Discussions By Condition: I cannot get a diagnosis.

Celiac Disease??

Posted In: I cannot get a diagnosis. 14 Replies
  • Posted By: flower.fox38
  • September 1, 2007
  • 05:37 AM

Apologizing in advance, this might be a long post. >_O;

About 1 year ago, I was eating sushi in a restaurant. Seems normal, right? Well, my sister and I were both sick after, because of something in the fish. And not vomiting, but nausia, bloating, that sort of thing.

Anyways, ever since then, whenever I eat rice, wheat products, or products containing lactose, I become very bloated. There may be other products, but I think these are the main ones.

I have food allergies: peanuts, kiwi, raw pineapple, polysporin, and possibly basil (which makes me feel sick and as if I had bile in my mouth... >_O). I'm also allergic to dust - I think. Excess dust makes my nose swell up and get all shiny.. and go slightly red.

Another thing that may be important is I have always had a very weak immune system. Crap-tacular infact. My friends and family joke around by saying that a breeze blows on me and I get sick.. and they're not that far off. To the extent that a 1-2 day cold for most is a 3 days to a week for me, and I am frequently sick with the flu, sore throats, and other such things.

However, there are a bunch of other symptoms that came along with my bloating. These include:
-Fatigue.. a lot of general weakness and lack of energy..
-recent irritability
-light headaches that are semi-frequent
-a mild fever that REFUSES to go away
-a bit of numbness in my hands (but I also have displaced tendons, which could be a factor)
-I HAD a potassium deficiency, which caused major muscle cramps, but it may have come back
-I have sinus problems on occasion... a bit more than I should I think
-Irregular menstrual cycle, occasionally missing a month?!
-Heat related fatigue, and not the usual kind. Any kind of humidity hits me VERY hard, and in combination with the usual heat saps my energy completely and far too quickly... much more than it used to. Didn't have this last year.
-Heart palpitations.. I don't know where these have been coming from, and they come at seemingly random times. >_O
-A lot of extra mucus has showed up.. I can't get rid of it! And a very weird feeling in my throat, like a lump of mucus is stuck back there. When I laugh, there is also a really dry cough/wheeze before it.

On the side...
-Weight gain problems: I have always had weight gain problems. I am constantly underweight, with a bmi of about 16 - 17. I'm currently about 20 pounds underweight. Is it my metabolism? Maybe.. I can eat almost anything without gaining weight. Other options include the possiblity of parasites.. But some days I eat like a bird - or, rather, less than a bird would..
-Tunnel vision: For the past few years, I can't lie down for more than a few minutes and get up without my vision going almost completely black. It takes about 7 seconds for it to get back to normal. Sometimes happen if I've sat down for more than 1/2 hour..

A long time ago, my digestive system got screwed up pretty bad (gr. 2). But some supplements and a diet change helped that. But that diet change also included a vacation from wheat and dairy... (and oats, corn, walnuts, anything microwaved, peanuts of course, among other things)


I've done some research, and a lot of my symptons are leading me to think this could be Celiac Disease. I read that after a while, it could cause lactose intolerance. Could is be this? Or a parasite? (with my weird weight problems and crap-tastic immune system, it doesn't sound that out of the way.. *sigh* ) A combination of the two, or something different altogether?


If someone could shed some light on this it would be very much appreciated. Thanks in advance!

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14 Replies:

