Discussions By Condition: I cannot get a diagnosis.

Cannot get a diagnosis

Posted In: I cannot get a diagnosis. 25 Replies
  • Posted By: rottlady
  • December 31, 2009
  • 05:13 PM

I have spent several years trying to get diagnosed. All bloodwork comes back perfect, not just fine perfect
negative for Lyme, RH factors, thyroid issues, Sjogrens

Symptoms have increased in the last year, most especially since July

Symptom list below. Can provide needed elaboration as requested


Extreme fatigue- 4 hours of anything even just cleaning or visiting is my extreme limit. Because of this I can no longer work
Tire easily. I used to hike/bike many many miles a week and now can barely do 2-3 miles
If I walk too far or consecutive days or do anything 4 hours or longer get a bad migraine and exhausted
Exertion makes me light headed and my heart pound (even scrubbing floor)
Dust of any kind makes my lungs burn and breathing hurt. Even just being around musty books. I wear a mask when grinding dog nails or moving dusty things but it only helps a little
If I do close up reading or work and then try to view at normal distances, my vision is blurring for several minutes
my voice has gone from being loud and carrying to dying off just feet from me-that's the description people give me anyhow
Cold temps, hot temps or humidity make breathing hard. Even a hot shower
Knees bother me especially on hills, stairs and getting up/down.
Back bothers me to get up/down, lift stuff, lie down too long, or sit too long upright (my computer chair has a pillow so I can sit in a supported slouch and that works ok)
Legs are not “smooth operating” especially down hill or down stairs
Bruise easily
Hand issues are increasing. Not the joints but the actual muscles/stuff in between. Grooming dogs, mixing batter, using a screw driver, etc are impossible beyond brief moments, the hands swell and cease "working"
Cough is always present to some degree. I have days where my breathing is hard and my lungs burn. Usually-but not always- there is a dust, heat or humidity component to those days, but not always


NEWEST thing. Has happened 3 times I think in the last month or two. Evening or nights I feel “funny” a little cold, sort of light headed, throat feels tight, breathing restricted and heart beat is very slow-almost non detectable by pulse or hand. Passes in 5-15 minutes


NOTE: ANIMALS of any kind do not bother my breathing at all. I can even sleep with my head on one, or share my pillow with no problems at all. Not even stuffiness


Saw a new doctor this week and as usual bloodwork is PERFECT with the exception my Vit D is low 13.4 when it should be above 30 so started supplementation

This Doctor fixated on the fatigue and is positive "all my issues" are related to my low D and that I am "allergic to my dogs". I am 100% positive I am NOT allergic to the dogs-see above

i have a pulmonary function test scheduled for next week but otherwise he does not want to see me again til March/April

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  • I have spent several years trying to get diagnosed. All bloodwork comes back perfect, not just fine perfectnegative for Lyme, RH factors, thyroid issues, Sjogrens Symptoms have increased in the last year, most especially since July Symptom list below. Can provide needed elaboration as requested Extreme fatigue- 4 hours of anything even just cleaning or visiting is my extreme limit. Because of this I can no longer workTire easily. I used to hike/bike many many miles a week and now can barely do 2-3 milesIf I walk too far or consecutive days or do anything 4 hours or longer get a bad migraine and exhaustedExertion makes me light headed and my heart pound (even scrubbing floor)Dust of any kind makes my lungs burn and breathing hurt. Even just being around musty books. I wear a mask when grinding dog nails or moving dusty things but it only helps a littleIf I do close up reading or work and then try to view at normal distances, my vision is blurring for several minutesmy voice has gone from being loud and carrying to dying off just feet from me-that's the description people give me anyhowCold temps, hot temps or humidity make breathing hard. Even a hot showerKnees bother me especially on hills, stairs and getting up/down. Back bothers me to get up/down, lift stuff, lie down too long, or sit too long upright (my computer chair has a pillow so I can sit in a supported slouch and that works ok)Legs are not “smooth operating” especially down hill or down stairsBruise easilyHand issues are increasing. Not the joints but the actual muscles/stuff in between. Grooming dogs, mixing batter, using a screw driver, etc are impossible beyond brief moments, the hands swell and cease "working"Cough is always present to some degree. I have days where my breathing is hard and my lungs burn. Usually-but not always- there is a dust, heat or humidity component to those days, but not alwaysNEWEST thing. Has happened 3 times I think in the last month or two. Evening or nights I feel “funny” a little cold, sort of light headed, throat feels tight, breathing restricted and heart beat is very slow-almost