I have spent several years trying to get diagnosed. All bloodwork comes back perfect, not just fine perfect
negative for Lyme, RH factors, thyroid issues, Sjogrens
Symptoms have increased in the last year, most especially since July
Symptom list below. Can provide needed elaboration as requested
Extreme fatigue- 4 hours of anything even just cleaning or visiting is my extreme limit. Because of this I can no longer work
Tire easily. I used to hike/bike many many miles a week and now can barely do 2-3 miles
If I walk too far or consecutive days or do anything 4 hours or longer get a bad migraine and exhausted
Exertion makes me light headed and my heart pound (even scrubbing floor)
Dust of any kind makes my lungs burn and breathing hurt. Even just being around musty books. I wear a mask when grinding dog nails or moving dusty things but it only helps a little
If I do close up reading or work and then try to view at normal distances, my vision is blurring for several minutes
my voice has gone from being loud and carrying to dying off just feet from me-that's the description people give me anyhow
Cold temps, hot temps or humidity make breathing hard. Even a hot shower
Knees bother me especially on hills, stairs and getting up/down.
Back bothers me to get up/down, lift stuff, lie down too long, or sit too long upright (my computer chair has a pillow so I can sit in a supported slouch and that works ok)
Legs are not “smooth operating” especially down hill or down stairs
Hand issues are increasing. Not the joints but the actual muscles/stuff in between. Grooming dogs, mixing batter, using a screw driver, etc are impossible beyond brief moments, the hands swell and cease "working"
Cough is always present to some degree. I have days where my breathing is hard and my lungs burn. Usually-but not always- there is a dust, heat or humidity component to those days, but not always
NEWEST thing. Has happened 3 times I think in the last month or two. Evening or nights I feel “funny” a little cold, sort of light headed, throat feels tight, breathing restricted and heart beat is very slow-almost non detectable by pulse or hand. Passes in 5-15 minutes
NOTE: ANIMALS of any kind do not bother my breathing at all. I can even sleep with my head on one, or share my pillow with no problems at all. Not even stuffiness
Saw a new doctor this week and as usual bloodwork is PERFECT with the exception my Vit D is low 13.4 when it should be above 30 so started supplementation
This Doctor fixated on the fatigue and is positive "all my issues" are related to my low D and that I am "allergic to my dogs". I am 100% positive I am NOT allergic to the dogs-see above
i have a pulmonary function test scheduled for next week but otherwise he does not want to see me again til March/April
Recognize the risks associated with Crohn’s disease.
Did you know that one in six US adults has high cholesterol?