  • Flower.Fox38 I can understand what youare going through. I have several clients that came to me with very similar conditions. I can tell you that your symptoms are related to nutrition and the way that will give you the most benefit is by building your system up by nutritional means. You don't mention if you are currently taking any nutritional supplements. It would be helpful to know what if any you are taking. nutritionist:)
    nutritionist 14 Replies
    • September 2, 2007
    • 03:19 AM
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  • Nutritionist, thank you for replying!! =) I usually take a multi vitamin (most of the year, but especially around winter), as well as vitamin C, and sometimes vitamin D and vitamin E. The past couple of months though, I have been failing to take supplements due to an overload of school work (I took an acceleration course.. whoopee. >_O) Umm.... what about caffeine? I hear lots of different things about tea. I drink a cup of tea most mornings.. but I stay far away from coffee. Should I cut this out? (I also don't eat a lot of fruits and veggies. Starting to change that though) As for building up my system, is there anything specific I should concentrate on, or any important things I should remember to do? Any and all suggestions would be wonderful. I'm already starting to switch over to eating spelt bread instead of white bread, and using spelt flour more often (because white bread is processed insanely and it's incredibly unhealthy..), eat more fruits and veggies and getting back on those supplements (hehe.. winter can be brutal if I don't >_O). Thanks again!
    flower.fox38 1 Replies
    • September 2, 2007
    • 07:22 PM
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  • I usually take a multi vitamin (most of the year, but especially around winter), as well as vitamin C, and sometimes vitamin D and vitamin E. The past couple of months though, I have been failing to take supplements due to an overload of school work (I took an acceleration course.. whoopee. >_O) Umm.... what about caffeine? I hear lots of different things about tea. I drink a cup of tea most mornings.. but I stay far away from coffee. Should I cut this out? (I also don't eat a lot of fruits and veggies. Starting to change that though) As for building up my system, is there anything specific I should concentrate on, or any important things I should remember to do? Any and all suggestions would be wonderful. I'm already starting to switch over to eating spelt bread instead of white bread, and using spelt flour more often (because white bread is processed insanely and it's incredibly unhealthy..), eat more fruits and veggies and getting back on those supplements (hehe.. winter can be brutal if I don't >_O). Thanks again! As far as the tea goes. Don't worry about it. There are anti-oxidents in tea that will be beneficial for you. The amount of caffine in tea won't cause any problems. Of course you may want to also use some of the herbal teas as well if you don't already. If you are under a lot of stress due to school some of the herbal teas will help you to relax. As for the supplements which brand do you normally use? nutritionist:)
    nutritionist 14 Replies
    • September 2, 2007
    • 08:11 PM
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  • Herbal teas it is! ^-^ And yeah, school is stressful. The acceleartion course I took was for Gr. 12 University English... I'm supposed to be in Gr. 9. >_O I use a variety of brands.. for Vitamin E I use Life.. for Vitamin D I use Now.. Vitamin C is Sisu, and for multi vitamin I think it's Centrum
    Anonymous 42789 Replies
    • September 3, 2007
    • 01:11 AM
    • 0
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  • Some of your symptoms sound a lot like addison's disease. I would look it up on wrongdiagnosis.com. Some of the symtoms include, weight loss, muscle weakness, fatigue, low blood pressure, hypigmentation or darkening of the skin, nausea, vomiting, diarrhea, orthostatic hypotension or a drop in a person's blood pressure when going from laying to standing, dizziness, fainting, coldness, irritability, mood changes, lethargy, wasting, anorexia, craving salty foods, amenorrhea of abcense of menstrual periods, hypoglycemia (low blood sugar), underarm hair loss...
    Anonymous 42789 Replies
    • September 3, 2007
    • 06:39 AM
    • 0
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  • Please tell me you have been to an opthamologist. You might have glaucoma or something.
    rad-skw 1605 Replies
    • September 3, 2007
    • 10:51 AM
    • 0
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  • Yes, you are on the right path. Celiac is an "allergy" to wheat/gluten. I had ALL of your symptoms...every one!!A woman in this forum recommended NAET/Bioset therapy. She didn't have a clinical diagnosis but she had all of my symptoms. When I went to Bioset, I learned that I was "allergic" to much more than wheat/gluten. In fact, I was allergic to corn, milk, eggs, coffee, chocolate, bananas, peppers, lettuce and cheddar cheese. I was also allergic to rubber and some metals.I tested muscle weak for every part of my body that was malfunctioning.Western med will tell you that "avoidance" is the only answer for allergies.Truth is, after 6 sessions, my symptoms are gone and I am indulging in all of the foods I was allergic to...without any symptoms...like joint pain which is an inflammatory response due to allergies...like watery itchy eyes when allergic to cats...allergy symptoms can take on many forms...so I've learned. www.naet.com www.bioset.net Celiac is just scratching the surface...dig a little deeper...you'll find the life you once knew....I did. best regards, mommy cat
    mommy cat 1654 Replies
    • September 3, 2007
