the gym a lot, and excersized well. But afterward I would feel exhausted, not exhilerated. I felt so lethargic, sleepy, and fatigued. I started finding that I had excessive bruising from things that wouldn't seem to give a bruise (light bump on a table or something), that would take a while to heal. I've always had frequent headaches, since I was little so I didn't include that in my list of symptoms for my doctor at the time. I had a constant sore throat and weird brown spit in the morning. My doctor ran a lot of tests and thought I had leukemia (gasp!) but that came out negative. They did lots of different tests and found nothing wrong so so of course the problems continued. The dentist said I had light gingivitis causing the brown spit so I got my teeth cleaned and swished with special mouthwash that also helped the sore throats. The tiredness was never cured but is intermittent. The doctor said the bruising problem was because my lamictal I take for bi polar makes my platlets sticky.

Here is a list of all the symptoms that I have:
Sometimes, intermittently I experience extreme thirst
Frequent headaches, occasional migraines
Frequent urination (currently being treated with detrol)
Sores or bruises that heal slowly - intermittent as well
IBS, stomach & bowel issues w/ frequent diarrhea
General malaise
Blurry vision
Unusual tiredness or drowsiness
Tingling or numbness in the hands or feet (doctors attribute to nerve problems due to misaligned vertebrae that pinch mysles and nerve tissue in my neck and shoulders)
Intermittent/occasional recurring vaginal yeast infections
Occasional sleep disorders
Anxiety & Panic Disorder
Bi Polar (Type II Mixed-State)

I was reading up on this and some of these are common symptoms of diabetes. I was tested for this as well as everything under the sun recently (including STDs). My doctor tested for as many things as possible (thank god I have insurance) and all she found was Vitamin D deficiency (but I live in Seattle and she tested me in April 2009, so thats no surprise).
I had a pap done, came out clear for STDs. My thyroid was checked. Liver, kidneys, etc. Blood sugar normal. They found nothing wrong. Since she ruled out all things, she said "stress". I asked about CFIDS and she said its a possibility but since not much is known about it, and there's a lot of variables between different symptoms and possible causes, she could not make a definitive professional diagnosis of it, and stated it was due to stress in my life such as work, living situation, diet, poor sleep habits, etc.
I've had the fatigue issue off and on since I was in high school. Headaches since I was in grade school. IBS since before kindergarten. Yes I was tested for gluten intolerance and other allergies. I did notice peppers and dairy often cause problems, but even w hena voiding these foods I experience frequent IBS symptoms.

I really at this point don't know what in the world is wrong with me. Some have suggested there isn't anything wrong and its all in my head. I think that is crazy, though sometimes anxiety does manifest itself physically. But not to the extent that I am experiencing the above issues (except the sore throats and brown spit in the morning).

Any thoughts? My doctor has none and thus doesn't discuss the issues anymore. I'm at a loss. I'm currently reading a book about CFIDS and it sounds like the closest thing.

I appreciate any input or ideas on what it may be. (yes I already tried the B12 deficiency issue with the methylcobalamin route, as well as I do not live near cell towers, so those 2 people with those common answers need not respond, thank you).


Reply Flag this Discussion

5 Replies:

  • I think that for most of your symptoms can yeast. Just think. Perhaps the yeast settled down somewhere in your body and make problems...I am not super in English but I think I understand your long post:)
    Anonymous 42789 Replies Flag this Response
  • Sounds like a autoimune disease
    Anonymous 42789 Replies Flag this Response
  • any auto immune disease in particular?
    Plastikfear 64 Replies Flag this Response
  • Check your potassium levels. Just a guess. Google; Bruising, Low Potassium.
    Dreadthedays 7 Replies Flag this Response
  • Yeah potassium was checked and came out ok. The bruising they said was from my lamictal.
    Plastikfear 64 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.