non detectable by pulse or hand. Passes in 5-15 minutesNOTE: ANIMALS of any kind do not bother my breathing at all. I can even sleep with my head on one, or share my pillow with no problems at all. Not even stuffiness Saw a new doctor this week and as usual bloodwork is PERFECT with the exception my Vit D is low 13.4 when it should be above 30 so started supplementation This Doctor fixated on the fatigue and is positive "all my issues" are related to my low D and that I am "allergic to my dogs". I am 100% positive I am NOT allergic to the dogs-see above i have a pulmonary function test scheduled for next week but otherwise he does not want to see me again til March/AprilHow do you know your lab tests were "perfect"?Did you see then for yourself or this is just what your doctor said?Do you have them with you?If you do is anything outside of the ranges or inside the reference ranges towards the end?I think its good that your having a pulmonary function test next week and i also think you should get a referral to a good cardiologist and a Pulmonolgist and also get a echocardiogram and a Cardiac Stress test done.You might have just one disorder like a very minor heart related issue or Chronic Pericarditis or you might have a few different things causing all your symptoms.Do you spend enough time in the sun?If you dont that then could be the cause of your low vitamin D but if you do already then there could be some other causes.Your vitamin D is really quite low as the reference ranges are already to wide.Some other causes of Vitamin D deficiency apart from lack of sun arelymphoma,Granuloma,Amyloid,Pancreatitis,cystic fibrosis,Liver Cirrocis etc.
    Anonymous 42789 Replies
    • January 1, 2010
    • 05:53 AM
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  • How do you know your lab tests were "perfect"?Did you see then for yourself or this is just what your doctor said?Do you have them with you?If you do is anything outside of the ranges or inside the reference ranges towards the end? Oh no I never trust them. I have a copy of the labs here Let's see everything is pretty well within the norms. The things that are high end/low end are: Total protein 8.2 range 6.4-8.2 Neut 74.9 range 40.0-74.0 Lymph 17.1 range 19.0-48.0 Vit D 25OH 13.4 range >30 I think its good that your having a pulmonary function test next week and i also think you should get a referral to a good cardiologist and a Pulmonolgist and also get a echocardiogram and a Cardiac Stress test done.You might have just one disorder like a very minor heart related issue or Chronic Pericarditis or you might have a few different things causing all your symptoms. Not likely to happen. I was lucky to get the pulmonary test. He did not want to. He also does NOT want to see me til March/April. I had a very short list of tests I wanted done and the only three I was able to get were CBC/Chem, TSH and the pulmonary test Do you spend enough time in the sun?If you dont that then could be the cause of your low vitamin D but if you do already then there could be some other causes.Your vitamin D is really quite low as the reference ranges are already to wide.Some other causes of Vitamin D deficiency apart from lack of sun arelymphoma,Granuloma,Amyloid,Pancreatitis,cystic fibrosis,Liver Cirrocis etc. I spend next to no time outside now that I get so weak and fatigued. I have had to increasingly reduce the things I do as I no longer can do them without getting weak, fatigued or out of breath :(
    rottlady 12 Replies
    • January 1, 2010
    • 04:18 PM
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  • I have the results of my pulmonary function test (including spirometry) and even though there are 3 values 57, 60 and 63% predicted the rest of it is fine. The Pulmonist says I have no signs of obstructive or restrictive issues and that my symptoms do not fit asthma either So even though stairs, mopping, vacuuming, walking etc (any type exertion) and heat/humidity/extreme cold all cause me to be totally out of breath I am perfectly normal :( Blood pressure is 110/60. My lips/gums never turn blue I had a LONG talk with my Drs nurse last Fri and she was very apologetic for his attitude and then called me 3 hours later to schedule more bloodwork this week I cannot take my dogs for walks, hike, run up the stairs or I am out of breath, I can't scrub pots rub leather care into boots or do anything with my hands or they swell and don't function, my knees are trash as is my back BUT I am perfectly healthy :eek:
    rottlady 12 Replies
    • January 11, 2010
    • 07:59 PM
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  • new bloodworkall thyroid levels normalB12 normalSed rate normalANA normal I don't have the paper yet but this is per the doctor's nurse they have finally set me up with a Rhum. appt
    rottlady 12 Replies
    • January 16, 2010
    • 11:23 PM
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  • Sure it isn't ketosis? now called ketonosis, which is TOO high a proteins which cause toxic ketones from their breakdown in the liver? are you on a high protein diet?Asthmatic?Diabetic?High blood pressure?Starvation?
