Discussions By Condition: I cannot get a diagnosis.

cannot stand flat footed

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: britalulu111088
  • May 11, 2008
  • 08:24 AM

I am a 19 year-old female, 6 foot (on my toes since i cant stand flat), 143 pounds. In october of 2007, I was weighing myself and realized that I couldnt stand flat on the scale (i couldnt get my heels to go down). i dont know when this problem started, i just know it seems to be getting progressively worse. here are some other symptoms i have..they may or may not have to do with this

-born with a VSD, a congenital heart defect
-bulging disc at L5
-often times get purple legs..sometimes even turning blue
-ALWAYS have cold feet
-have had knee problems
-was treated for anxiety and depression for about 8 years (not anymore)
-cannot walk properly..as in i cant keep my feet in flip flops, etc the right way
-when asked to walk on my heels, i cant at all
-my range of motion is at about 35 degrees away from what it should be with my left ankle dorsiflexed and the right one is at about -25 from neutral
-i was never a "toe walker"..some doctors i have gone to have suspected cerebral palsy but it seems to have recently gotten worse
-dizzy and light-headed
-minor case of asthma..but often experience shortness of breath

i have had MRIS and everything done to test for tumors, etc and everything has came back normal! i had a normal EMG when i went to the neurologist. i have been to a few orthopedics, all of which are confused as to what this may be. some have mentioned achilles tendon lengthening surgery, and some that plus a calcaneus shift. although the test i have had came back normal, most doctors seem to still think it is neuroligically-based, rather than strictly an orthopedic issue and are afraid that achilles tendon lengthening might not really solve the problem if it progressing.

not only is it embarassing to look like you are limping when you walk, but it is also obviously uncomfortable. only recently has my left achilles started hurting sporadically, but there is not usually really any pain. thanks for any help!! i appreciate it very much..it scares me that no one is able to tell me what the problem is. im only 19..i want to be able to walk right

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3 Replies:

  • I couldn't nail it down for you, but I found some things out there that sound suspiciously like you have some kind of genetic syndrome. Ask to see a geneticist.
    aquila 1,263 Replies Flag this Response
  • okay, what kind of things are you referring to that you found out??
    britalulu111088 1 Replies Flag this Response
  • Try here: http://www.ncbi.nlm.nih.gov/sites/entrez?db=omim I plugged in the real term for VSD and came up with several possibilities.
    aquila 1,263 Replies Flag this Response
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