Discussions By Condition: I cannot get a diagnosis.


Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Lookhere
  • January 11, 2013
  • 08:18 PM

It started with a limp and back ache, had 3 month wait for a doctor, mean while the limp would go for bit then stop and start for no reason...I could be in the yard...one thing that could do it EVERY time was to start to run...I would take off and it would be like running in thicker and thicker mud then I would have "gait" issue for a while...during this 3 months the "Gait Time" Increased and the normal time decreased..around the the 3 month they found an active compression at c5-c6 and a lesion on the cord. The Gait was now 24/7 and not fixed by surgery...That year they did 3 surgeries on that one C5 area...

Now some people tell me the gait is unexplained...I have bowel and Bladder control and no upper body symptoms.

After a brief appointment with one Doctor(Not a Mental Health Provider) suggested some type of somatoform or conversion disorder, I went that route for well over a year everyone I saw(three different Doctor's) dismissed this. I spent two weeks going through this spinal cord evaluation program all kinds of different specialist(That's why there were three different mental health providers). They KNOW its a spinal cord injury but can not explain the symptoms.

The common theme. The Surgeons could only see a decompression the Nureo guys could would only talk about the extensive cord damage.

In the mean while I have not walked straight since March of 2009. I can still walk some it does get worse the more I do, Included in with this gait issue is LOTS of lower back pain.

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