    • 09:57 PM
    • 0
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  • Not really sure, but I don't think "glaucoma" would justify ALL of these symptoms... just my guess.....wishing you well.....mommy cat
    mommy cat 1654 Replies
    • September 3, 2007
    • 09:59 PM
    • 0
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  • Your symptoms definitely do NOT indicate Glaucoma. This does not mean that you might not have it just that these are not the symptoms of it. For your vitamin E make sure that it is D’Alpha Tocopheryl and NOT dl' Alpha Tocopheryl. The difference is that the D' Alpha is natural the dl' Alpha is synthetic. The synthetic is a maximum of 15% bioactive. So if you take the synthetic you are literally throwing your money away. As for the Centrum..... Centrum will have approximately a 10 % absorbtion in your system (if you are perfectly healthy). With Celiac you are suffering from malabsorbtion of nutrients in your intestinal tract which lowers the 10% to a much smaller number. This is why you are not seeing benefits of the multi-vitamin supplement. May I ask if you are in the U.S.? If not the U.S. could you tell me which country you are in and I will see if I can give you a brand that you can find that will build your system back to normal. Celiac is an allergy to all gluten and it is important that your supplements be free of gluten as well. There are very few companies that are able to provide the level of nutrition you need without gluten. In addition all of my clients that suffer from Celiac are also allergic to dairy and eggs and many others to start with. So in addition your supplement needs to be free of all common allergens especially the milk and egg. Normally after a period of proper nutrition the milk, egg, dust allergies tec... will disappear. Also I would highly recommend that you avoid shushi from now on. nutritionist:)
    nutritionist 14 Replies
    • September 5, 2007
    • 04:25 AM
    • 0
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  • If you suspect Celiac Disease you can do a diet elimination or just go to your doctor and have a blood test. There is a special blood test for Celiac.
    jtlmusic 3 Replies
    • September 5, 2007
    • 04:57 AM
    • 0
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  • The glaucoma suggestion was meant only for the vision problem. I don't believe most multi-symptom postings are due to a single illness. But for something as important as eyesight, and I quote "Tunnel vision: For the past few years, I can't lie down for more than a few minutes and get up without my vision going almost completely black. It takes about 7 seconds for it to get back to normal. Sometimes happen if I've sat down for more than 1/2 hour" well, I would certainly get my butt down to the opthamologist's office. Yes, good nutrition with vitamin supplementation, stress-reduction, massage, alternative medicine and proactive health management etc. can relieve many symptoms of diseases, but sometimes there are MULTIPLE problems going on. I don't think there is a universal panacea for what ails you. I usually zero in on the things that I would be extra concerned over.
    rad-skw 1605 Replies
    • September 5, 2007
    • 08:56 AM
    • 0
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  • rad-skw, Yes, it would be wonderful if there was one cure for everything, but that's not what I'm looking for. I'm looking for things to try to improve my current situation. It may or not be glaucoma, but I really don't think so.. unless I have normal tension glaucoma. Which would be bad. (I had my eye pressure tested, and it was okay.) Not to mention that I don't have symptoms for glaucoma... possibly it's due to growth? That's what I'm told.. I had a growth spurt, but that was quite a while ago. But hey, ya never know. Maybe.. perhaps when we have some medical coverage I can visit an opthamologist.. but right now we have none. >_O Thx for the suggestion though.nutritionist, Wow, I didn't know that about Vitamin E... it turns out we have the dl. >_O I ought to change that. And 10% absorbtion? o_O Celiac would definitely interefere with that.. Thx for telling me this. I had no idea.. Interesting you mention egg. I know that sometimes when I eat eggs, I feel queasy for a while after. I didn't think much of it until you said it, but it may be a mild intolerancce? That would be great if it went away.. I'm kinda tired of looking like Rudolph the Red Nosed Reindeer, lol. If that's what it takes, I'll avoid sushi from now on.. *tears* It was one of my favourite food, but I think it's gotta go. Well, I'm not in the U.S. Canada, Ontario actually. If you could find a brand, that would be wondeful. =)jtlmusic True, I could do the elimination diet, but maybe when we get some medical coverage I can make an appointment with my doctor to see what the blood test says. =)Thx for replying everyone!
    Anonymous 42789 Replies
    • September 6, 2007
    • 11:32 PM
    • 0
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  • The fact is that if you decide to go gluten free without first being tested by blood test and endoscopy for Celiac Sprue then you'll likely come up a 'false' negative. Basically meaning, you'll screw up your test results.DO NOT GO GLUTEN FREE until you've had the tests and results given to you.You sound like a Celiac. About 85% of my family have Celiac Disease. I have it. GET TESTED! It'll save your life....I'd bet you a thousand!Catherine in Canada
    Anonymous 42789 Replies
    • September 12, 2007
    • 09:34 PM
    • 0
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  • Have you had your thyroid levels tested?
    aquila 1263 Replies
    • September 13, 2007
    • 04:47 PM
    • 0
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