Discussions By Condition: I cannot get a diagnosis.

celiac disease

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: enricorialti
  • November 3, 2006
  • 02:42 PM

since i was born i've always had all the typical syntomps of celiac disease, but never got a diagnosis. My doctor, as a kid, defined me a border line case. As i grew older and my diseases got worse i tried to obtain a diagnosis but all tests were negative; i finally realised i had an igA deficiency and i've been told that this may cause false-negatives. but all the tests or just the blood ones? (i did a biopsia which turned out to be negative but some people told me this is not a sure result either)

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  • Why worry about getting an official diagnosis? Just go on a gluten free diet anyway and see if you feel better. Celiac disease can be hereditary and this might be some indicator of whether you are likely to have it or not.
    Anonymous 42789 Replies
    • November 4, 2006
    • 01:38 PM
    • 0
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  • I myself have celiac disease and no what it is like to suffer from the awful symptoms year after year. My advise to you is to go on a what is called a "gluten free challenge". This consists of eating gluten free for one week and see if your systoms go away. If they do this would probably mean that you should maintain a gluten free diet and that celiac disease might play a role in your life. Remeber that if you where on a gluten free diet at the time of your biopsy then that is why your biopsy most likely came back as negitive. Its better to try going gluten free then to try nothing at all!
    Anonymous 42789 Replies
    • November 5, 2006
    • 01:52 AM
    • 0
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