In Feb, 2009 I went to the family Dr. because I had chronic back pain. They put me through the normal series of physical thereapy, medication etc.. Finally I was sent for an MRI. I had already had cervical neck fusion the Nov. prior so I was familiar with the process. However, th MRI only showed mild degenerative disc disease. I went back to my original surgeon and told him I had numbness in my right thigh also. He send me down for a caudal epidural and a CT scan with contrast of the pelvis. I was immediately to go see an internal medicine Dr. After his exam he told me I had numbness in my lumbar and throacic region, both legs, vaginal and anal area and down the back of both legs. I was immediately sent to the neurologist. He did an EMG which really didn't show anything abnormal. I was put in the hospital for a brain MRI and an MRI of my entire spine, not to mention a spinal tap and lots of blood work. Nothing showed up positive. I returned 2 months later to the Neurologist and this time the EMG showed muscle involvement with infammation. He showed me the difference in between the first and the seconde EMG. That EMG was pretty intense and created a lot of soreness. I was admitted to the hospital again with more MRI's, spinal taps and 70 tubes of blood. My Dr. said my muscles were now week. It also had affected my cranial nerves so the left side of my mouth no longer would move at all. Valium makes it relax and move. My Neurologist said it was either paraneoplastic syndrome or an autoimmune disease. Again, no positive blood work. Muscle spasms have taken over my entire body now except for my Right breast and the right side of my face. I am in constant pain and can't function at all without pain pills. I went from being the energizer bunny who worked 12 to 14 hours a day and went on 6 hours of sleep, to a slug that has no energy and needs 10 hours of sleep a night. Another diagnosis after an EMG of my upper back was stiff persons syndrome. After 5 days of a large dosage of steroids did nothing so that was ruled out. In the morning I walk like Frankenstein. I hurt everywhere and the paraneoplastic syndrome is the diagnosis they are sticking with for now. A pet scan and an ultrasound of my pancreas have found no cancer. I don't go back to my neurologist until the end of October. He says this is my baseline and they are waiting for me to get worse. I am miserable and in so much pain. Any thoughts?Reply Follow This Thread Stop Following This Thread Flag this Discussion
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