Discussions By Condition: I cannot get a diagnosis.

Can someone give what I have a name?

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Anonymous
  • June 10, 2007
  • 05:48 AM

Maybe I'll just call it Fred.

I've been to a number of doc's and I am an "enigma". My ankle has swelled several times over the last 4 years. It has been over 2 months and I still can't walk on it. I don't have any blood clots (had ultrasounds), there was no joint effusion - the swelling was in the tissue which apparently is not indicative of gout, or rheumatoid arthritis.

My neck got really stiff the week before the ankle swelled and I still can't turn it completely either way.

My voice is cracking all the time now and it never used to (just since the swelling in my ankle).

I had dental treatment the day before my ankle swelled

I also have hypothyroidism, low iron, calcium spots on my fingernails, very wrinkly skin on my hands for my age though I drink lots of water. I eat healthy I walk lots (well until this ankle thing). I am really tired of being sent home by dr's saying "sorry, don't know."

What is wrong with me?

J.

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5 Replies:

  • Are you taking any kind of statins for cholesterol/triglycerides? They can cause muscle pain in strange places. I had pain in my ankles and instep after 10 days of statins. I stopped taking them and the pain went away. Good luck.
    Anonymous 42789 Replies Flag this Response
  • You sound like you have Chronic Fatigue Syndrome and Immune Dysfunction.Stiff neck w/o infection- swelling, inflammation from the crown of your head down to your toes. Pain in the mouth, gums, teeth.Stick around- you are not alone.Fruity.
    Eatafruit78 960 Replies Flag this Response
  • Eatafruit is right. You are not alone. You will find many here in this forum. I am but just one of those people. There is a lot of "research" being done in this forum, behind the scenes by many who have posted threads here. There are already several threads containing information that will help. NAET/Bioset are therapies that will help control symptoms. Vitamins, minerals and supplements to boost the immune system. There are many names for this. ME/CFS/Post Viral Fatigue Syndrome/Glandular fever and so on.google CFS, find a symptoms page. Yours are listed. Be Well
    Anonymous 42789 Replies Flag this Response
  • I don't know if this is what's wrong with you, but it's worth checking out. Have you had thyroid antibodies drawn for your hypothyroidism? You might have Hashimoto's thyroiditis (the most common cause of hypothyroidism in the U.S.). This carries with it a high risk for about 20 other autoimmune things- such as Lupus, RA, Sjogren's, etc etc. It's possible that your ankle swelling could be autoimmune related. Ask your doctor what your thyroid antibody levels were and if they were high, for a referral to a rheumatologist. Ask to be worked up for the autoimmune diseases that sometimes go with Hashimoto's thyroidiitis, if that is what caused your hypothyroidism (there are other things that can cause it, such as pituitary disorder- your doctor should have checked into this already).I don't know for sure about your other symptoms, but the anemia, voice hoarseness, and wrinkling skin could all be from the hypothyroidism itself.The stiff neck may be from something called Hashimoto's encephalopathy, although it is rare to have HE with thyroiditis (and I don't know if your hyporthyroidism is actually from thyroiditis- you need to ask your docs). If you have other symptoms such as memory dysfunction, problems with speech or language, headaches, fatigue, balance problems, then this is consistent with HE if your antibodies are indeed high.I know it's frustrating to get comments back that may not be useful. I don't know if any of the above will be helpful, but I wish you the best of luck. I went undiagnosed for 8 years with HE and tell you from my experience not to give up- don't let the doctors blow you off.-e
    Anonymous 42789 Replies Flag this Response
  • elke, patients with CFS often have H Thyroiditis. CFS is a broad spectrum diagnosis. many in this forum are having symptoms like Lupus, Lyme, HH6, EBV and other viruses...bacterials...the thyroid is heavily affected too. Nodular thyroid...H Thyroiditis and so on.
    Anonymous 42789 Replies Flag this Response
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