    Anonymous 42789 Replies
    • January 18, 2010
    • 11:38 AM
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  • new bloodworkall thyroid levels normalB12 normalSed rate normalANA normal I don't have the paper yet but this is per the doctor's nurse they have finally set me up with a Rhum. apptlook into celiac disease
    Anonymous 42789 Replies
    • January 18, 2010
    • 04:31 PM
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  • I'm not a doctor but I have some experience with this because I suffered almost the same thing for 25 years before being diagnosed properly. Now I feel great! I suggest the first thing you need to do is to find a good naturopathic physician. These are doctors that view things from a more natural point of view, they treat the whole patient, not just a symptom. They also look for the cause of a problem, not just how to treat it. If you need help finding someone, go to the "topthyroiddoc.com" site run by Mary Shomon, she has a great list of docs all over the country who think this way. Even if you don't have a thyroid problem, this list is helpful to find a doc with this type of thinking. I would suggest you look into adrenal fatigue aka adrenal gland syndrome. Conventional doctors won't even consider it, but I and tens of thousands of others KNOW it's possible. Unfortunately conventional doctors are not taught about it in school. Look it up yourself and read up on it. Your symptoms are textbook. Also, don't rule out things like thyroid conditions, vitamin/mineral deficiencies, etc... just because of the blood work your conventional docs have given you. When you start seeing a good naturopath you will learn that there is a difference between a "normal" range and an "optimal" level. Just because you are "normal" doesn't mean it's optimal for YOU. I am living proof of this and it's changed my life! There are many many many others out there just like me. My naturopath actually LISTENES to me and pays attention to my symptoms, not just the number on a piece of paper. Keep in mind that the "normal range" of blood labs can change. Normal ranges are nothing more than educated scientific guesses. For example the new normal thyroid range (as of just 3 years ago) is now 0.3 - 3.0. It was much higher before and all those who were below "the range" were told they were fine when in fact they had hypothyroidism! People suffered with symptoms instead of getting treatment based solely on a "normal range" of labs. I am one of those. Docs wanted to give me antidepressants instead of treating me for hypothyroidism which was the REAL issue. It was obvious, based on my symptoms. Most conventional physicians are not trained or experienced on how to treat a patient based on their symptoms and rely solely on numbers.It's great that at least you are going to improve your vitamin D levels, I hope you are taking a good vitamin D3 so it's absorbed properly. Pills don't absorb properly. Research this for yourself. Vitamin D has a role to play in your energy levels. At the advice of my doctor I take Bio-D Mulsion Forte to increase my vitamin D levels too. It's vitamin D in the form of vitamin D3, tasteless liquid drops I put in my orange juice. Also look into possible candida. This is another one that conventional docs will not acknowledge even though there are tens of thousands of people who will tell you they KNOW it exists becasue they suffered from it for years. There are many causes but it could be caused by just one round of antibiotics at any point in your life too. You can even test for this yourself at home for free. Look up this info on the web. Look up how to test yourself at home for candida. You just spit in a glass of water first thing in the morning, before you wash your mouth. Look up symptoms of candida. Therapeutic probiotics (that's a higher dose than regular store bought ones) help with this as do diet changes. You may also be experiencing toxic overload. Have you ever done a colon cleanse? These can be found in health food stores. There are different kinds, different strengths. Check with your doctor or the colon cleanse company first if you are on meds or have any questions. They help! Try to reduce the toxins in your environment to reduce your body's accumilation of toxins. Eat organic whenever possible. Avoid processed foods. Avoid sodas and any artificial sugars. Avoid genetically modified foods. Avoid cleaning chemicals, use natural ones instead, etc... Info on all of this is on the web. Research it for yourself and make your own educated choices.
