Discussions By Condition: I cannot get a diagnosis.

Caregiver at the end of her rope

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • January 14, 2007
  • 06:01 PM

My husband has been ill for almost 4 years (originally posted in the end of December "4 years and undiagnosed"). The first 2+ years of his illness we did nothing but go to doctors - lots of doctors. My husband even went to a psychiatrist on the advice of one of his GPs just to show them he was willing to try anything to get better. As we anticipated, the psychiatrist was a nice guy, but had no answers and determined that my husband's mental status was solid.
It has been since September 2005 that my husband last saw a doctor. His condition has worsened a lot and getting to the doctor is nearly impossible because he is in such discomfort. He really needs to be hospitalized so that doctors can come to him and he can be monitored 24/7.
I am his ONLY caregiver and I am running out of energy and patience. I feel horrible for his condition and the pain he is in but he won't even discuss seeing a doctor or letting me get help in the house so that I can get to work. Yes, I am now the only one making money and am hard pressed to get to my full time job by 11:00 a.m. after waking up at 5:00 a.m. to get him ready. His condition has made him very fragile so he can not be rushed. I have told him I need help, but he won't talk to me about anything. We are both so exhausted from just surviving I am too tired to fight. I am thankful my boss at work has given me a break with my hours in that he lets me start later but then I get home so late it messes up our schedule.
I don't want to force anything on him (people have suggested I call 911 and have hime taken to the hospital. Then what??) and I want him to be a part of anything we try, but I'm running out of time. His mother is 75 and lives too far away to help. We have no other family in town and our friends all work so they can't help either. My husband has not lost his mind and he is just choosing not to talk about the topic.
Has anyone experienced anything like this? What do I do?

Thanks for any advice.

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1 Replies:

  • Hi,I do not know the answers to you and your husbands problems.I feel for you as I do him.It is clear to see that you also suffer as well.I am a caregiver for my Mother 80 years old, living in my home.It is very hard, she is confined to one room due to serious spine disorders.I do know your frustration beleive me or some of it.I just want to say hang in there, this too shall pass...Does he have any friends? What are his symptoms?He has got to help himself first in order for you to even begin to help yourself.If he loves you seems as if he would knowing how this is effecting you. I f you need a friend to email monalissakay@yahoo.com
    Anonymous 42789 Replies
    • January 18, 2007
    • 05:41 AM
    • 0
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