Discussions By Condition: I cannot get a diagnosis.

Carcinoid syndrome

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: david2950
  • May 27, 2009
  • 10:51 PM

Hello everybodymy name is david and I live in a now called Basingstoke in the UK I was diagnosed with carcinoid syndrome. Six months ago, but I have had most of the symptoms for five years and have had MRI scan Octreotid scan but all have shown up negative is by wondering if a pet -ct scan would show anything up . My symptoms are as follows 1 chronic fatigue 2 stomach cramps 3 feel like throwing up all the time 4 flushing 5 headache 6 constipation 7 diarrhoea 8 I feel disye quite often 9 shooting pains in my joints especially my right hip and left elbow walking can be a problem sometimes 10 and over the past couple of months, and I have developed breathing problems . And as nothing shows up on the scan. Do I have carcinoid syndrome a footnote my serotonin level is between 1700 and 2004 and my 5AHH in my urine was positive

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