    Anonymous 42789 Replies
    • January 19, 2010
    • 04:51 PM
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  • Sure it isn't ketosis? now called ketonosis, which is TOO high a proteins which cause toxic ketones from their breakdown in the liver? are you on a high protein diet? I have had dogs with ketonosis, no I don't have that. The doc has seen what I eat and while it's not a lot, it is pretty balanced Asthmatic?the pulominist ruled that out entirely Diabetic?no, been cleared of that 5 times in the last 3 years High blood pressure?nope. listed my blood pressure above. a nice normal 110 over 60 Starvation?I don't eat a lot but have gained 17lbs in the last 3 years and am at a current high in my life. I'm 5'1, 132lbs, 45 yr fm
    rottlady 12 Replies
    • January 20, 2010
    • 01:45 AM
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  • look into celiac disease I was cleared of that awhile back and asked the Doc this time and he said no
    rottlady 12 Replies
    • January 20, 2010
    • 01:47 AM
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  • I don't drink soda at all, nor alcohol. rarely ever eat junk food. I can't use chemicals because chemicals and strong smells make me dizzy (even dog topical flea products make my lips numb if I touch a dog treated less then a week prior) I had a natropathic doctor for 4 years and he also got no where. I was tested for candida and zip. Right now I am unemployed and I get medical care free for 6 months as long as it is at the local hospital so going elsewhere is currently impossible
    rottlady 12 Replies
    • January 20, 2010
    • 01:55 AM
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  • Oh no I never trust them. I have a copy of the labs here Let's see everything is pretty well within the norms. The things that are high end/low end are: Total protein 8.2 range 6.4-8.2 Neut 74.9 range 40.0-74.0 Lymph 17.1 range 19.0-48.0 Vit D 25OH 13.4 range >30 Not likely to happen. I was lucky to get the pulmonary test. He did not want to. He also does NOT want to see me til March/April. I had a very short list of tests I wanted done and the only three I was able to get were CBC/Chem, TSH and the pulmonary test I spend next to no time outside now that I get so weak and fatigued. I have had to increasingly reduce the things I do as I no longer can do them without getting weak, fatigued or out of breath :(Will you be going back to Pulmonary Specialist?Do you have another appointment?In as much detail as possible,what is your cough like?eg is it weak,strong,dry,hoarse,wet,tickly throat,wheezing etcDo you have any mucus?What are your stools like?For example how often do you go,are they hard to pass,do you have any constipation or diarrhea,is there any undigested food in your stools or fat?Do they have a stronger odour then other peoples etc.How often are you around moldy books?Are you exposed to molds in any other area of your life too or have you ever worked previously with dusts or other hazards?Do you have any perspiration?If you do is it during the night,day or can be at anytime?Do you have any clubbing of the fingers?I have a few other posssibilities regarding possible diagnosis being Blastomycosis,Hypersensitivity pneumonitis,Usual interstitial pneumonia,Bronichiolitis obliterans organizing pneumonia,Middle lobe syndrome and myelofibrosis.Strong possibility seems to be that you could have some sort of Pulmonary Disease with hepatic involvment.I know noone likes hearing the cancer word but has lung cancer & also leukamia,lymphoma been considered too?I think the next tests you should ask for are Eosinophils count-that should have been already done in your CBC test,do you have the papers with you?Can you type them in with everything like platelets & chemisty panels included.Also a chest X-ray if you havn't already had that done and also a sputum culture if you have any mucus production.Your labtests indicate you have high protein.Even though it falls just within the range is insignificant,it is still high because like someone else mentioned lab values are already too wide plus they vary from lab to lab.High total protein can be seem in chronic inflamation,infections & bone marow disorders.Low lymphycites can be caused by recent infection,severe stress,Neutrophilia can also indicate infection & inflammation.To me all this indicates that in all possibly you could have a lung infection of some sort & hopefully your doctor will give you those tests to find out exactly what.If he wont see you can you see another doctor or do you have to pay in USA?
    Anonymous 42789 Replies
    • January 20, 2010
    • 08:25 PM
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  • Will you be going back to Pulmonary Specialist?Do you have another appointment?In as much detail as possible,what is your cough like?eg is it weak,strong,dry,hoarse,wet,tickly throat,wheezing etcDo you have any mucus? mostly a dry couch. worse in the Am. better after I start drinking tea. Much better after several cups. Worse with exertion, humidity, cold, dust worse again at night right before bed. Once I lay down for the night the cough is MUCH worse for 15-30 min and a bit wetter. then it is gone til I get up No mucous spit up at all What are your stools like?For example how often do you go,are they hard to pass,do you have any constipation or diarrhea,is there any undigested food in your stools or fat?Do they have a stronger odour then other peoples etc. all normal in all regards, nothing visible, frequency daily, all normal How often are you around moldy books?Are you exposed to molds in any other area of your life too or have you ever worked previously with dusts or other hazards? the transfer station has a book trade trailer and all those books are musty smelling so I avoid going in except maybe once a month. All my books have been boxed a year and are a bit musty but I rarely get into them lately.I was a dog groomer and kennel manager for 17 years and before that raised birds so exposed to pet dust my whole adult life plus have almost always lived in a very dusty place (sand etc.)Even household dust bothers me so I rarely dust but when I do I wear a mask. Wear a mask to grind the dogs nails too Do you have any perspiration?If you do is it during the night,day or can be at anytime? normal. sweat when it is hot or with exercise. Once in a blue moon wake up with a sweat but I'm approaching "that time" in my life so who knows. But it is rare Do you have any clubbing of the fingers?No I know noone likes hearing the cancer word but has lung cancer & also leukamia,lymphoma been considered too? all lung problems dismissed and disgarded at this point. All others ruled out the doctor said........ I think the next tests you should ask for are Eosinophils count-that should have been already done in your CBC test,do you have the papers with you?Can you type them in with everything like platelets & chemisty panels included. That's alot of typing and my hands won't do that much at once but I can give you a few Eosinophils- 1.0% range 0.0 - 7.0 Eos # -0.08 thous range 0.0 - 0.8 Platelets- 261 thous range 130-400 Bun - 13 mg/dl range 5-25 Creatinine - 1.0 mg/dl range 0.6-1.3 Alk phos- 82 iu/l range 50-136 Calcium 8.8 mg/dl range 8.2-10.2 T Bili- 0.5mg/dl range 0- 1.0 WBC 7.61 thous range 4.8-10.8 RBC 4.92 millions range 4.2-5.4 I do not have the most recent printout yet. it was for T3, free T3, T4, Free T4, Autoimmune thyroditis, B12, Sed Rate and ANA but they were described as great Also a chest X-ray mo they do not intend to do one as the pulmonist says lungs are fine I eat meat, 1 vegetable, 1 starch for supper every day plus bread, peanut butter, honey, leftovers from the night before. This is a daily minimum. the meat rotates each night between deer, pork, chicken, beef I drink only water or tea
    rottlady 12 Replies
    • January 20, 2010
    • 08:58 PM
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  • Will you be going back to Pulmonary Specialist?Do you have another appointment?Please dont be so quick to dismiss Pulmonary Disorders.There is a huge range of pulmonary disorders and some of them are actually diagnosed by having the ABSENCE of asthma etc.It is by actually not having asthma which makes a diagnosis more likely to be a certain disorder in some cases.The pulmonist has not been thorough enough & has been actually abit negligent by telling you that the lungs are fine after only doing such a small range of tests.There are lung disorders which exist in the absense of asthma,no restiction & no obstruction.Some need goldstandard testing to be diagnosed,for example lung biopsies can sometimes be gold standard & the very reason why they need this is because all basic lung tests were clear.What were they 3 tests & results that "mean nothing" according to the Pulmonist/Its really important for you to know that sometimes when doctors say something "means nothing" it doesnt necessarily mean that it means nothing but just that they dont know what it means so thats what they say.Like you said the rest of the labtests & stools sound normal.Im going to talk to a doctor about it now so im going to type later what sugegstions they give.
    Anonymous 42789 Replies
    • January 20, 2010
    • 10:54 PM
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  • Please dont be so quick to dismiss Pulmonary Disorders.There is a huge range of pulmonary disorders and some of them are actually diagnosed by having the ABSENCE of asthma etc.It is by actually not having asthma which makes a diagnosis more likely to be a certain disorder in some cases.The pulmonist has not been thorough enough & has been actually abit negligent by telling you that the lungs are fine after only doing such a small range of tests.There are lung disorders which exist in the absense of asthma,no restiction & no obstruction.Some need goldstandard testing to be diagnosed,for example lung biopsies can sometimes be gold standard & the very reason why they need this is because all basic lung tests were clear.What were they 3 tests & results that "mean nothing" according to the Pulmonist/Its really important for you to know that sometimes when doctors say something "means nothing" it doesnt necessarily mean that it means nothing but just that they dont know what it means so thats what they say.Like you said the rest of the labtests & stools sound normal.Im going to talk to a doctor about it now so im going to type later what sugegstions they give. I am not dismissive, I have spent years (since 1997) when I had insurance trying to get to the root of this which gets worse each year I have not been employed in more than a year and so am now able to get medical through the good will of the local very large hospital which is affiliated with Dartmouth medical. I am as pushy as I can be and not seem ungrateful. My Rhum Dr appt is 2/4 I'd be tickled pink with a head to toe CAT scan but know that's never going to happen The pulmonary function test was Spirometry, Lung volumes, Diffusion the volumes less then the predicted values were FEF 75% (L/sec) actual was 0.99 Predicted 1.58 my result was 63% predited RV (N2)(L) actual 0.87 Predicted 1.52 my result 57% predicted RV/TLC (N2)(%) actual 20 predicted 33 my result 60% predicted ALL other results were from one that was 80% all the way up to one that was 129% predicted. All really great numbers (most were 90-102) The most interesting thing was the Dr said that once I started the vit D supplementation (1- 50,000 IU ergocalciferol liquid gel one day a week, and 1- 2,000 IU cholecalciferol 4 days a week) that my fatigue would go away and I'd feel lots better, but ironically I am MUCH more tired, my migraines have returned (about 1 a week) and my knees/back are bothering me more. yes I talked to the Drs nurse about it and she conferred with him and he said it was a coincidence and meant nothing
    rottlady 12 Replies
    • January 20, 2010
    • 11:22 PM
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  • Hi.This is what the doctor i spoke to said;"There are quite a few possiblities which should be excluded and ill go through them one at a time, the common ones that is,Heart Disease - This is something which should be considered especially in light of her easy fatiguiability. One of the signs of heart failure is difficulty breathing and coughing constantly on exertion along with shortness of breath. This wouldnt show up on normal testing protocols although a chest xray can show an enlarged heart. Plus you also say that she has been having slow heart beat with diffuclty breathing. So this MUST be ruled out and the ESSENTIAL tests in this regard are the following,EKG ( rhythm abnormalities)Echocardiography ( to show the function of the heart)B-Natriuretic peptide (to determine cardiac failure)Chest xray (to show an enlarge heart)These the basic tests which should be done in this regard and if anything comes up on them then further testing can be planned. The diagnosis im aking here is that of congestive cardiac failure due to any cause which can be ischemia or infection.Lung issues - now normal pulmonary function tests do not rule out pulmonary problems as such and i would agree with you that a chest xray is certainly needed. This can yield additional information like enlarged lymph nodes, and lesions in the lungs which are NOT picked up on PFTs. A better option can be a CT scan of the chest which would show the problems in detail but a chest xray is cheaper and better alternative at this early stage. These symptoms can be due to sarcoidosis (enlarged lymph nodes), tuberculosis ( chronic infection of the lungs), early pulmonary fibrosis (which sometimes can be missed on PFTs).A repeat CBC however can be helpful if the original one was done a few months back.Her diagnosis is difficult but i think this is more likely to be related to the heart because when she lies down the cough gets worse and is wetter. This occurs commonly with heart failure. I would suggest she get tested for that first.Autoimmune vasculitis could be a possiblity but i didnt consider that because of the normal ESR. In vasculitis, the ESR should be raised although this isnt the rule but in almost all cases the ESR should be raised. This alongwith CRP can give a clue as to the vasculitis. Now also if this was vasculitis affecting her lungs, which would explain the shortness of breath and cough, then it should have causes either lesions in the upper respiratory tract in the form of ulcers etc in the nose or pharynx etc alongwith renal involvement (wegners granulomatosis) or coughing up blood (goodpastures). In addition if this as chrug strauss disease which affects the lungs then there should be some indication of asthma like symptoms like wheezing or on clinical examination there should been added sounds on auscultation of the chest. So vasculitis is not very likely considering the negative ESR and lack of other symptoms.The hand swelling can be due to heart disease as well, as this can cause swelling of various regions of the body like the feet or the hands and collection of fluid inside the abdominal cavity, enlargement of the liver. Swelling around the eyes as well.The exposure to dusts and animal dander can cause several problems in the lungs. Animal dander can give rise to allergic asthma but again it should be picked up on a clinical exam. The dusts depending on which type they were for example, coal dust, silica dust etc can cause a number of diseases which are grouped together as environmental lung diseases, this can be diagnosed on a clinical examination and chest xray or a CT scan . It would show the lesions which would be characteristic of the disease. Now since she hasnt gotten a chest xray yet so i would advise that it should be done as soon as possible."
    Anonymous 42789 Replies
    • January 22, 2010
    • 02:22 PM
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  • I was cleared of that awhile back and asked the Doc this time and he said no Hi, I am going to key in on the Vitamin D. Sorry, you have to fix that and see what symptoms it knocks off because your list seems quite long. Your Vitamin D should be above FIFTY not 30. You are exceedingly low and low vitamin D is linked to various cancers. Also, you cannot absorb the calcium you intake without enough Vitamin D, and this will tend to make you acidic, and acidity causes fatigue. So fix your Vitamin D issues which are severe and THEN get back to us. P.S. I take 10,000 IU sublingually 5 days a week (due to blood test showing I need it). Don't screw around with this. Good luck.
    madanthony 1087 Replies
    • January 25, 2010
    • 10:39 PM
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  • I've been taking the Vit D as I described above since my very first appt in Dec so just about a month now. I am MUCH more tired now (no matter how much sleep I get), my migraine headaches are back (about once a week) and my knees are bothering me more. The Doctor said (through his nurse) that this is coicidence and means nothing) My Rhum. Doc appt is next week, BUT I did get some of the printouts from my last bloodwork Thyroxine 8.6 ug/dl range 4.5-10.9 T3 1.28 ng/ml range 0.60 - 1.80 Vit B12 296 pg/ml range 211 - 911 TSH 2.42 ulU/ml range 0.30 - 5.5 ESR (sed rate) 10 mm/hr range 0 - 15 ANA reflex Negative
    rottlady 12 Replies
    • January 30, 2010
    • 03:19 AM
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  • Your B12s awfully low.Whats your diet like?Either your lacking from your diet or something is causing you to not be able to absorb B12 and Vitamin D.Have you asked for a chest X-ray?I still think it could be pulmonary or heart related like for example a bacterial pneumonia,Good Pastures syndrome,farmers Lung,Caplans syndrome or Bird Fanciers lung due to your lengthy dust exposure.Do you have any chest pain at all?If you do can you describe it.Personally i think you you should see a good cardiologist and a different and better Pulmologist but if they are just going to do the basic tests then they will miss it possibly because your symptoms are complex.I hope you get a good rheumatologist.Can you go to somewhere like Mayo Clinic or does this cost money?What Vitamin D are you taking?Could it possibly have some fillers in it that are making you feel sicker?Heres some links if you want to read themhttp://www.turkishrespiratoryjournal.com/pdf/pdf_TRJ_238.pdfhttp://www.ncbi.nlm.nih.gov/pubmed/19557213http://ajrccm.atsjournals.org/cgi/content/full/157/6/1892
    Anonymous 42789 Replies
    • January 30, 2010
    • 01:08 PM
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  • The hardest thing in all this is that I have been unemployed a year, we lost our house to foreclosure and one of our two autos as well. we are very restricted in our spending. Food shopping is very very tight. My medical care is free til march 31, I MIGHT be able to get approved for longer but we will see. I am stuck dealing with the doctor/hospital I have and cannot go elsewhere. Your B12s awfully low.My Doctor said it is perfect. That's the hard part. Dr thinks it is fine Whats your diet like?Either your lacking from your diet or something is causing you to not be able to absorb B12 and Vitamin D. I randomly as I can afford take a B50 complex a few times a week. My diet is mostly A meat, 1 vegetable, 1 starch for supper every day plus bread, peanut butter, honey, leftovers from the night before. This is a daily minimum. Some days I eat more.the meat rotates each night between deer, pork, chicken, beefI drink only water or tea Have you asked for a chest X-ray? asked and got blown off. Intend to ask again at next appt Do you have any chest pain at all?If you do can you describe it. Not CHEST pain but when exposed to dust my lungs burn and when I try to go for walks my lungs burn My daily out of breath does not hurt at all at worst it is just heaviness What Vitamin D are you taking?Could it possibly have some fillers in it that are making you feel sicker? the vit D supplementation (1- 50,000 IU ergocalciferol liquid gel (prescription) one day a week, and 1- 2,000 IU cholecalciferol 4 days a week)
    rottlady 12 Replies
    • January 30, 2010
    • 06:02 PM
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  • Just to note - it takes 2 months or so to bring up D vitamin levels. This thread is very long but it seems you ARE having joint/bone symptoms (your knees, did you also say your back?). There was a peer-reviewed paper by Lowe you can find via google search about the value of copper in preventing bone loss after menopause. The original study was by Saltsman and Strauss They divided menopausal women into 4 groups: 1 placebo, 1 got 1000 mg calcium, 1 got 15 mg zinc, 5mg copper, 2.5 mh manganese, and the last group got the calcium plus the trace minerals. after 2 years, every group lost bone mass EXCEPT for the one with the calcium PLUS the trace minerals. Estrogen inhibits bone breakdown so as long as you've had waning estrogen you could have had bone issues. However, I'm not sure you can actually feel bone mass issues. What I KNOW you can feel is the joint problems caused by homocysteine (or that is by lack of SAMe for methylation). If your methyl cycle does not work, you will not have enough SAMe to lend methyl groups to many chemical reactions in your body, including the building of joint and bone, and a deleterious chemical called homocysteine will build up. Homocysteine causes high blood pressure, strokes, heart attacks, depression (low serotonin because it requires methylation to make serotonin), migraines, and depending on which B vitamin is deficient - possibly neuropathies, low stomach acid, pms, skin cancer, among other things. Your hormones lower homocysteine and when the hormones wane any problem that you had with homocysteine gets worse. . The nurse in this blog who wrote the book "Could it be B12?" says that the serum B12 test is not sensitive enough to detect low B12 and that one should get an MMA test for that as well as the homocysteine test. I have no idea about the shortness of breath. Except maybe I could say that I have shortness of breath when I am anemic and I have been anemic from low copper/P5P after menopause myself. It's not just low iron that leads to anemia.
    madanthony 1087 Replies
    • January 31, 2010
    • 09:04 PM
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